Skip to main content
SpringerLink
Log in

From the Ivory Tower to the Real World: Translating an Evidence-Based Intervention for Latino Dementia Family Caregivers into a Community Setting

  • Chapter
Book cover Partnerships for Mental Health

Abstract

Latino caregivers of Alzheimer’s disease patients are a fast-growing minority in San Diego County, California, as well as in the United States overall. Depression, higher levels of burden, and poorer health are common in this group. To improve quality of life for this underserved population, researchers from Stanford University partnered with the Southern Caregiver Resource Center to implement culturally tailored versions of two caregiver stress management programs derived from the original Resources for Enhancing Alzheimer’s Caregiver Health and National Institute on Aging—funded projects in the southern area of San Diego County. This narrative describes how researchers and community providers collaborated to obtain funding from the Rosalynn Carter Institute for Caregiving and the San Diego County Behavioral Health Services to serve Latino caregivers in this region. The authors also highlight how two evidence-based interventions were adapted to make them feasible and culturally appropriate for Latino caregivers of low education, as well as the program’s challenges and successes.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. World Health Organization, Alzheimer’s Disease International. Dementia: A Public Health Priority. 2012; Available from: http://whqlibdoc.who.int/publications/2012/9789241564458_eng.pdf.

  2. Administration on Aging. A statistical profile of Hispanic older Americans aged 65+. Department of Health & Human Services; 2010 [cited 2013 March 5]; Available from: http://www.aoa.gov/AoARoot/Aging_Statistics/minority_aging/Facts-on-Hispanic-Elderly.aspx.

  3. American Psychiatric Association. Diagnostic and statistical manual of mental disorders fifth edition (DSM-5). 5th ed. Washington, DC: American Psychiatric Association; 2013.

    Google Scholar 

  4. Alzheimer’s Association. Minorities Contract Alzheimer’s Earlier. 2011; Available from: http://www.elderauthority.com/alzheimers-association-en-espanol.

  5. Clark CM, DeCarli C, Mungas D, Chui HI, Higdon R, Nuñez J, et al. Earlier onset of Alzheimer disease symptoms in Latino individuals compared with Anglo individuals. Arch Neurol. 2005;62(5):774–8.

    Article  PubMed  Google Scholar 

  6. Hinton L, Chambers D, Velásquez A. Making sense of behavioral disturbances in persons with dementia: Latino family caregiver attributions of neuropsychiatric inventory domains. Alzheimer Dis Assoc Disord. 2009;23(4):401–5.

    Article  PubMed Central  PubMed  Google Scholar 

  7. Alzheimer’s Association. Alzheimer’s Disease Facts and Figures. 2013 [cited 2013 september 2]; Available from: http://www.alz.org/downloads/facts_figures_2013.pdf.

  8. Pinquart M, Sörensen S. Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. Gerontologist. 2005;45(1):90–106.

    Article  PubMed  Google Scholar 

  9. Vitaliano PP, Zhang J, Scanlan JM. Is caregiving hazardous to one’s physical health? A meta-analysis. Psychol Bull. 2003;129(6):946–72.

    Article  PubMed  Google Scholar 

  10. Vitaliano PP, Young HM, Zhang J. Is caregiving a risk factor for illness? Curr Direct Psychol Sci. 2004;13(1):13–6.

    Article  Google Scholar 

  11. Savard J, Leduc N, Lebel P, Beland F, Bergman H. Caregiver satisfaction with support services: influence of different types of services. J Aging Health. 2006;18(1):3–27.

    Article  PubMed  Google Scholar 

  12. Alvarez P, Rengifo J, Emrani T, Gallagher-Thompson D. Latino older adults and mental health: a review and commentary. Clin Gerontol. 2014;37(1):33–48.

    Article  Google Scholar 

  13. McHenry JC, Insel KC, Einstein GO, Vidrine AN, Koerner KM, Morrow DG. Recruitment of older adults: success may be in the details. The Gerontologist. 2012 Aug 16 (Epub ahead of print).

    Google Scholar 

  14. Schulz R, Burgio L, Burns R, Eisdorfer C, Eisdorfer C, Gallagher-Thompson D, Gitlin LN, et al. Resources for enhancing Alzheimer’s Caregiver Health (REACH): overview, site-specific outcomes, and future directions. Gerontologist. 2003;43(4):514–20.

    Article  PubMed Central  PubMed  Google Scholar 

  15. Gallagher-Thompson D, Coon DW, Solano N, Ambler C, Rabinowitz Y, Thompson LW. Change in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: site-specific results from the REACH national collaborative study. Gerontologist. 2003;43(4):580.

    Article  PubMed  Google Scholar 

  16. Belle SH, Burgio L, Burns R, Coon D, Czaja SJ, Gallagher-Thompson D, et al. Enhancing the quality of life of dementia caregivers from different ethnic or racial groups. Ann Intern Med. 2006;145(10):727–38.

