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Creating Technologies with People Who have Dementia

  • Arlene J. AstellEmail author
Chapter
Part of the Human–Computer Interaction Series book series (HCIS)

Abstract

As the numbers of people living with dementia continue to rise, technology is becoming increasingly important. This is partly because current services, which tend to focus on healthcare, lack both capacity and treatments to respond to the growing need. Additionally, most people with dementia across the world live at home, requiring practical, affordable and scalable solutions at a societal level. In the short to medium term this could be achieved through harnessing and exploiting existing devices and functionality to support people who have dementia and their families. In the longer term, emerging innovations that directly address the complex interactions of cognitive function and behaviour should produce tailored or personalised solutions for people with dementia. This chapter argues that we need to shift from the medical approach focused on symptoms to an approach based on empowerment through the sensitive and appropriate use of technology. Specifically, this chapter looks at the current context in which dementia is understood, identifies factors that must be taken into account in reconceptualising dementia, and proposes a cognitive-behavioural approach for thinking about the activities people with dementia want assistance with.

References

  1. Alm N, Astell A, Ellis M, Dye et al (2004) A cognitive prosthesis and communication support for people with dementia. Neuropsychol Rehabil 14(1–2):117–134Google Scholar
  2. Alzheimer’s Association (2017) 2017 Alzheimer’s disease facts and figures. Alzheimer’s Association, Chicago, USAGoogle Scholar
  3. American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders, 5th ednGoogle Scholar
  4. Astell AJ (2006) Technology and personhood in dementia. Qual Ageing Older Adults 7(1):15–25Google Scholar
  5. Astell AJ (2009) REAFF—a framework for developing technology to address the needs of people with dementia. In: Proceedings of first international workshop RSW-2009, Cambridge, UK, 5 September 2009. CEUR Workshop Proceedings, pp 5–10. ISSN 1613-0073Google Scholar
  6. Astell AJ (2013) Technology and fun for a happy old age. In: Sixsmith A, Gutman G (eds) Technology for active aging. Springer Science, 169–187Google Scholar
  7. Astell AJ (2015) Supporting a good life with dementia. In Prendergast D, Garattini C (eds) Ageing and the digital life course. Berghahn Books, New York, pp X–YGoogle Scholar
  8. Astell AJ, Alm N, Gowans G et al (2009) Involving older people with dementia and their carers in designing computer-based support systems: some methodological considerations. Univ Access Inf Soc 8(1):49–59Google Scholar
  9. Astell AJ, Ellis MP, Bernardi L et al (2010) Using a touch screen computer to support relationships between people with dementia and caregivers. Interact Comput 22(4):267–275Google Scholar
  10. Astell AJ, Malone B, Williams G et al (2014) Leveraging everyday technology for people living with dementia: a case study. J Assist Technol 8(4):164–176Google Scholar
  11. Astell AJ, Joddrell P, Groenewoud H et al (2016) Does familiarity affect the enjoyment of touchscreen games for people with dementia? Int J Med Informatics 91:e1–e8Google Scholar
  12. Augusto JC, Kramer D, Alegre U et al (2016) Co-creation of smart technology with (and for) people with special needs. In Conference: 7th internal conference on software development and technologies for enhancing accessibility and fighting info-exclusion, Vila Real, Portugal, December 2016, p XGoogle Scholar
  13. Bardzell J, Bardzell S, Lin C et al (2017) HCI’s making agendas. Found Trends® Hum–Comput Interact 11(3):126– 200.  https://doi.org/10.1561/1100000066Google Scholar
