Skip to main content

Citizen Involvement: What Does It Mean?

  • Chapter
  • First Online:

Abstract

In this chapter we address issues around patient and service user involvement asking why it has become best practice to widen the body of those involved with the design and delivery of healthcare. In particular, we reflect on the manner in which the individual seems to have taken precedence over the community, and why this has led to the growth of citizen involvement in the management of health and well-being. We recognise that organisations have a role to play in facilitating citizen involvement. We suggest that there are challenges in taking this approach as well as opportunity costs, and we query whether the benefits outweigh these costs.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   54.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   69.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   69.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  • Beresford, P. (2013). Beyond the usual suspects. London: Shaping Our Lives.

    Google Scholar 

  • Clarke, D., Jones, F., Harris, R., & Robert, G. (2017). What outcomes are associated with developing and implementing co-produced interventions in acute healthcare settings? A rapid evidence synthesis. BMJ Open, 7, e014650.

    Article  Google Scholar 

  • Coulter, A., & Ellins, J. (2006). Patient focused interventions: A review of the evidence. London: The Health Foundation.

    Google Scholar 

  • Den Broeder, L., Van Oers, H., Schuit, A., & Wagemakers, A. (2018). Citizen science for public health. Health Promotion International, 33, 505–514.

    Google Scholar 

  • Department of Health. (2019). The NHS Constitution 2019. Available at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/770675/The_Handbook_to_the_NHS_Constitution_-_2019.pdf. Accessed 18 Jan 2019.

  • Dewey, J. (1969). Experience and education. London: Collier-Macmillan.

    Google Scholar 

  • Drolet, B. C., & White, C. L. (2012). Selective Paternalism. AMA Journal of Ethics, 84(3), 582–588.

    Google Scholar 

  • Gura, T. (2013). Citizen science: Amateur experts. Nature, 496(744), 259–261.

    Article  Google Scholar 

  • Harries, P., Barron, D., & Ballinger, C. (2019). Developments in public involvement and co-production in research: Embracing our values and those of our service users and carers. British Journal of Occupational Therapy, First Published May 27, 2019 Editorial. Available at: https://doi.org/10.1177/0308022619844143. Accessed 28 July 2019.

    Article  Google Scholar 

  • Health Education England, Skills for Health, Skills for Care. (2017). New framework to promote person-centred approaches in healthcare. Available at http://tinyurl.com/y89gvzzr. Accessed 5 Aug 2019.

  • Hor, S., Godbold, N., Collier, A., & Iedema, I. (2013). Finding the patient in safety. Health (London, England), 17(6), 567–583.

    Article  Google Scholar 

  • INVOLVE. (2012). Briefing notes for researchers: Public involvement in NHS, public health and social care research. Available at: www.invo.org.uk/wp-content/uploads/2014/11/9938_INVOLVE_Briefing_Notes_WEB.pdf. Accessed 17 July 2019.

  • INVOLVE. (2018). Guidance on co-producing a research project. Available at: www.invo.org.uk/wp-content/uploads/2018/03/Copro_Guidance_Mar18.pdf. Accessed 17 July 2019.

  • INVOLVE. (2019). Welcome to INVOLVE. Available at: www.invo.org.uk/. Accessed 19 July 2019.

  • Irwin, A. (2015). Science, public engagement. In J. Wright (Ed.), International encyclopedia of the social and behavioural sciences (pp. 255–260). Oxford: Elsevier.

    Chapter  Google Scholar 

  • Lichten, C., Ioppolo, R. D., Angelo, C., Simmons, R., & Morgan Jones, M. (2018). Citizen science: Crowdsourcing for research. Cambridge: The Health Improvement Studies Institute. Available at https://www.thisinstitute.cam.ac.uk/wp-content/uploads/2018/05/THIS-Institute-Crowdsourcing-for-research-978-1-9996539-0-3.pdf. Accessed 5 Aug 2019.

  • Mullen, C. (2017). Person-centred care – A 2017 framework. British Journal of Healthcare Assistants, 11(12), 597–601.

    Article  Google Scholar 

  • NHS England. (2014). NHS five year forward view. Available at www.england.nhs.uk/wp-content/uploads/2014/10/5yfv-web.pdf. Accessed 5 Aug 2019.

