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International Conference on Research Challenges in Information Science

RCIS 2020: Research Challenges in Information Science pp 455–471Cite as

Blockchain-Based Personal Health Records for Patients’ Empowerment

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Part of the book series: Lecture Notes in Business Information Processing ((LNBIP,volume 385))

Abstract

With the current trend of patient-centric health-care, blockchain-based Personal Health Records (PHRs) frameworks have been emerging. The adoption of these frameworks is still in its infancy stage and is dependent on a broad range of factors. In this paper we look at some of the typical concerns raised from a centralized medical records solution such as the one deployed in France. Based on the state of the art literature in terms of Electronic Health Records (EHRs) and PHRs, we discuss the main implementation bottlenecks that can be encountered when deploying a blockchain solution and how to avoid them. In particular, we explore these bottlenecks in the context of the French PHR system and suggest some recommendations for a paradigm shift towards patients’ empowerment.

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Notes

  1. 1.

    The official websites describes the project as a “carnet de santé numérique” which is owned by patients in its paper form.

  2. 2.

    https://www.ameli.fr/haute-garonne/medecin/sante-prevention/dossier-medical-partage/dmp-tout-ce-que-professionnels-de-sante-doivent-savoir.

  3. 3.

    https://www.legifrance.gouv.fr/affichCodeArticle.do?idArticle=LEGIARTI000032843719.

  4. 4.

    The translation is by the authors.

References

  1. Agbo, C., Mahmoud, Q., Eklund, J.: Blockchain technology in healthcare: a systematic review. Healthcare 7(2), 56 (2019)

    Article  Google Scholar 

  2. Alpay, L., Van Der Boog, P., Dumaij, A.: An empowerment-based approach to developing innovative e-healthtools for self-management. Health Inform. J. 17(4), 247–255 (2011)

    Article  Google Scholar 

  3. Aymé, S., Kole, A., Groft, S.: Empowerment of patients: lessons from the rare diseases community. The Lancet 371(9629), 2048–2051 (2008)

    Article  Google Scholar 

  4. Blaze, M., Bleumer, G., Strauss, M.: Divertible protocols and atomic proxy cryptography. In: Nyberg, K. (ed.) EUROCRYPT 1998. LNCS, vol. 1403, pp. 127–144. Springer, Heidelberg (1998). https://doi.org/10.1007/BFb0054122

    Chapter  Google Scholar 

  5. Cuggia, M., Combes, S.: The French health data hub and the German medical informatics initiatives: two national projects to promote data sharing in healthcare. Yearb. Med. Inform. 28(01), 195–202 (2019)

    Article  Google Scholar 

  6. Dagher, G.G., Mohler, J., Milojkovic, M., Marella, P.B.: Ancile: privacy-preserving framework for access control and interoperability of electronic health records using blockchain technology. Sustain. Cities Soc. 39, 283–297 (2018)

    Article  Google Scholar 

  7. Ministère des Solidarités et de la Santé. Ma santé 2022: un engagement collectif. https://solidarites-sante.gouv.fr/systeme-de-sante-et-medico-social/masante2022/. Accessed 10 Jan 2020

  8. Drosatos, G., Kaldoudi, E.: Blockchain applications in the biomedical domain: a scoping review. Comput. Struct. Biotechnol. J. 17, 229–240 (2019)

    Article  Google Scholar 

  9. Ekblaw, A., Azaria, A., Halamka, J.D., Lippman, A.: A case study for blockchain in healthcare:“MedRec” prototype for electronic health records and medical research data. In: Proceedings of IEEE Open & Big Data Conference, vol. 13, p. 13 (2016)

    Google Scholar 

  10. Esposito, C., De Santis, A., Tortora, G., Chang, H., Choo, K.K.R.: Blockchain: a panacea for healthcare cloud-based data security and privacy? IEEE Cloud Comput. 5(1), 31–37 (2018)

    Article  Google Scholar 

  11. Faber, B., Michelet, G.C., Weidmann, N., Mukkamala, R.R., Vatrapu, R.: BPDIMS: a blockchain-based personal data and identity management system. In: Proceedings of the 52nd Hawaii International Conference on System Sciences (2019)

    Google Scholar 

  12. Fan, K., Wang, S., Ren, Y., Li, H., Yang, Y.: MedBlock: efficient and secure medical data sharing via blockchain. J. Med. Syst. 42(8), 1–11 (2018). https://doi.org/10.1007/s10916-018-0993-7

    Article  Google Scholar 

  13. Gordon, W.J., Catalini, C.: Blockchain technology for healthcare: facilitating the transition to patient-driven interoperability. Comput. Struct. Biotechnol. J. 16, 224–230 (2018)

    Article  Google Scholar 

  14. Hordern, A., Georgiou, A., Whetton, S., Prgomet, M.: Consumer e-health: an overview of research evidence and implications for future policy. Health Inf. Manag. J. 40(2), 6–14 (2011)

    Google Scholar 

  15. Hughes, E.: Unlocking blockchain: embracing new technologies to drive efficiency and empower the citizen. J. Br. Blockchain Assoc. 1(2), 1–15 (2018)

