Abstract
This chapter explains the knowledge we gained from our Community-Based Participatory Research process while offering both recommendations and additional considerations for future research. Most importantly, we provide suggestions for how to more fully engage in the research process and outline where our work and the work of others can fall short. Finally, we explain how our process might offer readers insight into their own research methods and how they might impact co-researchers and participants and thereby the knowledge they co-create and their impact on marginalized communities.
How are ethical considerations guiding everything about your research project? Are your research questions ethical? Is your research relevant enough to community interests to justify asking them to spend their limited time and energy helping you?
~Research 101: A Manifesto for Ethical Research in the Downtown Eastside, (2019, p. 8).
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Notes
- 1.
I place the word addiction in quotations to draw attention to its use as a medical diagnosis or disease which can create stigma. See Hammer et al. (2014) for more information on this topic.
- 2.
Founded in 2008, CxCRRB has been funded by the National Institutes of Health, the National Institute for Child Health and Human Development, and a PCORI Eugene Washington Engagement Award (Bronx Community Research Review Board, n.d.).
- 3.
I believe it is possible to engage in CBPR projects on a smaller scale—and many expert researchers engage in CBPR ethically and effectively. We revised our project and broadened its scope because I wanted to create a CBPR project from the ground up—which necessarily extended the timeline, the hours we spent, and the process itself. That decision, in and of itself, impacted our process and our findings. Our book explains the promise and pitfalls we encountered because we began with a focus that was solely determined by those most effected by incarceration.
References
Boilevin, L., Chapman, J., Deane, L., Doerksen, C., Fresz, G., Joe, D.J., … & Winter, P. (2019). Research 101: A manifesto for ethical research in the Downtown Eastside. Updated 1 May 2019. Retrieved from https://docs.google.com/document/d/1M2D6_XAVNI78UjxKJpsmBn2N1ORIb9t7uJ6A7y9P3no/edit. Accessed May 22, 2019.
Bronx Community Research Review Board. (n.d.). History. Bronx Community Research Review Board. Retrieved from http://bxcrrb.org/who-we-are/history/. Accessed May 25, 2019.
Lebovitch, A., & Ferris, S. (25 January 2018). “Combating systemic stigma: The displacement and dis-empowerment of sex workers in academic research.” The Whore and The Feminist: The Whore and the Feminist Blog. Retrieved from http://whoreandfeminist.ca/combating-systemic-stigma-the-displacement-and-dis-empowerment-of-sex-workers-in-academic-research/. Accessed May 22, 2019.
McCracken, J. (2013). Street sex workers’ discourse: Realizing material change through agential choice. Routledge Research in Gender and Society.
McCracken, J. (2019). “When Institutional Review Boards Impede Community-Based Participatory Research: Recommendations for an Increasingly Ethical and Inclusive Research Process.” Manuscript submitted for publication.
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McCracken, J. (2019). Concluding and Continuing the Work: Lessons Learned and Future Research. In: Learning with Women in Jail. SpringerBriefs in Anthropology(). Springer, Cham. https://doi.org/10.1007/978-3-030-27690-4_4
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