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Alzheimer’s Disease, Patients, and Informal Caregivers: Patterns of Care in France, Sweden, and Greece

  • Anastasia MeidaniEmail author
Chapter
Part of the International Perspectives on Aging book series (Int. Perspect. Aging, volume 10)

Abstract

What does it mean to investigate different patterns of care? What can be learnt about patterns of informal care from comparisons between different countries and cultures? Taking as a starting point a 3-year multidisciplinary European research project supported by FLARE and the CNSA (FLARE (Future Leaders of Ageing Research in Europe) and CNSA (Caisse Nationale de Solidarité pour l’Autonomie)), this article proposes an analysis of the patterns of care for patients with Alzheimer’s disease and their processual nature. To this end, it considers, in turn, the viewpoints of in-home patients themselves and those of their close caregivers. In light of empirical data collected through monographs in France, Greece, and Sweden, this analysis traces the contours of a micro-sociological, comprehensive, and contextual approach mainly inspired by the interactionist school of thought. More specifically, we interviewed 140 patients with Alzheimer’s disease living at home and their caregivers. Additionally, we included 100 observations of care situations. Aside from the definition of a macro- and micro-social analytical scale, the aim of this article is not to compare the data arising from interviews and observations with an analysis of public policies and the institutional system of each country. Neither is it to examine institutional care and the viewpoints of professional caregivers. By focusing on the informal care sector, the objective was to reconstruct analytically the subjective experience of care from the point of view of patients and informal caregivers, by exploring these experiences in distinct sociocultural situations.

Keywords

Informal Care Informal Caregiver Care Relationship Care Situation Professional Caregiver 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

Acknowledgments

The chapter was reviewed by Monique Membrado (University of Toulouse II) and Marcel Drulhe (University of Toulouse II). The preparation of this manuscript was supported financially by FLARE (Future Leaders of Ageing Research in Europe) and CNSA (Caisse Nationale de Solidarité pour l’Autonomie). I thank Alain Grand, Unit INSERM UMR 1027, for his investment in the development of this research project.

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Copyright information

© Springer International Publishing Switzerland 2014

Authors and Affiliations

  1. 1.Department of Sociology & AnthropologyLaboratory LISST CERS_UMR 5193 CNRS, INSERM Unit UMR 1027, University of Toulouse Jean JaurèsToulouseFrance

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