    Article  Google Scholar 

  16. Janssen, M., Weerakkody, V., Ismagilova, E., Sivarajah, U., Irani, Z.: A framework for analysing blockchain technology adoption: integrating institutional, market and technical factors. Int. J. Inf. Manag. 50, 302–309 (2020)

    Article  Google Scholar 

  17. Kuo, T.T., Zavaleta Rojas, H., Ohno-Machado, L.: Comparison of blockchain platforms: a systematic review and healthcare examples. J. Am. Med. Inform. Assoc. 26(5), 462–478 (2019)

    Article  Google Scholar 

  18. Leeming, G., Cunningham, J., Ainsworth, J.: A ledger of me: personalizing healthcare using blockchain technology. Front. Med. 6, 1–10 (2019)

    Article  Google Scholar 

  19. Liu, J., Li, X., Ye, L., Zhang, H., Du, X., Guizani, M.: BPDS: a blockchain based privacy-preserving data sharing for electronic medical records. In: Proceedings of 2018 IEEE Global Communications Conference, GLOBECOM 2018 (2018)

    Google Scholar 

  20. Macary, F.: The French PHR/EHR: creation, usage and lessons learnt with anational e-health record. HIMSS Europe (2013)

    Google Scholar 

  21. Manaouil, C.: Le dossier médical personnel (DMP): “autopsie” d’un projetambitieux? Médecine Droit 2009(94), 24–41 (2009)

    Article  Google Scholar 

  22. Mettler, M.: Blockchain technology in healthcare: the revolution starts here. In: 2016 IEEE 18th International Conference on e-Health Networking, Applications and Services, Healthcom 2016, pp. 1–3 (2016)

    Google Scholar 

  23. Nakamoto, S.: Bitcoin: a peer-to-peer electronic cash system (2008). http://bitcoin.org/bitcoin.pdf

  24. Schweitzer, L.: Le DMP ou comment constituer un gigantesque fichier des donnéesde santé. Terminal. Technologie de l’information Cult. société 111, 91–111 (2012)

    Google Scholar 

  25. l’Assurance Maladie Sécurité Sociale. FAQ. https://www.dmp.fr/patient/faq. Accessed 2020

  26. Tankard, C.: What the GDPR means for businesses. Netw. Secur. 2016(6), 5–8 (2016)

    Article  Google Scholar 

  27. Sarah Underwood: Blockchain beyond bitcoin (2016)

    Google Scholar 

  28. Xia, Q., Sifah, E.B., Asamoah, K.O., Gao, J., Du, X., Guizani, M.: MeDShare: trust-less medical data sharing among cloud service providers via blockchain. IEEE Access 5, 14757–14767 (2017)

    Article  Google Scholar 

  29. Zhang, P., White, J., Schmidt, D.C., Lenz, G., Rosenbloom, S.T.: FHIRChain: applying blockchain to securely and scalably share clinical data. Comput. Struct. Biotechnol. J. 16, 267–278 (2018)

    Article  Google Scholar 

  30. Zyskind, G., Nathan, O., Pentland, A.S.: Decentralizing privacy: using blockchain to protect personal data. In: Proceedings of the 2015 IEEE Security and Privacy Workshops, SPW 2015, pp. 180–184 (2015)

    Google Scholar 

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Funding

This work was supported by a grant from the Roche Fundation 2018.

Author information

Authors and Affiliations

  1. Institut de Recherche en Informatique de Toulouse, CNRS (UMR 5505), Université de Toulouse, Toulouse, France

    Omar El Rifai, Imen Megdiche, Franck Ravat & Olivier Teste

  2. ToNIC, Toulouse NeuroImaging Center, Université de Toulouse, Inserm, UPS, Toulouse, France

    Maelle Biotteau & Xavier de Boissezon

  3. Centre hospitalier universitaire de Toulouse, Toulouse, France

    Omar El Rifai, Maelle Biotteau & Xavier de Boissezon

Authors
  1. Omar El Rifai
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  2. Maelle Biotteau
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  3. Xavier de Boissezon
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  4. Imen Megdiche
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  5. Franck Ravat
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  6. Olivier Teste
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Corresponding author

Correspondence to Omar El Rifai .

Editor information

Editors and Affiliations

  1. Utrecht University, Utrecht, The Netherlands

    Fabiano Dalpiaz

  2. Stockholm University, Kista, Sweden

    Jelena Zdravkovic

  3. The Institute of Digital Innovation and Research, Dublin, Ireland

    Pericles Loucopoulos

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El Rifai, O., Biotteau, M., de Boissezon, X., Megdiche, I., Ravat, F., Teste, O. (2020). Blockchain-Based Personal Health Records for Patients’ Empowerment. In: Dalpiaz, F., Zdravkovic, J., Loucopoulos, P. (eds) Research Challenges in Information Science. RCIS 2020. Lecture Notes in Business Information Processing, vol 385. Springer, Cham. https://doi.org/10.1007/978-3-030-50316-1_27

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  • DOI: https://doi.org/10.1007/978-3-030-50316-1_27

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-50315-4

  • Online ISBN: 978-3-030-50316-1

  • eBook Packages: Computer ScienceComputer Science (R0)

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