Skip to main content

Conceptualizing Adherence

  • Chapter
  • First Online:
Healthcare Partnerships for Pediatric Adherence

Part of the book series: SpringerBriefs in Public Health ((BRIEFSCHILD))

  • 685 Accesses

Abstract

In this chapter we review theoretical constructs that have proved crucial to our thinking and approach to pediatric adherence. This is not meant to be a comprehensive review of current theories, but a selective examination of some key points. Constructs familiar from the adult literature are considered from the perspective of family-centered care, which entails recognition of the different roles the family plays in helping manage a child’s chronic illness. In later chapters these key concepts will further inform discussion of the roles of parents and healthcare providers in fostering children’s adherence and eventual attainment of autonomous and independent self-care skills.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Abrams MA, Klass P, Dreyer BP. Health literacy and children: introduction. Pediatrics 2009;124:262-4 (DeWalt and Hink, Pediatrics 2009;124;265).

    Google Scholar 

  • Adams CD, Dreyer ML, Dinakar C, Portnoy JM. Pediatric asthma: a look at adherence from the patient and family perspective. Curr Allergy Asthma Rep. 2004;4(6):425–32.

    Article  PubMed  Google Scholar 

  • Ajzen I. The theory of planned behavior. Org Behav Hum Decis Process. 1991;50: 179–211.

    Article  Google Scholar 

  • Ajzen I. The social psychology of decision making. In Higgins ET, Kruglanski AW, Editors. Social psychology: handbook of basic principles. New York: Guilford; 1996. pp. 297–328.

    Google Scholar 

  • Ajzen I. Theory of planned behavior. http://www-unix.oit.umass.edu/~aizen/tpb.html (2005) Accessed 12 May 2005.

  • Bandura A. Self-efficacy: The exercise of control. New York: Freeman 1997.

    Google Scholar 

  • Baumeister RF, Bratslavsky E, Muraven M, Tice DM. Ego depletion: Is the active self a limited resource? Journal of Personality and Social Psychology. 1998;74:1252–65.

    Google Scholar 

  • Bond GG., Aiken LS., Somerville SC. The health belief model and adolescents with insulin-dependent diabetes mellitus. Health Psychol. 1992;11:190–8.

    Article  CAS  PubMed  Google Scholar 

  • Bush and Iannotti. A Children’s Health Belief Model. Med Care 1990;28:69–86.

    Google Scholar 

  • Buston KM, Wood SF. Non-compliance amongst adolescents with asthma: listening to what they tell us about self-management. Fam Pract. 2000;17(2):134–8.

    Article  CAS  PubMed  Google Scholar 

  • Cameron FJ, Northam EA, Ambler G, Daneman D. Routine psychological screening in youth with type 1 diabetes and their parents: a notion whose time has come? Diabetes Care. 2007;30:2716–24.

    Article  PubMed  Google Scholar 

  • Charron-Prochownik D, Becker M, Brown M, Liang W, Bennett S. Understanding young children’s health benefits and diabetes regimen adherence. Diabetes Educ. 1993:19;409–18.

    Article  CAS  PubMed  Google Scholar 

  • Chisholm V, Atkinson L, Donaldson C, Noyes K, Payne A, Kelnar C. Maternal communication style, problem-solving and dietary adherence in young children with type 1 diabetes. Clin Child Psychol Psychiatry. 2011;16(3):443–58.

    Article  PubMed  Google Scholar 

  • Cline VD, Schwartz DD, Axelrad ME, Anderson BJ. A pilot study of acute stress symptoms in parents and youth following diagnosis of type I diabetes. J Clin Psychol Med Settings. 2011;18:416–22.

    Article  PubMed  Google Scholar 

  • Compas BE, Jaser SS, Dunn MJ, Rodriguez EM. Coping with chronic illness in childhood and adolescence. Annu Rev Clin Psychol 2012;8:455–80.

    Google Scholar 

  • Cortina S, Somers M, Rohan JM, Drotar D. Clinical effectiveness of comprehensive psychological intervention for nonadherence to medical treatment: a case series. J Pediatr Psychol. 2013;38:649–63.

    Article  PubMed  Google Scholar 

  • De Civita M, Dobkin PL. Pediatric adherence as a multidimensional and dynamic construct, involving a triadic partnership. J Ped Psychol. 2004;29:157–69.

    Article  Google Scholar 

  • De Ridder DT, De Wit JB. Self-regulation in health behavior: Concepts, theories, and central issues. Self-Regul Health Behav. 2006;1–23.

    Google Scholar 

  • Deci EL, Ryan RM. The support of autonomy and the control of behavior. Journal of Personality and Social Psychology 1987;53:1024–37.

