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Humanising Silence: The Representation of HIV & AIDS in South African Narratives

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Part of the book series: International Handbooks of Quality-of-Life ((IHQL))

Abstract

This chapter focuses on an analysis of HIV & AIDS and its representation in South African autobiographical narratives produced in the post-apartheid context. The chapter will zoom in on a selection of texts (largely memoirs, journals and general life writing) that provide perspectives on representations of living with and through the HI virus and AIDS to show resistances to silence and denial. The chapter centres on a descriptive reading of selected texts as representations of a social world in the way authors engage disclosure, sexuality, and identity in relation to how these narratives bear witness to the complexities of disease and its’ modalities.

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Notes

  1. 1.

    There is a growing body of writing in the African context. This chapter does not provide a comprehensive representation of the texts but references these in abbreviation in this note. See for example, Attree (2010), Coovadia (2009), Dow and Essex (2011), Greene (2005), Koch (2002), Moele (2009), Morgan and the Bambanani Women’s Group (2003), Mpe (2001), Nolen (2008), Odhiambo (2017), and Steinberg (2008)

  2. 2.

    It should be noted that the Zuma presidency was riddled, beyond the accusations of corruption related to state entities and resources, by much controversy, in part related to HIV and AIDS. In the preceding 2 years leading to his appointment as president of the African National Congress, he was charged with rape in the Johannesburg High Court on 6 December 2005. On 8 May 2006, the Court dismissed the charges, agreeing that the sexual act in question was consensual. During the rape trial in 2006 Zuma told the court during cross-examination (he was accused of raping Fezekile Ntsukela Kuzwayo (known in court proceedings ‘Khwezi’), an HIV positive woman that he showered rather than worn a condom to ward off the risk of HIV. The statement revealed that Zuma had been taking regular HIV tests, and for him showering entailed a form of hygiene, keeping clean that held the prospect of risk reduction which goes against the grain of scientific evidence. Inspite of his views Zuma supported disclosure and launched several scaled-up counselling and testing campaigns to stem the spread of the epidemic during his presidency. See also Motsei (2007), Reddy and Potgieter (2006), and Suttner (2009).

References

  • Aggleton, P. (1989). AIDS: Social representations, social practices. Lewes, UK: Falmer Press.

    Google Scholar 

  • Anderson, R. E. (2014). Human suffering and quality of life: Conceptualizing stories and statistics. New York, NY/London, UK: Springer.

    Google Scholar 

  • Anthony, L. (2005). Force of the truth. Sunday Times Lifestyle, 1 May 17.

    Google Scholar 

  • Attree, L. (Ed.). (2010). Blood on the page: Interviews with African authors writing about HIV/AIDS. Newcastle-upon-Tyne, UK: Cambridge Scholars Press.

    Google Scholar 

  • Brand, A. (2005). Positively alive, by Alan Brand. Johannesburg, South Africa: Jacana Media.

    Google Scholar 

  • Brand, A. (2016). Alan Brand – living a life that is “positively Alive”. https://www.cipla.co.za/medi-hub/cipla-people/alan-brand-living-life-positively-alive/. Accessed 4 Apr 2018.

  • Brody, H. (2003). Stories of sickness (2nd ed.). Oxford, UK: Oxford University Press.

    Google Scholar 

  • Brophy, S. (2004). Witnessing AIDS: Writing, testimony, and the work of mourning. Toronto, Canada: University of Toronto Press.

    Google Scholar 

  • Broughton, T. L. (Ed.). (2006). Autobiography: Critical concepts in literary and cultural studies (Vol. 4). London, UK: Routledge. 2006.

    Google Scholar 

  • Bruss, E. (1976). Autobiographical acts: The changing situation of a literary genre. Baltimore, MD: John Hopkins University Press.

    Google Scholar 

  • Busakwe, X. (2004). Suffering in silence. Durban, South Africa: New Generation Publishers.

    Google Scholar 

  • Butler, J. (1997). The psychic life of power: Theories in subjection. Stanford, CA: Stanford University Press.