    Article  PubMed Central  PubMed  Google Scholar 

  17. Mental Health Services Act. Proposition 63. [cited 2014 April 19]; Available from: http://prop63.org/about/prop-63-today/.

  18. Valle R, Garrett Mario D, Velasquez R. Developing dementia prevalence rates among Latinos: a locally-attuned, data-based, service planning tool. J Popul Ageing. 2013;6(3):211–25.

    Article  Google Scholar 

  19. Haan MN, Mungas DM, Gonzalez HM, Ortiz TA, Acharya A, Jagust WJ. Prevalence of dementia in older Latinos: the influence of type 2 diabetes mellitus, stroke and genetic factors. J Am Geriatr Soc. 2003;51(2):169–77.

    Article  PubMed  Google Scholar 

  20. Mausbach B, Coon D, Depp C, Rabinowitz Y, Wilson-Arias E, Kraemer H, et al. Ethnicity and time to institutionalization of dementia patients: a comparison of Latina and Caucasian female family caregivers. J Am Geriatr Soc. 2004;52(7):1077–84.

    Article  PubMed  Google Scholar 

  21. Gallagher-Thompson D, Singer LS, Depp C, Mausbach BT, Cardenas V, Coon DW. Effective recruitment strategies for Latino and Caucasian dementia family caregivers in intervention research. Am J Geriatr Psychiatry. 2004;12(5):484–90.

    Article  PubMed  Google Scholar 

  22. Zarit SH, Orr NK, Zarit JM. The hidden victims of Alzheimer’s disease: families under stress. New York: New York University Press; 1985.

    Google Scholar 

  23. Bedard M, Molloy DW, Squire L, Dubois S, Dubois S, Lever JA, O’Donnell M. The Zarit Burden interview: a new short version and screening version. Gerontologist. 2001;41(5):652–7.

    Article  CAS  PubMed  Google Scholar 

  24. Radloff LS. The CES-D Scale: a self-report depression scale for research in the general population. Appl Psychol Meas. 1977;1(3):385–401.

    Article  Google Scholar 

  25. Gallagher-Thompson D, Solano N, Coon D, Areán P. Recruitment and retention of Latino dementia family caregivers in intervention research: issues to face, lessons to learn. Gerontologist. 2003;43(1):45–51.

    Article  PubMed  Google Scholar 

  26. Gallagher-Thompson D, Tzuang YM, Au A, Brodaty H, Charlesworth G, Gupta R, et al. International perspectives on nonpharmacological best practices for dementia family caregivers: a review. Clin Gerontol. 2012;35(4):316–55.

    Article  Google Scholar 

Download references

Acknowledgment

This narrative is based upon work supported and funded by San Diego County Behavioral Health Services and the Rosalynn Carter Institute. The authors would like to thank Marissa Goode from the University of California San Diego for her assistance in statistical data analyses for this narrative.

Author information

Authors and Affiliations

  1. Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA, USA

    Dolores Gallagher-Thompson Ph.D., A.B.P.P.

  2. Palo Alto University, Pacific Graduate School of Psychology, Palo Alto, CA, USA

    Paula Alvarez Ph.D.

  3. Department of Psychiatry, University of California, San Diego, CA, USA

    Veronica Cardenas Ph.D.

  4. Stanford University School of Medicine, Stanford Geriatric Education Center, Stanford, CA, USA

    Marian Tzuang M.S.W.

  5. Southern Caregiver Resource Center, San Diego, CA, USA

    Roberto E. Velasquez M.S., Kurt Buske M.S.W. (Consultant) & Lorie Van Tilburg M.S.W.

Authors
  1. Dolores Gallagher-Thompson Ph.D., A.B.P.P.
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Paula Alvarez Ph.D.
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Veronica Cardenas Ph.D.
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Marian Tzuang M.S.W.
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. Roberto E. Velasquez M.S.
    View author publications

    You can also search for this author in PubMed Google Scholar

  6. Kurt Buske M.S.W.
    View author publications

    You can also search for this author in PubMed Google Scholar

  7. Lorie Van Tilburg M.S.W.
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Dolores Gallagher-Thompson Ph.D., A.B.P.P. .

Editor information

Editors and Affiliations

  1. Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, California, USA

    Laura Weiss Roberts

  2. Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford , California, USA

    Daryn Reicherter

  3. Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford , California, USA

    Steven Adelsheim

  4. Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford , California, USA

    Shashank V. Joshi

Rights and permissions

Reprints and permissions

Copyright information

© 2015 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Gallagher-Thompson, D. et al. (2015). From the Ivory Tower to the Real World: Translating an Evidence-Based Intervention for Latino Dementia Family Caregivers into a Community Setting. In: Roberts, L., Reicherter, D., Adelsheim, S., Joshi, S. (eds) Partnerships for Mental Health. Springer, Cham. https://doi.org/10.1007/978-3-319-18884-3_9

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-18884-3_9

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-18883-6

  • Online ISBN: 978-3-319-18884-3

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation