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Ethics in Health Research Using Social Media

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Social Web and Health Research

Abstract

Over the past decade, scholars have been able to actively engage with patients, informal caregivers, and providers through social media sites and patient-centered groups in ways that are reshaping patient-centered research design and recruitment. As with the introduction of any new technology, there exists both potential for new modes of inquiry and unforeseen ethical quandaries. This chapter presents researchers with the types of questions, ongoing points of debate, and nascent solutions relevant to a research platform in which ethical considerations have yet to be well defined.

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Author information

Authors and Affiliations

  1. Department of Public Health Sciences, School of Medicine, University of Virginia, Charlottesville, VA, USA

    Rupa Valdez

  2. School of Nursing, University of Virginia, Charlottesville, VA, USA

    Jessica Keim-Malpass

  3. Department of Pediatrics, School of Medicine, University of Virginia, Charlottesville, VA, USA

    Jessica Keim-Malpass

Authors
  1. Rupa Valdez
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  2. Jessica Keim-Malpass
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Corresponding author

Correspondence to Rupa Valdez .

Editor information

Editors and Affiliations

  1. Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL, USA

    Jiang Bian

  2. Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL, USA

    Yi Guo

  3. School of Information, Florida State University, Tallahassee, FL, USA

    Zhe He

  4. Computer Science and Engineering Department, Texas A&M University, College Station, TX, USA

    Xia Hu

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Valdez, R., Keim-Malpass, J. (2019). Ethics in Health Research Using Social Media. In: Bian, J., Guo, Y., He, Z., Hu, X. (eds) Social Web and Health Research. Springer, Cham. https://doi.org/10.1007/978-3-030-14714-3_13

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