Abstract
King Hussein Cancer (KHCC) is a specialized cancer center that treats both adult and pediatric cancer patients from Jordan and the neighboring countries. KHCC is acknowledged as a leader in cancer treatment in the Middle East and its vision is to maintain its leading position in cancer therapy and research. Hence, KHCC embarked on establishing the first ISO compliant cancer biobank (KHCCBIO) in Jordan.
Currently, there are very few biobanks in the Middle East, hence, KHCC wanted to change this situation by establishing an ISO-compliant cancer biobank which would incorporate all current international guidelines and best-in class practices under an approved quality management system for the benefit of researchers in Jordan, its neighboring countries, and throughout the world. The established biobank would follow the highest ethical standards in collecting, processing, storing and distributing high-quality, clinically annotated biospecimens.
The strategy used in establishing KHCCBIO was based on taking advantage of international networking and collaboration. This in essence led to knowledge transfer between well established organizations, institutions and individuals from Europe and Jordan, in existing technological innovation and internationally recognized quality standards. KHCC efforts were facilitated by a grant from the European Union under the seventh frame work program.
Future aims of KHCCBIO are to develop KHCC’s research infrastructure, increase its scope and visibility and improve its competitiveness throughout the biomedical science arena. Moreover, KHCCBIO is aiming to establish a platform for future knowledge transfer and collaborative research; develop partnerships between European and Middle Eastern organizations.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Gaskell G, Herbert G, Johannes S et al (2011) Working paper. Publics and biobanks in Europe: explaining heterogeneity. Herbert Gottweis (ed) University of Vienna, Department of Political Science. “Life-Science-Governance” – Research Platform. http://www.univie.ac.at/life-science-governance/papers2011/LSG%20Working%20Paper.pdf. Accessed 3 Aug 2014
John SL, Gwendolyn PQ, Francisco A et al (2012) Formative research on perceptions of biobanking: what community members think. J Cancer Educ 27(1):91–99
Pullman D, Etchegary H, Gallagher K et al (2012) Personal privacy, public benefits, and biobanks: a conjoint analysis of policy priorities and public perceptions. Genet Med 14(2):229–235
Master Z, Claudio JO, Rachul C et al (2013) Cancer patient perceptions on the ethical and legal issues related to biobanking BMC Med. Genomics 6:8
Ahram M, Othman A, Shahrouri M (2013) Public support and consent preference for biomedical research and biobanking in Jordan. Eur J Hum Genet 21(5):567–570
Abou-Zeid A, Silverman H, Shehata M et al (2010) Collection, storage and use of blood samples for future research: views of Egyptian patients expressed in a cross-sectional survey. J Med Ethics 36:539–547
Al-Jumah MA, Abolfotouh MA (2011) Public perception and attitude of saudis toward organ and tissue donation. Biopreserv Biobank 9:1
Al-Jumah M, Abolfotouh MA, Alabdulkareem IB et al (2011) Public attitude towards biomedical research at outpatient clinics of King Abdulaziz medical city, Riyadh, Saudi Arabia. East Mediterr Health J 17(6):536–545
Khalil SS, Silverman HJ, Raafat M et al (2007) Attitudes, understanding, and concerns regarding medical research amongst Egyptians: a qualitative pilot study. BMC Med Ethics 8:9
Ahram M, Othman A, Shahrouri M et al (2014) Factors influencing public participation in biobanking. Eur J Hum Genet 22(4):445–451
Barr M, Souan L, MacGabhann P et al (2014) The establishment of an ISO compliant cancer biobank for Jordan and its neighboring countries through knowledge transfer and training. Biopreserv Biobank 12:1
