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Using a Modelling Language to Describe the Quality of Life Goals of People Living with Dementia

  • James Lockerbie
  • Neil MaidenEmail author
Conference paper
Part of the Lecture Notes in Computer Science book series (LNCS, volume 11483)

Abstract

Although now well established, our information systems engineering theories and methods are applied only rarely in disciplines beyond systems development. This paper reports the application of the i* goal modelling language to describe the types of and relationships between quality of life goals of people living with dementia. Published social care frameworks to manage and improve the lives of people with dementia were reviewed to synthesize, for the first time, a comprehensive conceptual model of the types of goals of people living with dementia. Although the quality of life goal model was developed in order to construct automated reasoning capabilities in a new digital toolset that people with dementia can use for life planning, the multi-stage modelling exercise provided valuable insights into quality of life and dementia care practices of both researchers and experienced practitioners in the field.

Keywords

Dementia Quality of life Interactive toolset Goal modeling 

Notes

Acknowledgements

This work is supported by the EPSRC-funded SCAMPI project Grant EP/P010024/1.

References

  1. 1.
    Bhattacharya, K., Gerede, C., Hull, R., Liu, R., Su, J.: Towards formal analysis of artifact-centric business process models. In: Alonso, G., Dadam, P., Rosemann, M. (eds.) Business Process Management, LNCS, vol. 4714, pp. 288–304. Springer, Heidelberg (2007).  https://doi.org/10.1007/978-3-319-45348-4CrossRefGoogle Scholar
  2. 2.
    Bowers, H., Bailey, G., Sanderson, H., Easterbrook, L., Macadam, A.: Person Centred Thinking with Older People: Practicalities and Possibilities. HSA Press, Stockport (2007)Google Scholar
  3. 3.
    Cahill, S., Macijauskiene, J., Nygard, A., Kaulkner, J., Hagen, I.: Technology in dementia care. Technol. Disabil. 19(2/3), 53–54 (2007)Google Scholar
  4. 4.
    Chen, L., Babar, M.A.: A systematic review of evaluation of variability management approaches in software product lines. Inf. Softw. Technol. 53(4), 344–362 (2011)CrossRefGoogle Scholar
  5. 5.
    Chiasera, A., Creazzi, E., Brandi, M., Baldessarini, I., Vispi, C.: Continuous improvement, business intelligence and user experience for health care quality. In: Krogstie, J., Reijers, Hajo A. (eds.) CAiSE 2018. LNCS, vol. 10816, pp. 505–519. Springer, Cham (2018).  https://doi.org/10.1007/978-3-319-91563-0_31CrossRefGoogle Scholar
  6. 6.
    Cook, A., Miller, E.: Talking Points Personal Outcomes Approach: Practical Guide. JIT, Edinburgh (2012)Google Scholar
  7. 7.
    Cowans, G., Campbell, J., Alm, N., Dye, R., Astell, A., Ellis, M.: Designing a multimedia conversation aid for reminiscence therapy in dementia care environments. In: Proceedings CHI 2004 Extended Abstracts, pp. 825–836. ACM Press (2004)Google Scholar
  8. 8.
    Han, A., Radel, J., McDowd, J., Sabata, D.: Perspectives of people with dementia about meaningful activities: a synthesis. Am. J. Alzheimer’s Dis. Other Dementias 31(2), 115–123 (2016)CrossRefGoogle Scholar
  9. 9.
    Harmer, B., Orrell, M.: What is meaningful activity for people with dementia living in care homes? a comparison of the views of older people with dementia, staff and family carers. Aging Ment. Health 12(5), 548–558 (2018)CrossRefGoogle Scholar
  10. 10.
    Hodge, J., Balaam, M., Hastings, S., Morrissey, K.: Exploring the design of tailored virtual reality experiences for people with dementia. In: Proceedings CHI2018 Conference, Paper No. 514. ACM Press (2018)Google Scholar
  11. 11.
    Jordan, P.: The Good Society Framework. http://www.patrickwjordan.com/15/business-psychology-models. Accessed on 23 Nov 2018
  12. 12.
    Karakostas, A., ILazarou, I., Meditskos, G., Stavropoulos, T., Kompatsiaris, I., Tsolaki, M.: Sensor-based in-home monitoring of people with dementia using remote web technologies. In: Proceedings of International Conference on Interactive Mobile Communication Technologies and Learning (IMCL), Thessaloniki, 2015, pp. 353–357 (2005)Google Scholar
  13. 13.
