Abstract
This chapter will focus on the factors that contribute to the health inequities of a unique, liminal community, namely the Deaf community. Defined as a minority community, both by language and by culture, members of this community experience health inequities differently from other minority communities. Research indicates that Deaf people find it more difficult to establish relationships with health and allied professionals, and to access mental health services because of discrimination, lack of understanding, and practical obstacles experienced within the health system. It is further reported that 80–90% of Deaf and hard of hearing people with severe and persistent mental illness are not accessing mental health services. The literature suggests a higher prevalence of mental health problems for those who are culturally Deaf than in the general population. The most common factor preventing access to services, including assessment, intervention, and follow-up, as well as to mental health prevention materials is inadequate communication. This chapter will explore how a unique form of oppression that relates to the oppression by hearing people of those who are deaf (i.e., audism, the notion that one is superior based on one’s ability to hear or behave in the manner of one who hears), results in health and mental health care disparities. The chapter will conclude with a discussion on recommended practices to facilitate effective engagement with members of this minority culture.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Austen, S. (2006). A snap-shot of deafness and mental health. Deaf Worlds, 22(2), S85–S90.
Barnett, S. (2002). Cross-cultural communication with patients who use American Sign Language. Family Medicine, 34(5), 376–382.
Barnett, S., Klein, J. D., Pollard, R. Q., Samar, V., Schlehofer, D., Starr, M., … Pearson, T. A. (2011). Community participatory research with deaf sign language users to identify health inequities. American Journal of Public Health, 101(12), 2235–2238. https://doi.org/10.2105/AJPH.2011.300247
Barnett, S., McKee, M., Smith, S. R., & Pearson, T. A. (2011). Deaf Sign Language users, health inequities, and public health: Opportunity for social justice. Preventing Chronic Disease, 8(2), 1–6.
Bauman, H.-D. L. (2004). Audism: Exploring the metaphysics of oppression. Journal of Deaf Studies and Deaf Education, 9(2), 239–246.
Beate, O., Mette Perly, U., Von Telzchner, S., & Falkum, E. (2015). Traumatization in deaf and hard-of-hearing adult psychiatric outpatients. Journal of Deaf Studies and Deaf Education, 20(3), 296–308.
Black, P., & Glickman, N. (2006). Demographics, psychiatric diagnoses, and other characteristics of North American deaf and hard-of-hearing inpatients. Journal of Deaf Studies Deaf Education, 11, 303–321.
Bone, T. A. (2013). Coping with mental illness: Using case study research to explore deaf depression narratives (Unpublished doctoral dissertation). University of Manitoba, Winnipeg, Manitoba, Canada.
Bone, T. A. (2018). No one is listening; members of the deaf community share their depression narratives. Social Work in Mental Health. e-link https://www.tandfonline.com/eprint/9IPMmBXHTBuKurIKwkAd/full
Brunson, J. G., & Lawrence, P. S. (2002). Impact of Sign Language Interpreter and therapist moods on deaf recipient mood. Professional Psychology: Research and Practice, 33(6), 576–580.
Cabral, L., Muhr, K., & Savageau, J. (2013). Perspectives of people who are deaf and hard of hearing on mental health, recovery, and peer support. Community Mental Health Journal, 49, 649–657.
Canadian Association of the Deaf. (2015). Issues-positions: Language. Retrieved from http://cad.ca/issues-positions/language/
Canadian Association of the Deaf. (2015a). Issues and position papers - terminology. Retrieved from http://cad.ca/resources-links/terminology/
Canadian Association of the Deaf. (2015b). Issues and position papers - statistics. Retrieved from http://cad.ca/issues-positions/statistics-on-deaf-canadians/
Canadian Association of the Deaf. (2015c). Issues and position papers - interpreting. Retrieved from http://cad.ca/issues-positions/interpreting/
Canadian Association of the Deaf. (2015d). Issues and position papers - language. Retrieved from http://cad.ca/issues-positions/language/
Canadian Hearing Society (CHS). (2018). About deaf interpreting. Retrieved from http://www.chs.ca/about-deaf-interpreting
Canadian Radio-Television and Telecommunications Commission (CRTC). (2014). Telecom Regulatory Policy CRTC 2104-187. Retrieved from https://crtc.gc.ca/eng/archive/2014/2014-187.htm
Canadian Radio-Television and Telecommunications Commission (CRTC). (2015). TV access for people who are deaf or hard-of-hearing: Closed captioning. Retrieved from https://crtc.gc.ca/eng/info_sht/b321.htm
Cornes, A., & Napier, J. (2005). Challenges of mental health interpreting when working with deaf patients. Australasian Psychiatry, 13(4), 403–407.
