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Nutrition Education

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Nutrition Management of Inherited Metabolic Diseases

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References

  1. Institute of Medicine, editor. Health literacy: a prescription to end confusion. Washington, DC: National Academy of Sciences; 2004.

    Google Scholar 

  2. Blau N, et al. Management of phenylketonuria in Europe: survey results from 19 countries. Mol Genet Metab. 2010;99(2):109–15.

    Article  CAS  PubMed  Google Scholar 

  3. MacDonald A, et al. The reality of dietary compliance in the management of phenylketonuria. J Inherit Metab Dis. 2010;33(6):665–70.

    Article  PubMed  Google Scholar 

  4. Feillet F, et al. Challenges and pitfalls in the management of phenylketonuria. Pediatrics. 2010;126(2):333–41.

    Article  PubMed  Google Scholar 

  5. Gold DT, McClung B. Approaches to patient education: emphasizing the long-term value of compliance and persistence. Am J Med. 2006;119(4 Suppl 1):S32–7.

    Article  PubMed  Google Scholar 

  6. Rosenthal MS, et al. A randomized trial of practice-based education to improve delivery systems for anticipatory guidance. Arch Pediatr Adolesc Med. 2005;159(5):456–63.

    Article  PubMed  Google Scholar 

  7. Schuster MA, et al. Anticipatory guidance: what information do parents receive? What information do they want? Arch Pediatr Adolesc Med. 2000;154(12):1191–8.

    Article  CAS  PubMed  Google Scholar 

  8. Bernstein LE, et al. Nutrition education tools used in phenylketonuria: clinician, parent and patient perspectives from three international surveys. J Hum Nutr Diet. 2014;27 Suppl 2:4–11.

    Article  PubMed  Google Scholar 

  9. Olsson GM, Montgomery SM, Alm J. Family conditions and dietary control in phenylketonuria. J Inherit Metab Dis. 2007;30(5):708–15.

    Article  CAS  PubMed  Google Scholar 

  10. Demirkol M, et al. Follow up of phenylketonuria patients. Mol Genet Metab. 2011;104(Suppl):S31–9.

    Article  CAS  PubMed  Google Scholar 

  11. van Spronsen FJ, et al. Cognitive, neurophysiological, neurological and psychosocial outcomes in early-treated PKU-patients: a start toward standardized outcome measurement across development. Mol Genet Metab. 2011;104(Suppl):S45–51.

    Article  PubMed  Google Scholar 

  12. Schaefer JK. Improving chronic care: self-management support. The improving chronic care illness care program 2006–2014 [cited 12 Sept 2014]. Available from: http://www.improvingchroniccare.org/index.php?p=Self-Management_Support&s=22

  13. Lorig KR, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999;37(1):5–14.

    Article  CAS  PubMed  Google Scholar 

  14. Battersby M, et al. The development of self-management for SA HealthPlus participants in the Australian coordinated care trials: recollections of an evaluation. In: C.D.o.H.a. Aging, editor. Partners in health. Canberra: Publications Production Unit, Public Affairs, Parliamentary and Access Branch; 2002. p. 201–11.

    Google Scholar 

  15. Miller WR, Rollnick S. Motivational interviewing: preparing people to change addictive behavior, vol. xvii. New York: Guilford Press; 1991. p. 348.

    Google Scholar 

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Author information

Authors and Affiliations

  1. Clinical Genetics and Metabolism, Children’s Hospital Colorado, University of Colorado Denver – Anschutz Medical Campus, 13123 East 16th Avenue, 153, Aurora, CO, 80045, USA

    Laurie E. Bernstein MS, RD, FADA, FAND & Joanna R. Helm MS, RD

Authors
  1. Laurie E. Bernstein MS, RD, FADA, FAND
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  2. Joanna R. Helm MS, RD
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Corresponding author

Correspondence to Laurie E. Bernstein MS, RD, FADA, FAND .

Editor information

Editors and Affiliations

  1. Clinical Genetics and Metabolism, Children’s Hospital Colorado, University of Colorado Denver – Anschutz Medical Campus, Aurora, Colorado, USA

    Laurie E. Bernstein

  2. Division of Genetics and Genomics, Boston Children’s Hospital, Boston, Massachusetts, USA

    Fran Rohr

  3. Clinical Genetics and Metabolism, University of Colorado Denver, Children’s Hospital Colorado, Aurora, Colorado, USA

    Joanna R. Helm

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© 2015 Springer International Publishing Switzerland

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Bernstein, L.E., Helm, J.R. (2015). Nutrition Education. In: Bernstein, L., Rohr, F., Helm, J. (eds) Nutrition Management of Inherited Metabolic Diseases. Springer, Cham. https://doi.org/10.1007/978-3-319-14621-8_3

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  • DOI: https://doi.org/10.1007/978-3-319-14621-8_3

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-14620-1

  • Online ISBN: 978-3-319-14621-8

  • eBook Packages: MedicineMedicine (R0)

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