    Google Scholar 

  • Cáceres, C. (2000). The production of knowledge on sexuality in the AIDS era: Some issues, opportunities, and challenges. In R. Parker, R. M. Barbosa, & P. Aggleton (Eds.), Framing the sexual subject: The politics of gender, sexuality and power. Berkeley, CA/Los Angeles, CA: University of California Press.

    Google Scholar 

  • Cameron, E. (2005). Witness to AIDS. New York, NY: Palgrave Macmillan.

    Google Scholar 

  • Cameron, E. (2007). Normalizing testing – Normalizing AIDS. Theoria: A Journal of Social and Political Theory, 112, 99–108.

    Google Scholar 

  • Caron, D. (2001). AIDS in French culture: Social ills, literary cures. Madison, WI: The University of Wisconsin Press.

    Google Scholar 

  • Chansky, R. A., & Hipchen, E. (Eds.). (2016). The Routledge Auto|Biography Studies Reader (Routledge Literature Readers). London, UK/New York, NY: Routledge. 2016.

    Google Scholar 

  • Chigwedere, P., Seage, G. R., et al. (2008). Estimating the lost benefits of antiretroviral drug use in South Africa. Journal of Acquired Immune Deficiency Syndromes, 49(4), 410–415.

    Google Scholar 

  • Coovadia, I. (2009). High low in-between. Cape Town, South Africa: Umuzi.

    Google Scholar 

  • Crimp, D. (1988). AIDS: Cultural analysis, cultural activism. Cambridge, MA: MIT Press.

    Google Scholar 

  • Dauenhauer, B. P. (1980). Silence: The phenomenon and its ontological significance. Bloomington, IN: Indiana University Press.

    Google Scholar 

  • Department of Health. (2000). Living openly: HIV positive South Africans tell their stories. Pretoria, South Africa: Department of Health.

    Google Scholar 

  • Dilger, H., & Luig, U. (Eds.). (2010). Morality, hope and grief: Anthropologies of AIDS in Africa. New York, NY: Berghahn.

    Google Scholar 

  • Dow, U., & Essex, M. (2011). Saturday is for funerals. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Dugger, C. W. (2008). Study cites toll of AIDS policy in South Africa. The New York Times, 25 November.

  • Eakin, J. P. (1992). Touching the world: Reference in autobiography. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Easkin, J. P. (1985). Fictions in autobiography: Studies in the art of self-invention. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Egan, S. (1984). Patterns of experience in autobiography. Chapel Hill: University of North Carolina Press.

    Google Scholar 

  • Felman, S., & Laub, D. (1992). Testimony: Crises of witnessing in literature, psychoanalysis, and history. New York, NY: Routledge.

    Google Scholar 

  • Foucault, M. (1990). A history of sexuality: An introduction (R. Hurley, Trans.). Harmondsworth, UK: Penguin.

    Google Scholar 

  • Frank, A. W. (1991). At the will of the body: Reflections on illness. Boston, MA: Houghton Miffin.

    Google Scholar 

  • Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. Chicago, IL: University of Chicago Press.

    Google Scholar 

  • Geffen, N. (2010). Debunking delusions: The inside story of the treatment action campaign. Johannesburg, South Africa: Jacana.

    Google Scholar 

  • Gerhardt, U. (1989). Ideas about illness: An intellectual and political history of medical sociology. London: Macmillan.

    Google Scholar 

  • Gillman, S. (1988). Disease and representation: Images of illness from madness to AIDS. Ithaca, NY: Cornell University Press.

    Google Scholar 

  • Greene, M. F. (2005). There is no me without you: One woman’s odyssey to rescue Africa’s children. New York, NY: Bloomsbury.

    Google Scholar 

  • Herdt, G. H., & Lindenbaum, S. (1992). The time of AIDS: Social analysis, theory, and method. Newbury Park, CA: Sage.

    Google Scholar 

  • Herzlich, C., & Pierret, J. (1988). Illness and self in society (E. Forster, Trans.). Baltimore, MD: The John Hopkins University Press.

    Google Scholar 

  • Jongeneel, E. (Ed.). (1989). Over de Autobiografie. Utrecht, The Netherlands: HES uitgevers.