Critchfield, A. B. (2002). Meeting the mental health needs of persons who are deaf. National Association of State Mental Health Program Directors and the National Technical Assistance Center for State Mental Health Planning. National Association of State Mental Health Program Directors, Alabama. Retrieved from https://mh.alabama.gov/wp-content/uploads/2019/01/ODS_MeetingTheMentalHealthNeedsOfPersonsWhoAreDeaf.pdf.
De Graaf, R., & Bijl, R. V. (2002). Determinants of mental distress in adults with a severe auditory impairment: Differences between prelingual and postlingual deafness. Psychosomatic Medicine, 64(1), 61–70.
Deaf Culture Center. (2013). Deaf culture and community. Retrieved from https://www.chs.ca/deaf-culture-and-community
Eckert, R. C., & Rowley, A. J. (2013). Audism: A theory and practice of audiocentric privilege. Humanity & Society, 37(2), 101–130.
Fellinger, J., Holzinger, D., & Pollard, R. (2012). Mental health of deaf people. The Lancet, 379(9820), 1037–1044.
Fellinger, J., Holzinger, D., Sattel, H., Laucht, M., & Goldberg, D. (2009). Correlates of mental health disorders among children with hearing impairments. Developmental Medicine and Child Neurology, 51, 635–641.
Fenlon, J., & Wilkinson, E. (2015). Sign languages in the world. In A. Schembri & C. Lucas (Eds.), Sociolinguistics and deaf communities. Cambridge, UK: Cambridge University Press.
Gallaudet University. (2018, January 16). Sign languages of the world by name. Gallaudet University Library. Retrieved from http://libguides.gallaudet.edu/c.php?g=773913&p=5552784
Glickman, N., & Pollard, R. (2013). Deaf mental health research; Where we’ve been and where we hope to go. In N. S. Glickman (Ed.), Deaf mental health care (pp. 358–383). New York, NY: Routledge.
Hamerdinger, S., Schafer, K., & Haupt, M. B. (2016). Promising and emerging approaches and innovations for crisis intervention for people who are deaf, hard of hearing, and DeafBlind. National Association of State Mental health Program Directors. Assessment 8. Alexandria, Virginia. Retrieved from https://www.nasmhpd.org/sites/default/files/Assessment%208_Innovations%20for%20Crisis%20Service%20Intervention%20for%20Deaf%20and%20HOH.pdf.
Hill, L. D., & Nelson, P. (2000). Communication is the key: Review of deaf mental health services in British Columbia. Prepared for the Inter-Ministry Jericho Coordinating Committee [Ministry for Children and Families, Ministry of Health, Ministry of Attorney General, Ministry of Education]. Retrieved from http://www.mcf.gov.bc.ca/mental_health/pdf/deaf_mental_health.pdf
Humphries, T. (1977). Communicating across cultures (deaf/hearing) and language learning (Doctoral dissertation). Union Graduate School, Cincinnatti, OH.
Iezzoni, L. I., O’Day, B. L., Killeen, M., & Harker, H. (2004). Communicating about health care: Observations from people who are deaf or hard of hearing. Annals of Internal Medicine, 140, 356–362.
Kuenburg, A., Fellinger, P., & Fellinger, J. (2016). Health care access among deaf people. Journal of Deaf Studies and Deaf Education, 21(1), 1–10.
Kvam, M. H., Loeb, M., & Tambs, K. (2007). Mental health in deaf adults: Symptoms of anxiety and depression among hearing and deaf individuals. Journal of Deaf Studies and Deaf Education, 12, 1–7. https://doi.org/10.1093/deafed/enl015
Ladd, P. (2003). Understanding deaf culture: In search of Deafhood. Clevedon, England: Multilingual Matters Ltd.
Landsberger, S. A., & Diaz, D. R. (2010). Inpatient psychiatric treatment of deaf adults: Demographic and diagnostic comparisons with hearing inpatients. Psychiatric Services, 61(2), 196–199.
Leigh, I. W., Corbett, C. A., Gutman, V., & Morere, D. A. (1996). Providing psychological services to deaf individuals: A response to new perceptions of diversity. Professional Psychology: Research and Practice, 27(4), 364–371.
Lewis, P. M., Simons, G. F., and Fennig, C. D. (2013) Ethnologue: Languages of the World. Retrieved from www.ethnologue.com
Lowrie, M., & Kerridge, G. (2015). Let’s talk about…Mental Health and deaf people Conference Report. DeafVictoria. Retrieved from http://thesignsoflife.com.au/wp-content/uploads/2016/04/Deaf-Mental-Health-report-ONLINE.pdf
McDonnall, M. C., Crudden, A., LeJeune, B. J., & Stevenson, A. C. (2017). Availability of mental health services for individuals who are deaf or deaf-blind. Journal of Social Work in Disability & Rehabilitation, 16(1), 1–13. https://doi.org/10.1080/1536710X.2017.1260515
McKee, M. M., Paasche-Orlow, M. K., Winters, P. C., Fiscella, K., Zazove, P., Sen, A., & Pearson, T. (2015). Assessing health literacy in Deaf American Sign Language users. Journal of Health in the Community, 20(Suppl 2), 92–100. https://doi.org/10.1080/10810730.2015.1066468
McKee, M. M., Barnett, S. L., Block, R. C., & Pearson, T. A. (2011). Impact of communication on preventative services among deaf American Sign Language users. American Journal of Preventative Medicine, 41(1), 75–79.
