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Resolving Stakeholder Tussles in Healthcare Systems: Ethical Challenges to Data Protection

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New Trends in Model and Data Engineering (MEDI 2019)

Part of the book series: Communications in Computer and Information Science ((CCIS,volume 1085))

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Abstract

For cross-border collaborative healthcare delivery, data protection legislation seems to be increasingly obstructive. In extreme cases, this may compromise the quality of care a patient receives and at the same time prevent clinicians practicing and developing their medical skills to their full potential. A dilemma develops whereby the fundamental rights of patient and clinician are constrained by the very legal instruments designed to make delivery of healthcare easier. The contention between patient and clinician expectations, or tussles, may pose a threat to future healthcare delivery. Compromising healthcare delivery in this way has wider implications for community trust. The concept of tussles in technology infrastructures suggests an actor-network approach involving the patient and clinician relationship within the context of community response to their interactions to offer an innovative perspective on the problem of tussles in healthcare. In this paper, we develop such an approach and discuss an initial validation based on cross-border healthcare scenarios illustrating the contention between fundamental ethical rights and actor-network compliance.

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Acknowledgements

The research reported in this paper was supported with funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement 727528 (the KONFIDO project) and 727301 (the SHiELD project).

Author information

Authors and Affiliations

  1. University of Southampton, Southampton, SO16 7NS, UK

    Brian Pickering

  2. Fondazione Santobono Pausilipon Onlus, Naples, Italy

    Giuliana Faiella & Fabrizio Clemente

  3. Institute of Cristallography CNR, Rome, Italy

    Fabrizio Clemente

Authors
  1. Brian Pickering
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  2. Giuliana Faiella
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  3. Fabrizio Clemente
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Corresponding author

Correspondence to Brian Pickering .

Editor information

Editors and Affiliations

  1. University of Nantes, Nantes, France

    Christian Attiogbé

  2. Software Competence Center Hagenberg, Hagenberg, Austria

    Flavio Ferrarotti

  3. University of Bordeaux, Bordeaux, France

    Sofian Maabout

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Pickering, B., Faiella, G., Clemente, F. (2019). Resolving Stakeholder Tussles in Healthcare Systems: Ethical Challenges to Data Protection. In: Attiogbé, C., Ferrarotti, F., Maabout, S. (eds) New Trends in Model and Data Engineering. MEDI 2019. Communications in Computer and Information Science, vol 1085. Springer, Cham. https://doi.org/10.1007/978-3-030-32213-7_15

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  • DOI: https://doi.org/10.1007/978-3-030-32213-7_15

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-32212-0

  • Online ISBN: 978-3-030-32213-7

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