    Google Scholar 

  • Kalichman, S. (2009). Denying AIDS: Conspiracy theories, pseudoscience, and human tragedy. New York, NY: Copernicus Books.

    Google Scholar 

  • Kellendonk, F. (1990). Mystiek lichaam: een geschiedenis. Amsterdam, The Netherlands: Meulenhof.

    Google Scholar 

  • Kerby, A. P. (1991). Narrative and self. Bloomington, IN: Indiana University Press.

    Google Scholar 

  • Koch, B. (2002). In, around, through and out: An actor’s life. New York, NY: Spearhead Press.

    Google Scholar 

  • Kruger, S. (1996). AIDS narratives: Gender and sexuality, fiction and science. New York, NY: Garland Press.

    Google Scholar 

  • Lawson, L. (2007). Side effects: The story of AIDS in South Africa. Cape Town, South Africa: Double Storey.

    Google Scholar 

  • Levin, A. (2005). AIDSAFARI: A memoir of my journey with AIDS. Cape Town, South Africa: Zebra Press.

    Google Scholar 

  • Lupton, D. (1994). Medicine as culture: Illness, disease and the body in Western societies. London, UK: Sage.

    Google Scholar 

  • Mbali, M. (2013). South African AIDS activism and global health policies. New York, NY: Palgrave Macmillan.

    Google Scholar 

  • McGregor, L. (2005). Khabzela: The life and times of a south African. Auckland Park, South Africa: Jacarna Media.

    Google Scholar 

  • Michalos, A. C. (2017). Development of quality of life theory and it’s instruments: The selected works of Alex C. Michalos. New York, NY/London, UK: Springer.

    Google Scholar 

  • Moele, K. (2009). The book of the dead. Cape Town, South Africa: Kwela Books.

    Google Scholar 

  • Møller, V. (Ed.). (1997). Quality of life in South Africa. Dordrecht, The Netherlands: Kluwer.

    Google Scholar 

  • Møller, V. (2007). Researching quality of life in a developing country: Lessons from the South African case. In I. Gough & J. A. McGregor (Eds.), Wellbeing in developing countries: From theory to research (pp. 242–258). Cambridge, UK: Cambridge University Press.

    Google Scholar 

  • Møller, V. (2013). South African quality of life trends over three decades, 1980 – 2010. Social Indicators Research, 113(3), 915–940.

    Google Scholar 

  • Møller, V., & Dickow, H. (2002). The role of quality of life surveys in managing change in democratic transitions: The South African case. Social Indicators Research, 58(1), 267–292.

    Google Scholar 

  • Monette, P. (1988). Borrowed time: An AIDS memoir. San Diego, CA: Harcourt Brace Jovanovich.

    Google Scholar 

  • Morgan, J., & the Bambanani Women’s Group. (2003). Long life: Positive HIV stories. Cape Town, South Africa: ABC Press.

    Google Scholar 

  • Motsei, M. (2007). The kanga and the kangaroo court. Reflections on the rape trial of Jacob Zuma. Auckland Park, South Africa: Jacana.

    Google Scholar 

  • Mpe, P. (2001). Welcome to our Hillbrow. Pietermaritzburg, South Africa: University of Natal Press.

    Google Scholar 

  • Murphy, T., & Poirier, S. (Eds.). (1993). Writing AIDS: Gay literature, language, and analysis. New York, NY: Columbia University Press.

    Google Scholar 

  • Nattrass, N. (2007). Mortal combat: AIDS denialism and the struggle for Antiretrovirals in South Africa. Scottsville, VA: University of KwaZulu-Natal Press.

    Google Scholar 

  • Nattrass, N. (2008). AIDS and the scientific governance of medicine in post-apartheid South Africa. African Affairs, 107(427), 157–176.

    Google Scholar 

  • Ndbele, N. (2004). Preface. In N. Rasebotsa, M. Samuelson, & K. Thomas (Eds.), Nobody ever said AIDS. Cape Town, South Africa: Kwela Books.

    Google Scholar 

  • Nolen, S. (2008). Stories of AIDS in Africa. New York, NY: Walker.

    Google Scholar 

  • O’Leary, P. (2002). Gnostic contagion: Robert Duncan and the poetry of illness. Middletown, CT: Wesleyan University Press.

