Abstract
Advocacy has been characterized as the process of giving a voice to those without a voice. Pediatric psychologists are uniquely trained to conceptualize a child holistically; integrate medical, developmental, familial, and psychological factors in treatment; as well as inform comprehensive care of the child and family, all the while stimulating system-level changes. The relative dearth of published activity in pediatric psychology focusing on the development of evidence-based advocacy strategies and interventions needs to be addressed. The present chapter is intended to provide a systematic overview of advocacy and practical interventions for the pediatric psychologist to “champion” for the needs and rights of the most vulnerable in the health-care system.
“It should be our aim to discover neglected problems and, so far as in our power, to correct evil and introduce reform.”
Isaac Abt, First President of American Academy of Pediatrics (AAP, 2009, p. viii)
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Appendix: Moral Distress Mapping Tool (Dudzinski, 2016)
Appendix: Moral Distress Mapping Tool (Dudzinski, 2016)
Emotions | Source(s) | Constraints | Conflicting responsibilities | Possible actions | Final action | |
|---|---|---|---|---|---|---|
Case | What emotions are you experiencing? (i.e., sadness, anger) | What precisely is the source of the moral distress? (i.e., inadequate staffing; disagree with decision) | Internal and external constraints to taking action (i.e., fears my concerns will be ignored; but patient does not qualify for needed services) | Fill in X and Y Value/responsibility X conflicts with value/responsibility Y | What actions could you take? – To improve outcome for the patient(s) | What action(s) should you take? |
– To cope with own moral distress |
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Gilbert, E.A.T., Schultz, K.V. (2020). Advocacy in Pediatric Psychological Consultation. In: Carter, B.D., Kullgren, K.A. (eds) Clinical Handbook of Psychological Consultation in Pediatric Medical Settings. Issues in Clinical Child Psychology. Springer, Cham. https://doi.org/10.1007/978-3-030-35598-2_38
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