Abstract
The benefits of an early diagnosis of dementia are well documented. According to a 2015 Alzheimer’s Association policy brief, early detection and diagnosis offers a number of benefits for affected individuals and their families (Alzheimer’s Association, 2015). Early detection and diagnosis allows people living with dementia to access available treatments when they are more likely to provide some benefit, build a care team, participate in support services, complete appropriate advanced directives, and enroll in clinical trials or engage in experimental types of treatment options. Further people who know they have the disease and their care partners can make additional financial and legal arrangements before they are deemed unable to do so. Early detection means that people may be diagnosed while still working or just as they are beginning to enjoy retirement and a period in life when their children have moved out of the home. Despite some of the advantages of an early diagnosis , knowledge of this diagnosis is still devastating to individuals and requires significant coping, resilience and support .
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References
Alzheimer’s Association 2015. (2015). Policy brief: Early detection and diagnosis of Alzheimer’s disease. https://www.alz.org/publichealth/downloads/policy-brief.pdf. Last accessed August, 2018.
Aschbacher, K., Patterson, T. L., von Kanel, R., & et al. (2005). Coping processes and hemostatic reactivity to acute stress in dementia caregivers. Psychosomatic Medicine, 67, 964–971.
Bang, M., & Kim, O. (2016). Effect of the family resilience reinforcement program for family caregivers of the elderly with dementia. Korean Journal of Adult Nursing, 28(1), 71–82.
Bekhet, B. K., & Avery, J. S. (2018). Resilience from the perspectives of caregivers of persons with dementia. Archives of Psychiatric Nursing, 32, 19–23.
Black, B. S., Johnston, D., Rabins, P. V., Morrison, A., Lyketsos, C., & Samus, Q. M. (2013). Unmet needs of community-residing persons with dementia and their informal caregivers: Findings from the MIND at home study. Journal of the American Geriatrics Society, 61(12), 2087–2095.
Clark, M. C., & Diamond, P. M. (2010). Depression in family caregivers of elders: A theoretical model of caregiver burden, sociotropy and autonomy. Research in Nursing & Health, 33(1), 20–34.
Deist, M., & Greeff, A. P. (2015). Resilience in families caring for a family member diagnosed with dementia. Educational Gerontology, 41, 93–105.
Donnellan, W. J., Bennett, K. M., & Soulsby, L. K. (2015). What are the factors that facilitate or hinder resilience in older spousal dementia carers? A qualitative study. Aging & Mental Health, 19(10), 932–939.
Fortinsky, R. H., Kercher, K., & Burant, C. J. (2002). Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging and Mental Health, 6, 153–160.
Harris, P. (2011). Maintaining friendships in early stage dementia: Factors to consider. Dementia, 11(3), 305–314.
Hui, Y., & Huimin, S. (2017). Relationship between self efficacy and resilience of caregivers of senile dementia patients: The mediating role of positive coping. Chinese Nursing Research, 31(33), 4226–4230.
Jang, H., & Yi, M. (2013). Effects of burden and family resilience on the family adaptation of family caregivers of elderly with dementia. Korean Journal of Adult Nursing, 25(6), 725–735.
Joling, K. J., Windle, G., Droes, R. M., Huisman, M., Hertogh, C. M. P. M., & Woods, R. T. (2017). What are the essential features of resilience for informal caregivers of people living with dementia: A Delphi consensus examination. Aging & Mental Health, 21(5), 509–517.
Kidd, L. I., Zauszniewski, J. A., & Morris, D. L. (2011). Benefits of a poetry writing intervention for family caregivers of elders with dementia. Issues in Mental Health Nursing, 32(9), 598–604.
Kleinfield, N. R. (2016) Fraying at the edges: A life-changing diagnosis. New york Times. https://www.nytimes.com/interactive/2016/05/01/nyregion/living.with.alzheimers.html. Last accessed November, 2018.
Lavretsky, H., Siddarth, P., & Irwin, M. R. (2010). Improving depression and enhancing resilience in family dementia caregivers: A pilot randomized placebo-controlled trial of escitalopram. American Journal of Geriatric Psychiatry, 18(2), 154–162.
Logsdon, R., Pike, K., McCurry, S., Hunter, P., Maher, J., Snyder, L., et al. (2010). Early-stage memory loss support groups: Outcomes from a randomized controlled clinical trial. The Journals of Gerontology, 65B(6), 691–697.