  • Nutbrown, C., Bishop, J., & Wheeler, H. (2015). Co-production of family literacy projects to enhance early literary development. Journal of Children’s Services, 10(3), 265–279.

    Article  Google Scholar 

  • Ocloo, J., & Fulop, N. (2012). Developing a critical approach to patient and public involvement in patient safety in the NHS: Learning lessons from other parts of the public sector? Health Expectations, 15(4), 424–432.

    Article  Google Scholar 

  • Ocloo, J., & Matthews, R. (2016). From tokenism to empowerment: Progressing patient and public involvement in healthcare improvement. BMJ Quality and Safety, 2, 626–632.

    Article  Google Scholar 

  • Osborne, S., Radnor, Z., & Strokosch, K. (2016). Co-production and the co-creation of value in public services: A suitable case for treatment? Public Management Review, 18, 639–653.

    Article  Google Scholar 

  • Pandya-Wood, R., Elliott, J., & Barron, D. S. (2019). Service user and lay involvement in healthcare. In C. Llewellyn (Ed.), Cambridge handbook of psychology, health and medicine (3rd ed., pp. 347–352). Cambridge: Cambridge University Press.

    Google Scholar 

  • Polanyi, M. (1967). The tacit dimension. London: Tavistock.

    Google Scholar 

  • Renedo, A., Marston, C., Spyridonidis, D., & Barlow, J. (2015). Patient and public involvement in healthcare quality improvement: How organisations can help patients and professionals to collaborative. Public Management Review, 17(1), 17–34.

    Article  Google Scholar 

  • Riesch, H., & Potter, C. (2013). Citizen science as seen by scientists: Methodological, epistemological and ethical dimensions. Public Understanding Science, 23(1), 107–120.

    Article  Google Scholar 

  • Tritter, J. (2009). Revolution or evolution: The challenges of conceptualising patient and public involvement in a consumerist world. Health Expectations, 12, 275–287.

    Article  Google Scholar 

  • Vennick, F., van de Bovenkamp, H., Putters, K., & Crit, K. (2016). Co-production in healthcare: Rhetoric and practice. International Review of Administrative Sciences, 82(1), 150–168.

    Article  Google Scholar 

  • Vygotsky, L. (1978). Mind in society. Cambridge, MA: Harvard Business Press.

    Google Scholar 

  • Wait, S., & Nolte, E. (2006). Public involvement policies in health: Exploring their conceptual basis. Health Economic Policy Law, 1(2), 149–162.

    Article  Google Scholar 

  • Ward, J. K., & Armitage, G. (2012). Can patients report patient safety incidents in a hospital setting? A systematic review. BMJ Quality and Safety, 21(8), 685–699.

    Article  Google Scholar 

  • Ward, J. K., McEachan, R. R. C., Lawton, R., Armitage, G., Watt, I., Wright, J., & The Yorkshire Quality Safety Research Group. (2011). Patient involvement in patient safety: Protocol for developing an intervention using patient reports of organisational safety and patient incident reporting. BMC Health Services Research, 11, 130 Available online at: http://www.biomedcentral.com/1472-6963/11/130

  • Weber, M. (1964). The theory of social and economic organisation (trans: Henderson, A. M., & Parsons, T.). New York: Free Press.

    Google Scholar 

  • Wenger, E. (1998). Communities of practice: Learning as a social system. Available at http://www.co-i-l.com/coil/knowledge-garden/cop/lss.shtml. Accessed 4 Aug 2019.

  • Woolley, J., McGowan, M., Teare, H., Coathup, V., Fishman, J., Settersten, R., Sterckx, S., Kaye, J., & Juengst, E. (2016). Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives. BMC Medical Ethics, 17, 33–50.

    Article  Google Scholar 

  • World Health Organization. (1978). Declaration of Alma-Ata, International Conference on Primary Health Care, Alma-Ata, USSR, 6–12, September. Available at: www.who.int/publications/almaata_declaration_en.pdf. Accessed 22 July 2019.

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Sharon J. Williams .

Rights and permissions

Reprints and permissions

Copyright information

© 2020 The Author(s)

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Williams, S.J., Caley, L. (2020). Citizen Involvement: What Does It Mean?. In: Improving Healthcare Services. Palgrave Pivot, Cham. https://doi.org/10.1007/978-3-030-36498-4_3

Download citation

Publish with us

Policies and ethics