Mathos, K., Lokar, F., & Post, E. (2011). Gathering perceptions about current mental health services and collecting ideas for improved service delivery for persons who are deaf, DeafBlind and hard of hearing. JADARA, 44(3), 134–152.
Metro South Health. (2016). Metro south addiction and mental health services, Guidelines for working with people who are Deaf or hard of hearing. V3. Retrieved from https://metrosouth.health.qld.gov.au/sites/default/files/content/deafness_and_mental_health_guidelines.pdf
Michigan Works. (2011, August 20). Common Workplace Accommodations. Retrieved from https://www.youtube.com/watch?v=Pc4_o0Qqizg
Mitchell, R. E., & Karmer, M. A. (2004). Chasing the mythical ten percent: Parental hearing status of deaf and hard of hearing students in the United States. Sign Language Studies, 4(2), 138–163.
Munoz-Baell, I., & Ruiz, M. T. (2000). Empowering the deaf. Let the deaf be deaf. Journal of Epidemiological Community Health, 54(1), 40–44. https://doi.org/10.1136/jech.54.1.40
Napier, J. (2004). Interpreting omissions: A new perspective. Journal of Research and Practice in Interpreting, 6(2), 117–142.
National Institute on Deafness and other Communication Disorders (NIDCD). (2017a). American Sign Language. Retrieved from https://www.nidcd.nih.gov/health/american-sign-language
National Institute on Deafness and other Communication Disorders (NIDCD). (2017b). Telecommunications Relay Services. Retrieved from https://www.nidcd.nih.gov/health/telecomm
Perlmutter, D. M. (n.d.). What is Sign language? Linguistic Society of America. Retrieved from https://www.linguisticsociety.org/sites/default/files/Sign_Language.pdf
Pisoni, D. B., Conway, C. M., Kronenberger, W., Horn, D. L., Karpicke, J., & Henning, S. (2007). Research on spoken language processing. Progress report no. 28. Efficacy and effectiveness of Cochlear implants in deaf children. Indiana University. Retrieved from https://www.researchgate.net/publication/237697450_Efficacy_and_Effectiveness_of_Cochlear_Implants_in_Deaf_Children_1
Polat, F. (2003). Factors affecting psychological adjustment of deaf students. Journal of Deaf Studies and Deaf Education, 8(3), 137–144.
Queensland Health. (2008). Deafness and Mental Health: Guidelines for working with people who are Deaf or hard of hearing. Retrieved from http://www.health.qld.gov.au/metrosouthmentalhealth/deafness/docs/dmh-guidelines-1.pdf
Smith, M. K. (2000, Fall). Recovery from a severe psychiatric disability: Findings of a qualitative study. Rehabilitation Journal, 24(2), 149–159.
Statistics Canada. (2016). Census of population, statistics Canada catalogue no. 98-400-X2016345. Languages Spoken at Home (263). Retrieved from https://www12.statcan.gc.ca/census-recensement/2016/dp-pd/dt-td/Rp-eng.cfm?LANG=E&APATH=3&DETAIL=0&DIM=0&FL=A&FREE=0&GC=0&GID=0&GK=0&GRP=0&PID=110212&PRID=10&PTYPE=109445&S=0&SHOWALL=0&SUB=0&Temporal=2016THEME=118&VID=0&VNAMEE=&VNAMEF=Date modified 2018-01-16
Tate, C. M. (2008, July). Report on the 2008 Deaf expert meeting and A framework for action: Shaping a world where deaf and hard of hearing people are respected, self-determining, and living well. Bringing mental health care for Deaf and hard of hearing populations into the 21st century. Retrieved from http://www.nasmhpd.org/docs/NCMHDI/Expert_meeting_report_2008.pdf
United Nations Convention on the Rights of Persons with Disabilities (CRPD). (2006, December 13). Retrieved from https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-25-health.html
Vancouver Coastal Health. (2019). Deaf, hard of hearing & deaf blind well-being program. Retrieved from http://deafwellbeing.vch.ca/
Vernon, M., & Leigh, I. W. (2007). Mental health services for people who are deaf. American Annals of the Deaf, 152(4), 374–381.
Walsh, J. (2013). The recovery philosophy and direct social work practice. Chicago, IL: Lyceum Books.
