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Implications for Health and Life Insurances and Other Legal Aspects of Genetic Testing

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Movement Disorder Genetics

Abstract

Scientific breakthroughs have fostered the development of new genomic tools, which are generating an unprecedented amount of genetic data. This information has been a catalyst in the transition towards personalized medicine by rapidly becoming integrated to the health care and the research settings but also through the use of direct-to-consumer genetic services. Despite the wealth of perceived benefits in improved diagnosis, treatments, and preventive measures, concerns continue to be raised about the use of genetic information for nontherapeutic purposes and genetic discrimination in the context of insurance. As various neurologists and researchers in movement disorder genetics are increasingly being solicited to assist patients to deal with these concerns, they are confronted with the changing landscape of ethical and legal issues and facing a need for additional knowledge and resources about the implications that genetics may have on the insurability of patients and their family members.

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Acknowledgment

The authors would like to thank Laura Crimi at the Centre of Genomics and Policy for her valuable assistance in the preparation of this book chapter.

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  1. Faculty of Medicine, Department of Human Genetics, Centre of Genomics and Policy, McGill University, Montreal, H3A 0G1, Canada

    Ida Ngueng Feze BA, JD, LLM, Shahad Salman LLB, JD, LLM & Yann Joly DCL (PhD)

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  1. Ida Ngueng Feze BA, JD, LLM
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Correspondence to Yann Joly DCL (PhD) .

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  1. Department of Neurology, University Hospital Kiel, Kiel, Germany

    Susanne A. Schneider

  2. Department of Molecular Neuroscience, University College London, Institute of Neurology, London, United Kingdom

    José M. Tomás Brás

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© 2015 Springer International Publishing Switzerland

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Ngueng Feze, I., Salman, S., Joly, Y. (2015). Implications for Health and Life Insurances and Other Legal Aspects of Genetic Testing. In: Schneider, S., Brás, J. (eds) Movement Disorder Genetics. Springer, Cham. https://doi.org/10.1007/978-3-319-17223-1_23

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  • DOI: https://doi.org/10.1007/978-3-319-17223-1_23

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-17222-4

  • Online ISBN: 978-3-319-17223-1

  • eBook Packages: MedicineMedicine (R0)

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