  14. Bennet DM (2018) Lack of benefit with idalopirdine for Alzheimer disease. JAMA 319(2):123–125Google Scholar
  15. Benson DF, Davis J, Snyder BD (1988) Posterior cortical atrophy. Arch Neurol 45(7):789–793.  https://doi.org/10.1001/archneur.1988.00520310107024Google Scholar
  16. Black BS, Johnston D, Rabins PV et al (2013). Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study. J Am Geriatr Soc 61(12):2087–2095Google Scholar
  17. Bødker S (2015) Third-wave HCI, 10 years later—participation and sharing. Interactions 22(5):24–31Google Scholar
  18. Crutch SJ, Lehmann M, Schott JM et al (2012) Posterior cortical atrophy. Lancet Neurol 11(2):170–178.  https://doi.org/10.1016/S1474-4422(11)70289-7Google Scholar
  19. Dove E, Astell AJ (2017a) The use of motion-based technology for people living with dementia or mild cognitive impairment: literature review. J Med Internet Res 19(1):e3Google Scholar
  20. Dove E, Astell AJ (2017b) The Kinect project: group motion-based gaming for people living with dementia. Dementia, published online 1st December 2017Google Scholar
  21. Dove E, Astell AJ (2018) Kinecting through group digital games. J Dement Care 26(1):18–19Google Scholar
  22. Dubois B, Padovani A, Scheltens (2015) Timely diagnosis for Alzheimer’s disease: a literature review on benefits and challenges. J Alzheimer’s Dis 49(3):617–631.  https://doi.org/10.3233/JAD-150692Google Scholar
  23. Felzmann H, Beyan O, Murphy K, Casey D et al (2015) Robot-assisted care for elderly with dementia: is there a potential for genuine end-user empowerment? The Emerging Policy and Ethics of Human-Robot Interaction, Portland OR. March 2ndGoogle Scholar
  24. Groenewoud H, de Lange J, Schikhof Y et al (2017) Experiences of people with dementia playing casual games on a tablet. Gerontechnology 16(1):37–47Google Scholar
  25. Hassenzahl M (2011) User experience and experience design. Experience Design: Technology for all the right reasons. http://www.interactiondesign.org/printerfriendly/encyclopedia/user_experience_and_experience_design.html
  26. Holtzblatt K, Beyer H (2017) Contextual design. Design for life, 2nd edn. Morgan Kaufmann, Cambridge, MAGoogle Scholar
  27. Huijnens CAGJ, Lexis MAS, Jansens R et al (2017) How to implement robots in interventions for children with autism? A co-creation study involving people with autism, parents and professionals. J Autism Dev Disord 47(10):3079–3096Google Scholar
  28. Joddrell P (2017) Investigating the potential of touchscreen technology to create opportunities for independent activity with people living with dementia. Unpublished thesisGoogle Scholar
  29. Joddrell P, Astell AJ (2016) The use of touchscreen technology with people living with dementia: a review of the literature. JMIR Rehabil Assist Technol (JRAT) 3(6):e10Google Scholar
  30. Joddrell P, Astell A (2017) ActoDementia: implementing accessibility options for dementia in existing touchscreen apps. Alzheimer’s Dement: J Alzheimer’s Assoc 13(7):162–163Google Scholar
  31. Joddrell P, Astell AJ, Hernandez A (2016) Identifying existing, accessible touchscreen games for people living with dementia. In: Meisenberger K, Buhler C, Penaz, P (eds) Computers helping people with special needs. Lecture notes in computer science, vol 9758. Springer, Heidelberg, pp 509–514Google Scholar
  32. Karakostas A, Lazarou I, Meditskos G et al (2015) Sensor-based in-home monitoring of people with dementia using remote web technologies. In 2015 International conference on interactive communication technologies and learning (IMCL).  https://doi.org/10.1109/imctl.2015.7359618
  33. Landau R, Werner S (2012) Ethical aspects of using GPS for tracking people with dementia: recommendations for practice. Int Psychogeriatr 24(3):358–366Google Scholar
