Abstract
The outcome , Health-Related Quality of Life (HRQOL) , is a subcategory of Quality of Life that includes domains of physical, mental, emotional, and social functioning. This outcome, measured with sophisticated instruments, is becoming increasingly popular in surgical studies to report postoperative results. Often, HRQL helps surgeons decide if they would like to adopt or reject novel surgical interventions/innovations. Because of this, it is important that surgeons, be familiar with how to properly appraise an article that purports to use an HRQL measure to compare surgical interventions. For surgeon-investigators, this chapter will explain which HRQL scales to use, when to use them, and how to report them.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
World Health Organization. WHOQOL: Measuring Quality of Life. [Internet]. Geneva; 2018 [cited 2018 Jan 10]. Available from: http://www.who.int/healthinfo/survey/whoqol-qualityoflife/en/.
Office of Disease Prevention and Health Promotion. Health-Related Quality of Life and Well-Being. [Internet]. Washington, DC; 2010 [cited 2018 Jan 10]. Available from: https://www.healthypeople.gov/2020/about/foundation-health-measures/Health-Related-Quality-of-Life-and-Well-Being.
Kirshner B, Guyatt G. A methodological framework for assessing health indices. J Chronic Dis. 1985;38:27–36.
Wood-Dauphinee S. Quality of life assessment: recent trends in surgery. Can J Surg. 1996;39:368–72.
Wood-Dauphinee S. Assessing quality of life in clinical research: from where have we come and where are we going? J Clin Epidemiol. 1999;52:355–63.
Waltho D, Kaur MN, Haynes RB, Farrokhyar F, Thoma A. Users’ guide to the surgical literature: hot to perform a high-quality literature search. Can J Surg. 2015;58(5):349–58.
Park AK, Danielsen E, Angenete D, Bock AC, Marinez E, Haglind JE, et al. Quality of life in a randomized trial of early closure of temporary ileostomy after rectal resection for cancer (EASY trial). Wiley Online Libr. 2018;105:244–51.
Danielsen AK, Park J, Jansen JE, Bock D, Skullman S, Wedin A, et al. Early closure of a temporary ileostomy in patients with rectal cancer: a Multicenter randomized controlled trial. Ann Surg. 2017;265(2):284–90.
US Food and Drug Administration. Clinical Outcome Assessment Qualification Program. [Internet]. Silver Spring, Maryland; 2018 [cited 2018 Jan 10]. Available from: https://www.fda.gov/Drugs/DevelopmentApprovalProcess/DrugDevelopmentToolsQualificationProgram/ucm284077.html.
Streiner DL, Norman RG, Cairney J. Health measurement scales: a practical guide to their development and use. 5th ed. Oxford: Oxford University Press; 2014.
McDowell I. Measuring health: a guide to rating scales and questionnaires. 3rd ed. Oxford: Oxford University Press; 2006.
Deshpande PR, Rajan S, Sudeepthi Nazir CPA. Patient-reported outcomes: a new era in clinical research. Perspect Clin Res. 2011;2(4):137–44.
Litwin MS. Health-related quality of life. In: Penson DF, Wei JT, editors. Chapter 13: Clinical research for surgeons. Totowa, NJ: Humma Press; 1998.
Guyatt GH, Naylor CD, Juniper E. Users’ guides to the medical literature XII. How to use articles about health-related quality of life. JAMA. 1997; 277: 1232–7.
Thoma A, Cornacchi SD, Lovrics PJ, Goldsmith CH. Users’ guide to the surgical literature: how to assess an article on health-related quality of life. Can J Surg. 2008;51(3):215–24.
Husted JA, Cook RJ, Farewell VT, Gladman DD. Methods for assessing responsiveness: a critical review and recommendations. J Clin Epidemiol. 2000;53:459–68.
Stansfeld SA, Roberts R, Foot SP. Assessing the validity of the SF-36 general health survey. Qual Life Res. 1997;6(3):217–24.
Jenkinson C, Wright L, Coulter A. Criterion validity and reliability of the SF-36 in a population sample. Qual Life Res. 1994;3:7–12.
Garratt AM, Ruta DA, Abdalla MI, Russell IT. SF 36 health survey questionnaire: II. Responsiveness to changes in health status in four common clinical conditions. Qual Health Care. 1994;3(4):186–92.
Ganesh V, Agarwal A, Popovic M, Bottomley A, McDonald R, Vuong S, et al. Comparison of the FACT-C, EORTC QLQ-CR38, and QLQ-CR29 quality of life questionnaires for patients with colorectal cancer: a literature review. Support Care Cancer. 2016;24(8):3661–8.
EORTC. EORTC QLQ-C30. [Internet]. Brussels; 2017 [cited 2018 Jan 5]. Available from: http://groups.eortc.be/qol/eortc-qlq-c30.
EuroQoL Group. EQ-5D-5L. [Internet]. Rotterdam; 2009 [cited 2018 Jan 5]. Available from: https://euroqol.org/eq-5d-instruments/eq-5d-5l-about/.
Horsman J, Furlong W, Feeny D, Torrance G. The health utilities index (HUI): concepts, measurement properties and applications. Health Qual Life Outcomes. 2003;1(54):1–13.
Jaeschke R, Singer J, Guyatt GH. Measurement of health status: ascertaining the minimal clinically important difference. Control Clin Trials. 1989;10:407–15.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Thoma, A., Santos, J., Cadeddu, M., Duku, E.K., Goldsmith, C.H. (2019). How to Assess an Article that Deals with Health-Related Quality of Life. In: Thoma, A., Sprague, S., Voineskos, S., Goldsmith, C. (eds) Evidence-Based Surgery. Springer, Cham. https://doi.org/10.1007/978-3-030-05120-4_10
Download citation
DOI: https://doi.org/10.1007/978-3-030-05120-4_10
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-05119-8
Online ISBN: 978-3-030-05120-4
eBook Packages: MedicineMedicine (R0)