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Perinatal Palliative Care pp 305–332Cite as

Community-Based Perinatal Palliative Care

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Abstract

If community-based pediatric palliative care is in its infancy, then community-based perinatal palliative care is still in the womb. Over the past 10–15 years, there has been an explosion of home-based pediatric palliative care programs, some as an adjunct to hospital-based programs, some as a component of larger adult hospice and palliative care programs, and some as free-standing pediatric programs. Similarly, perinatal palliative care (PPC) has more recently experienced rapid growth (as this book attests to), and hospital-based programs in perinatal palliative care have now become an integral part of many pediatric palliative care programs. Although community-based perinatal programs exist, little is written on “who” they are and what exactly they do. In this chapter, we will define just what community-based PPC is, how it is distinct from hospital-based PPC, and what it can bring to families with fetuses in peril. We will illustrate this highlighting data and real-life stories based on our own experience through CompassionNet, an Upstate New York community-based PPC program.

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Author information

Authors and Affiliations

  1. Lifetime Care Home Health Care and Hospice, CompassionNet, Rochester, NY, USA

    Alyssa W. Gupton, Lauren M. Zwetsch & David N. Korones

  2. Department of Pediatrics, University of Rochester Medical Center, Rochester, NY, USA

    David N. Korones

Authors
  1. Alyssa W. Gupton
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  2. Lauren M. Zwetsch
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  3. David N. Korones
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Corresponding author

Correspondence to Alyssa W. Gupton .

Editor information

Editors and Affiliations

  1. Strong Memorial Hospital, University of Rochester, Rochester, NY, USA

    Erin M. Denney-Koelsch

  2. School of Nursing, Saint Louis University, Saint Louis, MO, USA

    Denise Côté-Arsenault

Appendices

Appendix 14.1 CompassionNet Perinatal Referral Form

figure a

Appendix 14.2 CompassionNet Birth Plan

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Gupton, A.W., Zwetsch, L.M., Korones, D.N. (2020). Community-Based Perinatal Palliative Care. In: Denney-Koelsch, E., Côté-Arsenault, D. (eds) Perinatal Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-030-34751-2_14

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  • DOI: https://doi.org/10.1007/978-3-030-34751-2_14

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-34750-5

  • Online ISBN: 978-3-030-34751-2

  • eBook Packages: MedicineMedicine (R0)

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