Consideration for Special Settings and Situations
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Patient and family engagement is essential across the entire continuum of care. There are some settings or conditions in which the need for engagement is critical. Almost by definition, it should be clear that one size will never fit all and that the individual needs of patients and families must be considered in all settings. Several of the chapters in this text reference general consideration in patient and family engagement. This chapter focuses on patient and family engagement in selected circumstances such as patients with multiple chronic conditions, residents in long-term care, people with end-stage renal disease, and patients with cancer or Alzheimer’s disease.
KeywordsPatient-centered care multiple chronic conditions Chronic conditions Patient-centered care in intensive care Patient-centered care in long-term care Patient-centered care in end-stage renal disease
- AHRQ Safety Program for End-Stage Renal Disease Facilities—Toolkit. Rockville, MD: Agency for Healthcare Research and Quality; 2015. https://www.ahrq.gov/professionals/quality-patient-safety/patient-safety-resources/resources/esrd/index.html.
- Centers for Disease Control and Prevention. Dialysis safety. 2017. https://www.cdc.gov/dialysis/index.html. Accessed 13 June 2019.
- Centers for Medicare & Medicaid Services. Resident and family engagement in nursing home quality. n.d.. https://www.cms.gov/Medicare/Provider-Enrollment-and-Certification/QAPI/Downloads/QAPI-Consumer-Factsheet.pdf. Accessed 12 June 2019.
- End Stage Renal Disease National Coordinating Center. Patient engagement. n.d.. https://www.esrdncc.org/en/. Accessed 13 June 2019.
- National Institute of Diabetes and Digestive and Kidney Disease. Kidney disease statistics for the United States. 2019. https://www.niddk.nih.gov/health-information/health-statistics/kidney-disease. Accessed 13 June 2019.
- U.S. Department of Health and Human Services. Multiple chronic conditions: a framework for education and training. Washington, DC. 2015. https://www.hhs.gov/ash/about-ash/multiple-chronic-conditions/education-and-training/curriculum/module-1-person-and-family-centered-care/index.html. Accessed 12 June 2019.