  34. Lazar A, Cornejo R, Edasis C et al (2016) Designing for the third hand: empowering older adults with cognitive impairments through creating and sharing. DIS 2016, Proceedings of the 2016 ACM Conference on Designing Interactive Systems, 1047–1058Google Scholar
  35. Lindqvist E, Persson Vasiliou A, Astell A et al (2016) Activities people with mild cognitive impairments want to master—a scoping review. Br J Occup Ther 79(7):399–408Google Scholar
  36. Medina J, Weintraub S (2007) Depression in primary progressive aphasia. J Geriatr Psychiatry Neurol 20(3):153–160Google Scholar
  37. Mehta D, Jackson R, Paul G et al (2017) Why do trials for Alzheimer’s disease drugs keep failing? A discontinued drug perspective for 2010–2015. Expert Opin Investig Drugs 26(2):735–739Google Scholar
  38. Moddirousta M, Price BH, Dickerson BC (2013) Neuropsychiatric symptoms in primary progressive aphasia: phenomenology, pathophysiology, and approach to assessment and treatment. Neurodegener Dis Manag 3(2):133–146Google Scholar
  39. Müller-Rakow A, Flechtner R (2017) Designing interactive music systems with and for people with dementia. Des J 20(Suppl 1):S2207–S2214.  https://doi.org/10.1080/14606925.2017.1352736Google Scholar
  40. Onyike CU, Diehl-Schmid J (2013) The epidemiology of frontotemporal dementia. Int Rev Psychiatry (Abingdon, Engl) 25(2):130–137Google Scholar
  41. Prince M, Wimo A, Guerchet M et al (2015) World Alzheimer’s report 2015: the global impact of dementia. Alzheimer’s Disease International (ADI), London, UKGoogle Scholar
  42. Prince M, Comas-Herrera A, Knapp M et al (2016) World Alzheimer report 2016: improving healthcare for people living with dementia. Alzheimer’sGoogle Scholar
  43. Rizzi L, Rosset I, Roriz-Cruz M (2014). Global epidemiology of dementia: Alzheimer’s and vascular types. BioMed Res Int 2014, Article ID 908915, 8 pGoogle Scholar
  44. Rodgers PA (2018) Co-designing with people living with dementia. Codesign 14(3):188–202Google Scholar
  45. Rogers Y, Marsden G (2013) Does he take sugar? Moving beyond the rhetoric of compassion. Interactions 1–48.  https://doi.org/10.1145/2486227.2486238Google Scholar
  46. Saad-Sulonen J, Eriksson E, Halskov K et al (2018) Unfolding participation over time in the design of IT. CoDesign 14(1):1–3.  https://doi.org/10.1080/15710882.2018.1426981Google Scholar
  47. Sachdev PS, Blacker D, Blazer DG et al (2014) Classifying cognitive disorders: the DSM-5 approach. Nat Rev Neurol 10:634–642Google Scholar
  48. Schwartz MF, Reed ES, Montgomery M (1991) The quantitative description of action disorganisation after brain damage: a case study. Cogn Neuropsychol 8(5):381–414Google Scholar
  49. Schwartz MF, Montgomery MW, Fitzpatrick-DeSalme EJ et al (1995) Analysis of a disorder of everyday action. Cogn Neuropsychol 12(8):863–892Google Scholar
  50. Vines J, Pritchard G, Wright P et al (2015) An age old problem: examining the discourses of ageing in HCI and strategies for future research. ACM Trans Comput Hum Interact (TOCHI) 22(1):2Google Scholar
  51. Wattmo CM, Wallin AK, Minthon L (2012) Functional response to cholinesterase inhibitor therapy in a naturalistic disease cohort. BMC Neurol 12:134Google Scholar
  52. Wherton JP, Monk AF (2010) Problems people with dementia have with kitchen tasks: the challenge for pervasive computing. Interact Comput 22(4):253–266Google Scholar

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Department of Occupational Sciences and Occupational TherapyUniversity of TorontoTorontoCanada
  2. 2.Department of PsychiatryUniversity of TorontoTorontoCanada
  3. 3.School of Psychology and Clinical Language SciencesUniversity of ReadingReadingUK

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