Wilson, J. A. B., & Schild, S. (2014). Provision of mental health care services to deaf individuals using telehealth. Professional Psychology: Research and Practice, 45(5), 324–331.
Woodcock, K., & Pole, J. D. (2007). Health profile of Deaf Canadians: Analysis of the Canadian Community Health Survey. Canadian Family Physician, 53(12), 2140–2141. Retrieved from http://www.cfp.ca/content/53/12.toc
World Federation of the Deaf. (2016). Campaign key messages; deaf identity. Retrieved from https://wfdeaf.org/iwd2017-full-inclusion-with-sign-language/
World Health Organization. (2018, March 15). Fact sheet: Deafness and hearing loss. Retrieved from http://www.who.int/news-room/fact-sheets/detail/deafness-and-hearing-loss
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Appendices
Resources to Facilitate Successful Engagement with Deaf Service Users
Pre and Post Assessment Meeting with Interpreter
Checklist
When conducting any type of assessment with an interpreter, complete the following checklist.
Pre-session
Item | Check |
---|---|
The interpreter has explained his or her role. | |
I have explained the overarching purpose of the session to the interpreter. | |
I have explained the key principles and concepts of the meeting, treatment, or therapy to the interpreter. | |
I have shared the relevant facts of the client’s case for the purpose of accurate interpretation. | |
I have provided the interpreter with a copy of any assessment item(s) I plan to use. | |
The interpreter has highlighted areas of the assessment that they foresee may have linguistic or cultural difficulty. | |
I have provided an opportunity for the interpreter to calibrate to the language that I will use in the assessment or treatment. Calibrating refers to the process of adjusting to the language level, patterns, and idiosyncrasies of each individual in the communication exchange. Calibrating is an important part of maintaining the integrity of the meaning intended in each communication exchange |
Post-session
Item | Check |
---|---|
I clarified with the interpreter any linguistic or cultural concerns that were raised in the meeting or session. | |
I asked the interpreter if they had any difficulties in translation or have any culturally relevant information that may influence my assessment. | |
If the Deaf person and staff person myself are satisfied with the interpretation, I inquired whether it is possible to book the interpreter for regular appointments. |
Metro South Health, Queensland, Australia (2016, p. 60). Adapted and used with permission
Service Accessibility Considerations
Checklist
To improve the accessibility for Deaf people, complete the checklist.
Item | Check |
---|---|
Have I accommodated the communication needs of the Deaf person? | |
Have I ensured relevant staff knows how to book and engage an ASL English interpreter? | |
Do I, and all necessary staff, understand the role of a Deaf interpreter (DI)? If requested, do I know where and how to book a Deaf interpreter (DI)? | |
Have I planned for sufficient time to accommodate the purpose of the meeting (often two to three times the length of time without an interpreter)? Depending on the length of the meeting, have I confirmed with the interpreter service whether I will require more than one interpreter? | |
Does the setting have sufficient lighting to accommodate visual language users? | |
Does the setting have sufficient space to accommodate a Deaf interpreter (if requested), and ASL English interpreter in addition to the Deaf consumer and staff person(s)? | |
Does the institution have access to the necessary technology to facilitate communication between the Deaf offender and community supports in a way hearing offenders have access to telephone? This may include video conferencing, or video relay services for interpretation purposes. | |
If the institution has appropriate communication technology, is it in good working condition? Do all necessary staff know how to use the technology and facilitate access for the Deaf offender? |
Metro South Health (2016). Metro South Addiction and Mental Health Services: Guidelines for working with people who are Deaf or hard of hearing, v. 3. (p. 61). Adapted and used with permission
Educational videos for working with Deaf ASL first-language users individuals
Deaf People in Medical Setting [Video file]. (2016). Retrieved from https://www.youtube.com/watch?v=NpyvD6_uzZ0 Time: 2:26
The Holley Institute: In-Service Training for Deaf Patients [Video File]. (2017). Retrieved from https://www.youtube.com/watch?v=hzzSZYbsRyM Time: 7:17
UC San Diego Health [Video File] (2015). Improving Health Communications with Deaf Patients. Retrieved from https://www.youtube.com/watch?v=Cr0I41ZCb2o Time: 4:46
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Bone, T.A. (2019). Deaf Mental Health: Enhancing Linguistically and Culturally Appropriate Clinical Practice. In: Zangeneh, M., Al-Krenawi, A. (eds) Culture, Diversity and Mental Health - Enhancing Clinical Practice. Advances in Mental Health and Addiction. Springer, Cham. https://doi.org/10.1007/978-3-030-26437-6_4
Download citation
DOI: https://doi.org/10.1007/978-3-030-26437-6_4
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-26435-2
Online ISBN: 978-3-030-26437-6
eBook Packages: Behavioral Science and PsychologyBehavioral Science and Psychology (R0)