    Google Scholar 

  • Odhiambo, E. A. (2017). Auma’s long run. Minneapolis, MN: Carolrhoda Books.

    Google Scholar 

  • Olney, J. (1972). Metaphors of self: The meaning of autobiography. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Olney, J. (1980). Autobiography: Essays theoretical and critical. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Parker, R. (2001). Sexuality, culture and power in HIV/AIDS research. Annual Review of Anthropology, 20, 163–179.

    Google Scholar 

  • Pascal, R. (1960). Design and truth in autobiography. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Picard, M. (1988). The world of silence. Washington, DC: Regnery Gateway.

    Google Scholar 

  • Plummer, K. (1995). Telling sexual stories: Power, intimacy and social worlds. London: Routledge.

    Google Scholar 

  • Plummer, K. (2001). Documents of life 2: An invitation to a critical humanism (2nd ed.). London, UK: Sage.

    Google Scholar 

  • Ranger, T., & Slack, P. (Eds.). (1992). Epidemics and ideas: Essays in the historical perception of pestilence. Cambridge, UK: Cambridge University Press.

    Google Scholar 

  • Rasebotsa, N., Samuelson, M., & Thomas, K. (Eds.). (2004). Nobody ever said AIDS. Cape Town, South Africa: Kwela Books.

    Google Scholar 

  • Reddy, V. (2011). AIDS review. Pretoria, South Africa: Centre for the Study of AIDS, Sexuality & Gender.

    Google Scholar 

  • Reddy, V., & Potgieter, C. (2006). ‘Real men stand up for the truth’: Discursive meanings in the Jacob Zuma rape trial. Southern African Linguistics and Applied Language Studies, 24(4), 511–521.

    Google Scholar 

  • Rödlach, A. (2006). Witches, Westerners, and HIV: AIDS and cultures of blame in Africa. Walnut Creek, CA: Left Coast Press.

    Google Scholar 

  • Sirgy, M. J. (2012). The psychology of quality of life: Hedonic well-being, life satisfaction, and Eudaimonia (2nd ed.). New York, NY/London, UK: Springer.

    Google Scholar 

  • Sontag, S. (1988). Illness as a metaphor. New York, NY: Farrar, Straus and Giroux.

    Google Scholar 

  • Sontag, S. (1989). AIDS and its metaphors. New York, NY: Farrar, Straus and Giroux.

    Google Scholar 

  • Steinberg, J. (2008). Sizwe’s test: A young man’s journey through Africa’s AIDS epidemic. New York, NY/London, UK/Toronto, Canada: Simon & Schuster.

    Google Scholar 

  • Stone, A. E. (1982). Autobiographical occasions and original acts: Versions of American identity from Henry Adams to Nate Shaw. Philadelphia, PA: University of Pennsylvania Press.

    Google Scholar 

  • Suttner, R. (2009). The Jacob Zuma rape trial: Power and African National Congress (ANC) masculinities. NORA—Nordic Journal of Feminist and Gender Research, 17(3), 222–236.

    Google Scholar 

  • Tamale, S. (Ed.). (2011). African sexualities: A reader. Dakar, Senegal/Nairobi, Kenya/Oxford, UK: Pambazuka Press.

    Google Scholar 

  • Treichler, P. A. (1999). How to have a theory in an epidemic: Cultural chronicles of AIDS. Durham, BC: Duke University Press.

    Google Scholar 

  • Weeks, J. (1985). Sexuality and its discontents: Meanings, myths and modern sexualities. London, UK: Routledge and Kegan Paul.

    Google Scholar 

  • Weintraub, K. J. (1978). The value of the individual: Self and circumstance in autobiography. Chicago, IL/London, UK: University of Chicago Press.

    Google Scholar 

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Correspondence to Vasu Reddy .

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Reddy, V. (2019). Humanising Silence: The Representation of HIV & AIDS in South African Narratives. In: Eloff, I. (eds) Handbook of Quality of Life in African Societies. International Handbooks of Quality-of-Life. Springer, Cham. https://doi.org/10.1007/978-3-030-15367-0_12

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