    Google Scholar 

  • Deci EL, Ryan RM. The “what” and “why” of goal pursuits: Human needs and the self-determination of behavior. Psychol Inq. 2000;11:227–68.

    Article  Google Scholar 

  • Deci EL, Ryan RM. Facilitating optimal motivation and psychological well-being across life’s domains. Can Psychol. 2008;49:14–23.

    Article  Google Scholar 

  • Deci EL, Ryan RM. Self-determination theory in health care and its relations to motivational interviewing: a few comments. Int J Behav Nutr Phys Act. 2012;9:24.

    Article  PubMed Central  PubMed  Google Scholar 

  • Deci EL, Koestner R, Ryan RM. A meta-analytic review of experiments examining the effects of extrinsic rewards on intrinsic motivation. Psych Bull. 1999;125:627–88.

    Article  CAS  Google Scholar 

  • De Walt DA, Hink A. Health literacy and child health outcomes: a systematic review of the literature. Pediatrics 2009;124:265–74.

    Article  Google Scholar 

  • Diekema DS. Improving childhood vaccination rates. Engl J Med. 2012;366:391–3.

    Article  CAS  Google Scholar 

  • DiMatteo MR. Practitioner-family-patient communication in pediatric adherence: Implications for research and clinical practice. In Drotar D, Editor. Promoting adherence to medical treatment in chronic childhood chronic illness: concepts, methods, and interventions. Mahwah: Erlbaum; 2000. pp. 237–58.

    Google Scholar 

  • Epstein RM, Street RL. The values and value of patient-centered care. Ann Fam Med 2011;9:100–3.

    Article  PubMed Central  PubMed  Google Scholar 

  • Funnell MM. Helping patients take charge of their chronic illnesses. Fam Pract Manage 2000 Mar;7(3):47–51.

    CAS  Google Scholar 

  • Gelman SA, Legare CH. Concepts and folk theories. Ann. Rev. Anthropol 2011;40:379–98.

    Google Scholar 

  • Gibbons FX. Intention, expectation, and willingness 2008. http://cancercontrol.cancer.gov/BRP/constructs/intent-expect-willingness/iew4.html.

  • Gillison FB, Standage M, Skevington SM. Relationships among adolescents’ weight perceptions, exercise goals, exercise motivation, quality of life and leisure-time exercise behaviour: a self-determination theory approach. Health Educ Res. 2006;21(6):836–47.

    Article  CAS  PubMed  Google Scholar 

  • Graves MM, Roberts MC, Rapoff M, Boyer A. The efficacy of adherence interventions for chronically ill children: a meta-analytic review. J Pediatr Psychol. 2010;35:368–82.

    Article  PubMed  Google Scholar 

  • Grey M, Berry D. Coping skills training and problem solving in diabetes. Curr Diab Rep. 2004 Apr;4(2):126–31.

    Article  PubMed  Google Scholar 

  • Haller D, Sanci Lena, Sawyer S, et al. Do young people’s illness beliefs affect health care? A systematic view. J Adolescent Health 2008;42:436–49.

    Article  Google Scholar 

  • Helman CG. Disease versus illness in general practice. J Royal Coll Gen Pract. 1981;31:548–52.

    CAS  Google Scholar 

  • Herge WM, Streisand R, Chen R, Holmes C, Kumar A, Mackey ER. Family and youth factors associated with health beliefs and health outcomes in youth with Type 1 diabetes. J Pediatr Psychol. 2012;37:980–9.

    Google Scholar 

  • Hood KK, Peterson CM, Rohan JM, Drotar D. Association between adherence and glycemic control in pediatric type 1 diabetes: A meta-analysis. Pediatrics. 2009;124:e1171–79.

    Article  PubMed  Google Scholar 

  • Janz NK, Becker MH. The health belief model: a decade later. Health Educ Behav 1984;11(1):1–47.

    Article  CAS  Google Scholar 

  • Kahana S, Drotar D, Frazier T. Meta-analysis of psychological interventions to promote adherence to treatment in pediatric chronic health conditions. J Pediatr Psychol. 2008;33:590–611.

    Article  PubMed  Google Scholar 

  • Karoly P, Bay RC. Diabetes self-care goals and their relation to children’s metabolic control. J Pediatr Psychol. 1990:15;83–95.

    Article  CAS  PubMed  Google Scholar 

  • Kazak AE, Stuber ML, Barakat LP, Meeske K, Guthrie D, Meadows AT. Predicting posttraumatic stress symptoms in mothers and fathers of survivors of childhood cancers. J Am Acad Child Adolesc Psychiatry. 1998;37(8):823–31.

    Article  CAS  PubMed  Google Scholar 

  • Kelly MC, Jill SH, Kathleen L, Cabana MD. The impact of parents’ medication beliefs on asthma management. Pediatrics. 2007;120;e521. doi: 10.1542/peds.2006–3023

    Article  Google Scholar 

  • La Greca AM, Bearman KJ. If an apple a day keeps the doctor away, why is adherence so hard? J Pediatr Psychol. 2001;26:279–82.

    Article  PubMed  Google Scholar 

  • La Greca AM, Mackey ER. Adherence to pediatric treatment regimens. In Roberts MC, Steele RG, Editors. Handbook of pediatric psychology. 4th Edn. NY: Guilford; 2009.

    Google Scholar 

  • Landolt MA, Ribi K, Laimbacher J, Vollrath M, Gnehm HE, Sennhauser FH. Brief report: Posttraumatic stress disorder in parents of children with newly diagnosed type 1 diabetes. J Pediatr Psychol. 2002:27(7);647–52.

    Article  PubMed  Google Scholar 

  • Markland D, Ryan RM, Tobin VJ, Rollnick, S. Motivational interviewing and self-determination Theory. J Soc Clin Psychol. 2005;24:811–31.

    Article  Google Scholar 

  • Marteau TM, Johnston M, Baum JD, Bloch S. Goals of treatment in diabetes: a comparison of doctors and parents of children with diabetes. J Behav Med.1987;10:33–48.

    Article  CAS  PubMed  Google Scholar 

  • McClure SM, Laibson DI, Lowenstein G, Cohen JD. Separate neural systems value immediate and delayed monetary rewards. Science. 2004;306:503–7.

    Article  CAS  PubMed  Google Scholar 

  • Metcalfe J, Mischel W. A hot/cool-system analysis of delay of gratification: dynamics of willpower. Psychol Rev. 1999;106:3–19

    Article  CAS  PubMed  Google Scholar 

  • Mischel W, Ayduk O. Willpower in a cognitive-affective processing system: The dynamics of delay of gratification. In Baumeister RF, Vohs KD, Editors, Handbook of self-regulation: research, theory, and applications. New York: Guilford; 2004. pp. 99–129.

    Google Scholar 

  • Naar-King S. Arfken C. Frey M. Harris M. Secord E. Ellis D. Psychosocial factors and treatment adherence in paediatric HIV/AIDS. AIDS Care. 2006;18:621–8.

    Article  CAS  PubMed  Google Scholar 

  • Patino AM, Sanchez J, Eidson M, Delamater AM. Health beliefs and regimen adherence in minority adolescents with type 1 diabetes. J pediatr psychol. 2005;30(6):503–12.

    Article  PubMed  Google Scholar 

  • Patrick H, Williams GC. Self-determination theory: its application to health behavior and complementarity with Motivational Interviewing. Int J Beh Nutr Phys Act. 2012;9:18.

    Article  Google Scholar 

  • Rapoff MA. Adherence to pediatric medical regimens. 2nd ed. New York: Springer; 2010.

    Book  Google Scholar 

  • Rehm RS, Franck LS. Long-term goals and normalization strategies of children and families affected by HIV/AIDS. Adv Nurs Sci. 2000;23:69–82.

    Article  CAS  Google Scholar 

  • Reid GJ, Dubow EF, Carey TC, Dura JR. Contribution of coping to medical adjustment and treatment responsibility among children and adolescents with diabetes. J Dev Beh Ped. 1994;15:327–35.

    CAS  Google Scholar 

  • Rich M, Patashnick J, Chalfen R. Visual illness narratives of asthma: explanatory models and health-related behavior. Am J Health Behav 2002;26(6):442–53.

    Article  PubMed  Google Scholar 

  • Riekert KA, Drotar D. The beliefs about medication scale: development, reliability, and validity. J Clin Psychol Med. 2002;9(2):177–84.

    Article  Google Scholar 

  • Rudolph KD, Dennig MD, Weisz JR. Determinants and consequences of children’s coping in the medical setting: conceptualization, review, and critique. Psych Bull. 1995;118(3):328.

    Article  CAS  Google Scholar 

  • Ryan RM, Deci EL. Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. Ame Psychol. 2000;55:68.

    Article  CAS  Google Scholar 

  • Ryan RM, Patrick H, Deci EL, Williams GC. Facilitating health behaviour change and its maintenance: Interventions based on self-determination theory. Eur Health Psychol. 2008;10:2–5.

    Google Scholar 

  • Sameroff A, Editor. The transactional model of development: how children and contexts shape each other. Washington, DC: American Psychological Association; 2009.

    Book  Google Scholar 

  • Schwartz L, Drotar D. Defining the nature and impact of goals in children and adolescents with a chronic health condition: A review of research and a theoretical framework. J Clin Psychol Med Settings. 2006;13:393–405

    Article  Google Scholar 

  • Skinner TC, Hampson SE. Social support and personal models of diabetes in relation to self-care and well-being in adolescents with type 1 diabetes mellitus. J Adolesc. 1998;21:703–15.

    Article  CAS  PubMed  Google Scholar 

  • Skinner TC, Hampson SE. Personal models of diabetes in relation to self-care and well-being, and glycemic control. A prospective study in adolescence. Diabetes Care. 2001;24:828–33.

    Article  CAS  PubMed  Google Scholar 

  • Skinner CT, Hampson SE, Fife-Schaw CR. Personality, personal model beliefs, and self-care in adolescents and young adults with Type 1 diabetes. Health Psychol. 2002;21(1):61–70.

    Article  PubMed  Google Scholar 

  • Soenens B, Vansteenkiste M, Lens W, Luyckx K, Goossens L, Beyers W, Ryan RM. Conceptualizing parental autonomy support: Adolescent perceptions of promotion of independence versus promotion of volitional functioning. Dev Psychol. 2007;43:633–46.

    Article  PubMed  Google Scholar 

  • Strecher VJ, Rosenstock IM. The health belief model. In: Glantz K, Lewis FM, Rimer BK, Editors. Health behavior and health education: theory, research, and practice. 2nd edn. San Francisco: Jossey-Bass; 1997. pp. 41–59.

    Google Scholar 

  • Thompson RJ Jr, Gustafson KE. Adaptation to chronic childhood illness. Washington, DC: American Psychological Association; 1996.

    Book  Google Scholar 

  • Turner T, Cull WL, Bayldon B, et al. Pediatricians and health literacy: descriptive results from a national survey. Pediatrics.2009;124(5 suppl):S299–305.

    Article  PubMed  Google Scholar 

  • Urquhart Law G, Kelly TP, Huey D, et al. Self-management and well-being in adolescents with diabetes mellitus: do illness representations play a regulatory role? J Adolesc Health 2002;31(4):381–85.

    Article  PubMed  Google Scholar 

  • US Department of Health and Human Services. Healthy people 2010. Washington, DC: US Government Printing Office; 2000.

    Google Scholar 

  • Wade S, Weil C, Holden G, et al. Psychosocial characteristics of inner-city children with asthma: a description of the NCICAS psychosocial protocol. Pediatr Pulmonol. 1997;24(4):263–276.

    Article  CAS  PubMed  Google Scholar 

  • Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998;39:29–46.

    Article  CAS  PubMed  Google Scholar 

  • Williams GC. Improving patients’ health through supporting the autonomy of patients and providers. In Deci EL, Ryan RM, Editors. Handbook of self-determination research. Rochester: University of Rochester Press; 2002. pp. 233–54.

    Google Scholar 

  • Williams GC, Freedman ZR, Deci EL. Supporting autonomy to motivate patients with diabetes for glucose control. Diabetes Care. 1998;21:1644–51.

    Article  CAS  PubMed  Google Scholar 

  • Williams GC, McGregor HA, Zeldman A, Freedman ZR, Deci EL. Testing a self-determination theory process model for promoting glycemic control through diabetes self-management. Health Psychol. 2004;23:58–66.

    Article  PubMed  Google Scholar 

  • Williams GC, Heather P, Christopher P Niemiec L. Keoki W, George D, Lafata JE, Heisler M, Tunceli K, Pladevall M. Reducing the health risks of diabetes how self-determination theory may help improve medication adherence and quality of life. Diabetes Educ. 2009;35(3):484–92.

    Article  PubMed Central  PubMed  Google Scholar 

  • Wilson RA, Kei FC, Editors. The MIT encyclopedia of the cognitive sciences. Massachusetts: MIT; 2001.

    Google Scholar 

  • Wolfe J, Klar N, Grier HE, Duncan J, Salem-Schatz S, Emanuel EJ, et al. Understanding of prognosis among parents of children who died of cancer. JAMA. 2000;284:2469–75.

    Article  CAS  PubMed  Google Scholar 

  • Yin HS, Johnson M, Mendelsohn AL, Abrams MA, Sanders LM, Dreyer BP. The health literacy of parents in the United States: a nationally representative study. Pediatrics. 2009;124(5 suppl):S289–98.

    Article  PubMed  Google Scholar 

  • Zebracki K, Drotar D. Outcome expectancy and self-efficacy in adolescent asthma self-management. Child Health Care. 2004;33(2):133–49.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to David D. Schwartz .

Rights and permissions

Reprints and permissions

Copyright information

© 2015 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Schwartz, D., Axelrad, M. (2015). Conceptualizing Adherence. In: Healthcare Partnerships for Pediatric Adherence. SpringerBriefs in Public Health(). Springer, Cham. https://doi.org/10.1007/978-3-319-13668-4_2

Download citation

Publish with us

Policies and ethics