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Non-pain Symptom Management

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Perinatal Palliative Care

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Abstract

Seriously ill infants may experience a wide variety of symptoms other than pain that may negatively impact their quality of life and cause unnecessary distress to their families and caregivers. These symptoms may include, but are not limited to, respiratory distress, vomiting, constipation, agitation, delirium, and environmental disturbances. While “non-pain” symptoms may sometimes be difficult to distinguish from pain, the general approach to recognition and management shares similarities. Having an awareness of infants’ state of being and the potential causes of all symptoms are important steps in helping infants achieve and maintain comfort. In this chapter, the authors discuss the clinical presentations and general approaches to managing different types of symptoms to improve infant comfort. Clinical vignettes are presented to help stimulate the reader’s reflection on key concepts.

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Abbreviations

COX:

Cyclooxygenase

GABA:

Gamma-aminobutyric acid

LLFND:

Life-limiting fetal or neonatal disorder

LTFD:

Life-threatening fetal disorder

NICU:

Neonatal intensive care unit

NMDA:

N-Methyl-D-aspartate

NSAID:

Nonsteroidal anti-inflammatory drug

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Authors and Affiliations

  1. Golisano Children’s Hospital, University of Rochester Medical Center, Department of Pediatrics, Rochester, NY, USA

    Patrick Hopkins, Jonna Marret, Rhonda Rusinko & Rita Dadiz

  2. Baptist Healthcare Systems, Little Rock, AR, USA

    Jonna Marret

  3. Department of Pharmacy, University of Rochester Medical Center, Golisano Children’s Hospital, Rochester, NY, USA

    Andrew S. Decker

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  1. Patrick Hopkins
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  5. Rita Dadiz
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  1. Strong Memorial Hospital, University of Rochester, Rochester, NY, USA

    Erin M. Denney-Koelsch

  2. School of Nursing, Saint Louis University, Saint Louis, MO, USA

    Denise Côté-Arsenault

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Hopkins, P., Marret, J., Rusinko, R., Decker, A.S., Dadiz, R. (2020). Non-pain Symptom Management. In: Denney-Koelsch, E., Côté-Arsenault, D. (eds) Perinatal Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-030-34751-2_9

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