European Union Project. Grant agreement for: support action – annex I. Project number FP7-INCO-2011-6. KHCCBIO, Supporting the Establishment of a Cancer Biobank for Jordan and its Neighbouring Countries through Knowledge Transfer & Training
Souan L, Sughayer M (2013) Deliverable 3.2 – forming a governance & research ethics committee. European Union Project. Grant Agreement for: Support Action – Project number FP7-INCO-2011-6. KHCCBIO, Supporting the Establishment of a Cancer Biobank for Jordan and its Neighbouring Countries through Knowledge Transfer & Training
NCI, NIH and DHSS. National Cancer Institute Best Practices for Biospecimen Resources. US National Cancer Institute (2007) http://www.biospecimens.cancer.gov/bestpractices. Last accessed Jan 2014
Guerin JS, Murray DW, McGrath MM et al (2010) Molecular medicine Ireland guidelines for standardized biobanking. Biopreserv Biobank 8:3–63
European Union Project. Description of Work. Project number FP7-INCO-2011-6. KHCCBIO, Supporting the Establishment of a Cancer Biobank for Jordan and its Neighbouring Countries through Knowledge Transfer & Training
International Society for Biological and Environmental Repositories: best practices for repositories: collection, storage, retrieval and distribution of biological materials for research (2008). Cell Preserv Technol 6:53–58
Chandrasekar A, Warwick RM, Clarkson A (2011) Exclusion of deceased donors post-procurement of tissues. Cell Tissue Bank 12:191–198
The Spanish National Tumor Bank Network (SNTBN) (2014) http://www.cnio.es/ing/grupos/plantillas/presentacion.asp?grupo=50004308. Last accessed Jan 2014
Wales Cancer Bank (2014) http://www.walescancerbank.com/. Last accessed Jan 2014
Health Research Board (2008) Dublin Ireland. ISBN 978-1-903669-14-3. www.hrb.ie/publications. Accessed 2 Oct 2014
Safety, Health and Welfare at Work Act (2005) http://www.hsa.ie/eng/Legislation/Acts/Safety_Health_and_Welfare_at_Work/SI_No_10_of_2005.pdf. Accessed 2 Oct 2014
Mitchell R (2010) National biobanks: clinical labor, risk production, and the creation of biovalue. Sci Technol Human Values 35(3):330–355
Samuels A (2004) Human Tissue Act 2004: the removal and retention of human organs and tissue. Med Leg J 72(Pt 4):148–150
Van Veen EB, Riegman PH, Dinjens WN et al (2007) TuBaFrost 3: regulatory and ethical issues on the exchange of residual tissue for research. Eur J Cancer 42(17):2914–2923
Biobanking and Biomolecular Resources Research Infrastructure. http://www.biobanks.eu/. Accessed 27 Sep 2014
King Hussein Cancer Center (2014) http://www.khcc.jo/section/uniqueness-khcc. Accessed 2 Oct 2014
Malkawi K (2011) Pharmacy choice. Kingdom’s medical tourism sector cracks global top five. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2879701/pdf/nihms-202980.pdf. Accessed 9 Oct 2014
Acknowledgments
The authors gratefully acknowledge the European Union Seventh Framework Programme (FP7) for funding this project (INCO.2011.6.2). We also gratefully acknowledge our collaborators from Europe; Martin Barr PhD from Trinity College Dublin, Peadar MacGabhann and Uwe Kuhn of Biostór, Ireland and Jeanette Müller of Accelopment AG, Switzerland.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2015 Springer International Publishing Switzerland
About this chapter
Cite this chapter
Sughayer, M.A., Souan, L. (2015). Establishing an Iso-Compliant Modern Cancer-Biobank in a Developing Country: A Model for International Cooperation. In: Karimi-Busheri, F. (eds) Biobanking in the 21st Century. Advances in Experimental Medicine and Biology, vol 864. Springer, Cham. https://doi.org/10.1007/978-3-319-20579-3_11
Download citation
DOI: https://doi.org/10.1007/978-3-319-20579-3_11
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-20578-6
Online ISBN: 978-3-319-20579-3
eBook Packages: Biomedical and Life SciencesBiomedical and Life Sciences (R0)