Abstract
Individuals with Turner syndrome (TS) have a wide range of comorbidities presenting at all stages of life. Because of this, there is a need for an integrated approach to the management of TS individuals’ healthcare across their life. We provide an overview of the different models available to deliver inter- or multidisciplinary care to girls and women with TS. A major part of this chapter focuses on the development of a TS resource center, a unit to provide different areas of specialty care for TS patients, including transition from pediatric to adult care. We also address the different roles healthcare providers have within a TS resource center, as well as the value of peer support systems, advocacy groups, and social networking.
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Backeljauw, P., Corathers, S. (2020). The Turner Syndrome Resource Center: An Interdisciplinary Approach to the Care of Girls and Women with Turner Syndrome. In: Fechner, P. (eds) Turner Syndrome. Springer, Cham. https://doi.org/10.1007/978-3-030-34150-3_16
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DOI: https://doi.org/10.1007/978-3-030-34150-3_16
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