Matchar, B., & Gwyther, L. (2014). Resilience in early-stage dementia: Lessons learned from early-stage Alzheimer education and support groups. Topics in Geriatric Rehabilitation, 30(3), 170–175.
Mausbach, B. T., von Kanel, R., Depp, C., et al. (2008). The moderating effect of personal mastery on the relations between stress and plasminogen activator inhibitor-1(PAI-1) antigen. Health Psychology, 27, S172–S179.
Mausbach, B. T., von Kanel, R., Roepke, S. K., et al. (2011). Self-efficacy buffers the relationship between dementia caregiving stress and circulating concentrations of the proinflammatory cytokine interleukin-6. American Journal of Geriatric Psychiatry, 19, 64–71.
McCubbin, H. I., & McCubbin, M. A. (1996). Resiliency in families: A conceptual model of family adjustment and adaptation in response to stress and crises. In H. I. McCubbin, A. I. Thompson, & M. A. Mc Cubbin (Eds.), Family assessment: Resiliency, coping and adaptation-Inventories for research and practice. Madison, WI: University of Wisconsin System.
National Academies of Sciences, E. A. M. (2016). Family caring for an aging America. Washington DC. The National Academies Press.
Ornstein, K., & Gaugler, J. E. (2012). The problem with problem behaviors: A systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the demtia patient-caregiver dyad. International Psychogeriatrics, 24(10), 1536–1552.
Petriwskyj, A., Parker, D., O’Dwyer, S., Maoyle, W., & Nucifora, N. (2016). Interventions to build resilience in family caregivers of people living with dementia: A comprehensive systematic review. JBI Database of Systematic Reviews and Implementation Reports, 14(6), 238–273.
Pinquart, M., & Sorensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18(4), 356–372.
Rabinowitz, Y. G., Hartlaub, M. G., Saenz, E. C., et al. (2010). Is religious coping associated with cumulative health risk? An examination of religious coping styles and health behavior patterns in Alzheimer’s dementia caregivers. Journal of Religious Health, 49, 498–512.
Rabinowitz, Y. G., Mausbach, B. T., Thompson, L. W., et al. (2007). The relationship between self-efficacy and cumulative health risk associated with health behavior patterns in female caregivers of elderly relatives with Alzheimer’s demntia. Journal of Aging and Health, 19, 946–964.
Rabins. P. V. (2017). Quality of life in people with dementia. https://peterrabins.com/2017/12/10/quality-of-life-people-dementia/. Last accessed August, 2018.
Roepke, S. K., Mausbach, B. T., Aschbacher, K., et al. (2008). Personal mastery is associated with reduced sympathetic arousal in stressed Alzheimer caregivers. American Journal of Geriatric Psychiatry, 16, 310–317.
Sabat, S. R. (2018). Alzheimer’s disease and dementia: What everyone needs to know. Bethesda, MD: Oxford Press.
Schultz, R., Boemer, K., Shear, K., Zhang, S., & Gitlin, L. (2006). Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. American Journal of Geriatric Psychiatry, 14, 650–658.
Scott, C. B. (2013). Alzheimer’s disease caregiver burden: Does resilience matter? Journal of Human Behavior and the Social Environment, 23(8), 879–892.
Serra, L., Contador, I., Fernandez-Calvo, B., Ruisoto, P., Jenaro, C., Flores, N., et al. (2018). Resilience and social support as protective factors against abuse of patients with dementia: A study on family caregivers. International Journal of Geriatric Psychiatry, 33, 1132–1138.
Snyder, L., Jenkins, C., & Joosten, L. (2007). Effectiveness of support groups for people with mild to moderate Alzheimer’s disease: An evaluative survey. American Journal of Alzheimer’s Disease & Other Dementias, 22(1), 14–19.
Terrell K. (2017). Age discrimination goes online. AARP Bulletin. https://www.aarp.org/work/working-at-50-plus/info-2017/age-discrimination-online-fd.html. Last accessed August, 2018.
Walsh, F. (2002). A family resilience framework: Innovative practice applications. Family Relations, 51(2), 130–137.
Windle, G. (2011). What is resilience? A review and concept analysis. Reviews in Clinical Gerontology, 21, 152–169.
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Matchar, B.G., Gwyther, L.P., Galik, E., Resnick, B. (2018). Building Resilience in Persons with Early-Stage Dementia and Their Care Partners. In: Resnick, B., Gwyther, L., Roberto, K. (eds) Resilience in Aging. Springer, Cham. https://doi.org/10.1007/978-3-030-04555-5_14
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