    Lawton, M.: Quality of life in Alzheimer Disease. Alzheimer Dis. Assoc. Disord. 8(3), 138–150 (1994)CrossRefGoogle Scholar
  14. 14.
    Lazar, A., Edasis, C., Hazelrig, A.: Supporting people with dementia in digital social sharing. In: Proceedings CHI2017 Conference, pp. 2149–2162. ACM Press (2017)Google Scholar
  15. 15.
    Lockerbie, J., Bush, D., Maiden, N.A.M., Blom, H., Everdij, M.: Using i* modelling as a bridge between air traffic management operational concepts and agent-based simulation analysis. In: Proceedings 18th IEEE International Requirements Engineering Conference, pp. 351–356. IEEE Computer Society Press (2010)Google Scholar
  16. 16.
    Lockerbie, J., Maiden, N.A.M., Engmann, J., Randall, D., Jones, S., Bush, D.: Exploring the impact of software requirements on system-wide goals: a method using satisfaction arguments and i* goal modelling. Requirements Eng. J. 17(3), 227–254 (2012)CrossRefGoogle Scholar
  17. 17.
    Munteanu, C., et al.: Classification of mild cognitive impairment and Alzheimer’s Disease with machine-learning techniques using H magnetic resonance spectroscopy data. Expert Syst. Appl. 42(15–16), 6205–6214 (2015)CrossRefGoogle Scholar
  18. 18.
    Palacios-Ceña, D., Gómez-Calero, C., Cachón-Pérez, J.M., Velarde-García, J.F., Martínez-Piedrola, R., Pérez-De-Heredia, M.: Is the experience of meaningful activities understood in nursing homes? a qualitative study. Geriat. Nurs. 37(2), 110–115 (2015)CrossRefGoogle Scholar
  19. 19.
    Nolan, M., Brown, J., Davies, S., Nolan, J., Keady, J.: The senses framework: improving care for older people through a relationship-centred approach. Getting Research into Practice (GRiP) Report No 2. Sheffield Hallam University (2006)Google Scholar
  20. 20.
    Prince, M., Wimo, A., Guerchet, M., Ali, G., Wu, Y., Prina, M.: World Alzheimer Report 2015, The Global Impact of Dementia: An Analysis of Prevalence, Incidence, Cost and Trends. Alzheimer’s Disease International, London (2015)Google Scholar
  21. 21.
    Ready, R., Ott, B.: Quality of Life measures for dementia. Health Qual. Life Outcomes 1, 11 (2003)CrossRefGoogle Scholar
  22. 22.
    Riepe, M., et al.: Quality of life as an outcome in Alzheimer’s Disease and other dementias - obstacles and goals. BMC Neurol. 9, 47 (2009)CrossRefGoogle Scholar
  23. 23.
    Sutcliffe, A., et al.: Known and unknown requirements in healthcare. Requirements Eng. J., pp. 1–20 (2018).  https://doi.org/10.1007/s00766-018-0301-6
  24. 24.
    Thiry, E., Lindley, S., Banks, R., Regan, T.: Authoring personal histories: exploring the timeline as a framework for meaning making. In: Proceedings CHI 2013 Conference, pp. 1619–1628. ACM Press (2013)Google Scholar
  25. 25.
    Vaarama, M.: Care-related quality of life in old age. Eur. J. Ageing 6(2), 113–125 (2009)CrossRefGoogle Scholar
  26. 26.
    Veeramuthu, A., Meenakshi, S., Manjusha, P.: A New approach for Alzheimer’s Disease diagnosis by using association rule over PET images. Int J. Comput. Appl. (0975 – 8887) 91(9), 9–14 (2014)Google Scholar
  27. 27.
    Wallace, J., Thieme, A., Wood, G., Schofield, G., Oliver, P.: Enabling self, intimacy and a sense of home in dementia: an enquiry into design in a hospital setting. In: Proceedings CHI 2012 Conference, pp. 2629–2638. ACM Press (2012)Google Scholar
  28. 28.
    Wilhelmsen, K., Andersson, C., Waern, M., Allebeck, P.: Elderly people’s perspectives on quality of life. Ageing Soc. 25(4), 585–600 (2005)CrossRefGoogle Scholar
  29. 29.
    Woods, B., Spector, A., Jones, C., Orrell, M., Davies, S.: Reminiscence therapy for dementia. Cochrane Database Syst. Rev. 18(2), CD001120 (2005)Google Scholar
  30. 30.
    World Health Organization, Constitution of WHO: Principles. http://www.who.int/about/mission/en/. Accessed 23 Aug 2018
  31. 31.
    Yu, E., Giorgini, P., Maiden, N., Mylopoulos, M.: Social Modeling for Requirements Engineering. MIT Press, Cambridge (2010)CrossRefGoogle Scholar
  32. 32.
    Ainsworth, B., et al.: 2011 Compendium of physical activities: a second update of codes and MET values. Med. Sci. Sports Exerc. 43(8), 1575–1581 (2011)CrossRefGoogle Scholar
  33. 33.

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Centre for Creativity in Professional Practice, Cass Business SchoolLondonUK

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