Abstract
This chapter addresses and defines issues specific to well-being (WB) and quality of life (QoL) in those who are diagnosed and treated for head and neck cancer (HNCa). Although these constructs are subjective in nature, we believe efforts to measure QoL and to directly apply such findings as an outcome metric in the context of patient care are essential. Accordingly, current QoL methodology and associated sources of measurement error are discussed. Clinical applications of QoL and the role of the clinician in the interpretation and direct application of QoL research in clinical practice are outlined. Although practice in the area of oncology is often guided by aspects of disease cure and the quantitative period of survival, this perspective forms a narrow and incomplete view of the disease and its influence on those who undergo treatment. As such, this chapter seeks to promote facilitation of the best possible outcomes through the consideration of the profound impact of the disease and its treatment on HNCa survivors’ perceived WB and QoL.
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Notes
- 1.
As an interesting side note to this concern, we would suggest that some proportion of this problem is borne of a push to develop new QoL instruments, rather than attempts which seek to expand and/or refine existing tools. Additionally, QoL measurement continues to be challenged by the underlying mismatch between the desire of healthcare systems and their need to quantitate, in some form, what are essentially qualitative aspects of personal functioning.
- 2.
It is important to acknowledge that a variety of supplemental measures may also be employed. Although specifically developed to identify symptoms (physical or psychosocial), “symptom screening” tools can be used in combination with other more extensive QoL measures.
- 3.
At times, clinicians may utilize sections of larger QoL measures in an effort to document or monitor particular aspects of functioning. While the objective of this type of exploration may serve to facilitate specific types of intervention and follow-up, and is not discouraged, it must be recognized that doing so does threaten the validity of the measure(s) obtained.
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Doyle, P.C., MacDonald, C. (2019). Well-Being and Quality of Life in Head and Neck Cancer. In: Doyle, P. (eds) Clinical Care and Rehabilitation in Head and Neck Cancer. Springer, Cham. https://doi.org/10.1007/978-3-030-04702-3_27
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