Abstract
People with disabilities encounter barriers to care and health disparities. An understanding of relevant concepts in disability can help providers better identify and mitigate them. Understanding models of disability and using appropriate language can enable providers to better care for their patients with disabilities. Dental providers should become familiar with concepts that are accepted as best practices in caring for people with disabilities, such as utilizing a strengths-based approach, providing patient- and family-centered care, integrating universal design into the dental setting, and utilizing a team approach to care delivery.
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American Academy of Pediatric Dentistry. Overview. Pediatr Dent. 2017;39(6):5–7.
HRSA Maternal and Child Health. Children with special health care needs. https://mchb.hrsa.gov/maternal-child-health-topics/children-and-youth-special-health-needs. Accessed 10 Feb 2018.
Bethell CD, Newacheck PW, Fine A, Strickland BB, Antonelli RC, Wilhelm CL, Hornberg LE. Optimizing health and health care systems for children with special needs using the life course perspective. Matern Child Health J. 2014;18:467–77.
American Academy of Pediatric Dentistry. Definition of special health care needs. Pediatr Dent. 2017;39(6):16.
World Health Organization. Disabilities. http://www.who.int/topics/disabilities/en/. Accessed 6 Jan 2018.
Dunn DS. The social psychology of disability. 1st ed. New York, NY: Oxford University Press; 2015.
World Health Organization. Disability and health fact sheet. http://www.who.int/mediacentre/factsheets/fs352/en/. Accessed 6 Jan 2018.
Krahn GL, Hammond L, Turner A. A cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev. 2006;12:70–82.
Centers for Disease Control and Prevention. Facts about developmental disabilities. https://www.cdc.gov/ncbddd/developmentaldisabilities/facts.html. Accessed 6 Jan 2018.
American Academy of Intellectual and Developmental Disabilities. Intellectual disability definition. http://aaidd.org/intellectual-disability/definition - .WlZMuiOZNsM. Accessed 6 Jan 2018.
Goodley D. Disability studies: an interdisciplinary introduction. 2nd ed. London: SAGE; 2017.
Sisti DA. Naturalism and the social model of disability: allied or antithetical? J Med Ethics. 2015;41:553–6.
Baker JP, Lang B. Eugenics and the origins of autism. Pediatrics. 2017;140(2):e20171419.
Mukherjee S. TED Talk: Soon we’ll cure diseases with a cell, not a pill. Available at https://www.ted.com/talks/siddhartha_mukherjee_soon_we_ll_cure_diseases_with_a_cell_not_a_pill. Accessed 22 Dec 2017.
Dunn DS, Andrews EE. Person-first and identity-first language. Am Psychol. 2015;70(3):255–64.
Goering S. Revisiting the relevance of the social model of disability. Am J Bioeth. 2010;10(1):54–5.
Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med. 1999;48:977–88.
Shakespeare T, Iezzoni LI, Groce NE. Disability and the training of health professionals. Lancet. 2009;374(9704):1815–6.
World Health Organization. International classification of functioning, disability and health. http://www.who.int/classifications/icf/en/. Accessed 6 Jan 2018.
Dawson SL. International classification of functioning, disability, and health. In: Austin DR, McCormick BP, editors. Perspectives on recreational therapy. 1st ed. Urbana, IL: Sagamore Venture; 2017.
Faulks D, Norderyd J, Molina G, Phadraif CM, Scagnet G, Eschevins C, Hennequin M. Using the international classification of functioning, disability and health (ICF) to describe children referred to special care of paediatric dental services. PLoS One. 2013;8(4):e61993.
Rosenbaum P, Gorter JW. The ‘f-words’ in childhood disability: I swear this is how we should think! Child Care Health Dev. 2011;38(4):457–63.
Gernsbacher MA. Editorial perspective: the use of person-first language in scholarly writing may accentuate stigma. J Child Psychol Psychiatry. 2017;58(7):859–61.
Special Olympics. Rosa’s Law. https://www.specialolympics.org/Regions/north-america/News-and-Stories/Stories/Rosa-s-Law.aspx. Accessed 10 Feb 2018.
Federal Register. Rosa’s Law. https://www.federalregister.gov/documents/2017/07/11/2017-14343/rosas-law. Accessed 10 Feb 2018.
Young S. TED Talk: I am not your inspiration, thank you very much. Available at https://www.ted.com/talks/stella_young_i_m_not_your_inspiration_thank_you_very_much. Accessed 24 Feb 2018.
Stramondo J. How an ideology of pity is a social harm to people with disabilities. Soc Philos Today. 2010;26:121–34.
Chrisman WL. A reflection on inspiration: A recuperative call for emotion in disability studies. J Lit Cult Disabil Stud. 2011;5(2):173–84.
Harbour WS, Boone R, Heath EB, Ledbetter SG. “Overcoming” in disability studies and African American culture: implications for higher education. In: Kerschbaum SL, Eisenman LT, Jones JM, editors. Negotiating disability: disclosure and higher education. Ann Arbor: University of Michigan Press; 2017. p. 149–69.
