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Parental Experiences and Needs After Life-Limiting Fetal Diagnosis

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Perinatal Palliative Care

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Abstract

After receiving a life-limiting prenatal diagnosis, parents typically experience a swirl of emotions and need to make significant decisions about the remainder of the pregnancy and about their baby’s care after birth. Many parents find purpose in parenting their baby before as well as after birth, imbuing their baby’s life with meaning and creating memories to sustain them later. Parents generally need significant support from health professionals and others with understanding the diagnosis and prognosis, to learn what treatment options there are and the implications of these choices, and to provide direct patient and family-centered care. Resources are gradually becoming more widely available for supporting parents continuing their pregnancies with a life-limiting prenatal diagnosis.

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Author information

Authors and Affiliations

  1. Editor, perinatalhospice.org, St. Paul, MN, USA

    Amy Kuebelbeck

  2. University of Rochester Medical Center/Strong Memorial Hospital, Department of Medicine, Division of Palliative Care, Rochester, NY, USA

    Erin M. Denney-Koelsch

Authors
  1. Amy Kuebelbeck
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  2. Erin M. Denney-Koelsch
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Editor information

Editors and Affiliations

  1. Strong Memorial Hospital, University of Rochester, Rochester, NY, USA

    Erin M. Denney-Koelsch

  2. School of Nursing, Saint Louis University, Saint Louis, MO, USA

    Denise Côté-Arsenault

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Kuebelbeck, A., Denney-Koelsch, E.M. (2020). Parental Experiences and Needs After Life-Limiting Fetal Diagnosis. In: Denney-Koelsch, E., Côté-Arsenault, D. (eds) Perinatal Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-030-34751-2_4

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  • DOI: https://doi.org/10.1007/978-3-030-34751-2_4

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-34750-5

  • Online ISBN: 978-3-030-34751-2

  • eBook Packages: MedicineMedicine (R0)

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