Keller RM, Galgay CE. Microaggressive experiences of people with disabilities. In: Sue DW, editor. Microaggressions and marginality: manifestation, dynamics, and impact. Hoboken, NJ: Wiley; 2010. p. 241–67.
World Health Organization. Constitution of WHO. http://www.who.int/about/mission/en/. Accessed 10 Feb 2018.
Emerson E, Brigham P. Exposure of children with developmental delay to social determinants of poor health: cross-sectional case record review study. Child Care Health Dev. 2014;41(2):249–57.
Edwards K, Towle PO, Levitz B. Incorporating life course theory and social determinants of health into the LEND curriculum. Matern Child Health J. 2014;18:431–42.
World Health Organization. Social determinants of health. http://www.who.int/social_determinants/sdh_definition/en/. Accessed 10 Feb 2018.
American Academy of Pediatrics. Community pediatrics: navigating the intersection of medicine, public health, and social determinants of children’s health. Pediatrics. 2013;131(3):623–8.
UN Convention on Rights of Persons with Disabilities. Article 25 – Health. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-25-health.html. Accessed 6 Jan 2018.
Closing the gap: a national blueprint to improve the health of persons with mental retardation. https://stacks.cdc.gov/view/cdc/21851. Accessed 20 Feb 2018.
Bachman SS, Comeau M, Long TF. Statement of the problem: health reform, value-based purchasing, alternative payment strategies, and children and youth with special health care needs. Pediatrics. 2017;139:S89–98.
Cruz S, Neff J, Chi DL. Transitioning from pediatric to adult dental care for adolescents with special health care needs: adolescent and parent perspectives – part one. Pediatr Dent. 2015;37(5):442–6.
Bayarsaikhan Z, Cruz S, Neff J, Chi DL. Transitioning from pediatric to adult dental care for adolescents with special health care needs: dentist perspectives – part two. Pediatr Dent. 2015;37(5):447–51.
Owens PL, Kerker BD, Zigler E, Horwitz SM. Vision and oral health needs of individuals with intellectual disability. Ment Retard Dev Disabil Res Rev. 2006;12:28–40.
Healthy Place. Mild, moderate, severe intellectual disability differences. https://www.healthyplace.com/neurodevelopmental-disorders/intellectual-disability/mild-moderate-severe-intellectual-disability-differences/. Accessed 12 Feb 2018.
Kenney MK. Oral health care in CSHCN: state medicaid policy considerations. Pediatrics. 2009;124:S384–91.
Huebner CE, Chi DL, Masterson E, Milgrom P. Preventive dental health care experiences of preschool-age children with special health care needs. Spec Care Dentist. 2015;35(2):68–77.
McManus BM, Chi D, Carle A. State medicaid eligibility criteria and unmet preventive dental care need for CSHCN. Matern Child Health J. 2016;20:456–65.
Coleman CH, Menikoff JA, Goldner JA, Dubler NN. The ethics and regulation of research with human subjects. 1st ed. Newark, NJ: LexisNexis; 2005.
Krasse B. The Vipeholm dental caries study: recollections and reflections 50 years later. J Dent Res. 2001;80(9):1785–8.
Veenstra MY, Walsh PN, Valk H, Haveman MJ, Linehan C, Kerr MP, Weber G, Salvador-Carulla L, Carmen-Cara A, Azema B, Buono S, Germanavicius A, Tossebro J, Matta T, van Hove G, Moravec D. Sampling and ethical issues in a multicenter study on health of people with intellectual disabilities. J Clin Epidemiol. 2010;63:1091–100.
Baron-Cohen S. Editorial perspective: Neurodiversity – a revolutionary concept for autism and psychiatry. J Child Psychol Psychiatry. 2017;58(6):744–7.
Niemiec R, Shogren KA, Wehmeyer ML. Character strengths and intellectual and developmental disability: a strengths-based approach from positive psychology. Educ Train Autism Dev Disabil. 2017;52(1):13–25.
American Academy of Pediatrics. Patient- and family-centered care and the pediatrician’s role. Pediatrics. 2012;129(2):394–404.
Institute for Patient- and Family-Centered Care. http://www.ipfcc.org/about/pfcc.html. Accessed 20 Feb 2018.
Patel DR, Pratt HD, Patel ND. Team processes and team care for children with developmental disabilities. Pediatr Clin N Am. 2008;55:1375–90.
Hahn EA, Carrol C, and De Bord JR. Personal communication. May 2014.
Imrie R. Universalism, universal design and equitable access to the build environment. Disabil Rehabil. 2012;34(10):873–82.
Bichenbach J. Universally design social policy: when disability disappears? Disabil Rehabil. 2014;36(16):1320–7.
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Webb, J.R. (2019). Overview of Disability. In: Nelson, T., Webb, J. (eds) Dental Care for Children with Special Needs. Springer, Cham. https://doi.org/10.1007/978-3-030-10483-2_1
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