Abstract
The concluding chapter discusses future trends in research and application for people with intellectual disabilities. Although predicting what might happen in the dynamic fields of research, education, and social policy development is always hazardous, there are trends in all fields that can lead to improvement in assessment, diagnosis, medical, educational, therapy, service delivery, and policy development. Given the direction of professional trends, there can be reasonable speculation about the direction of the field. This chapter also discusses some of the aspects of prevention and prophylactic treatment to reduce problematic behaviours and increase quality of life for people with intellectual disabilities, their families, and communities. Ultimately, improvement of service delivery for people with intellectual disabilities will depend on the ability of professionals, parents, individuals with intellectual disabilities, policymakers, and other stakeholders to implement the advances in research and the ability of educators and service providers to guide future directions in research.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Alexander, J. L., Ayres, K. M., & Smith, K. A. (2015). Training teachers in evidence-based practice for individuals with autism spectrum disorder: A review of the literature. Teacher Education and Special Education, 38(1), 13–27. https://doi.org/10.1177/0888406414544551
Altermark, N. (2014). The ideology of neuroscience and intellectual disability: Reconstituting the ‘disordered’ brain. Disability & Society, 29(9), 1460–1472. https://doi.org/10.1080/09687599.2014.953244
Anjum, R. (2016). Evidence-based or person-centered? An ontological debate. European Journal for Person Centered Healthcare, 4(2), 421–429. https://doi.org/10.5750/ejpch.v4i2.1152
Bailey, D. B., Raspa, M., Bishop, E., & Holiday, D. (2009). No change in the age of diagnosis for fragile x syndrome: Findings from a national parent survey. Pediatrics, 124(2), 527–533. https://doi.org/10.1542/peds.2008-2992
Baker, M. (2016). 1,500 scientists lift the lid on reproducibility. Nature, 533(7604), 452–454. https://doi.org/10.1038/533452a
Banks, G. C., Rogelberg, S. G., Woznyj, H. M., Landis, R. S., & Rupp, D. E. (2016). Editorial: Evidence on questionable research practices: The good, the bad, and the ugly. Journal of Business and Psychology, 31(3), 323–338. https://doi.org/10.1007/s10869-016-9456-7
Bartlett, M., Otis-Wilborn, A., & Peters, L. (2017). Bending or breaking: Appropriating edTPA policy in special education teacher education. Teacher Education and Special Education, 40(4), 287–298. https://doi.org/10.1177/0888406417720188
Bertelli, M. O., Salerno, L., Rondini, E., & Salvador-Carulla, L. (2017). Integrated care for people with intellectual disability. In V. Amelung, V. Stein, N. Goodwin, R. Balicer, E. Nolte, & E. Suter (Eds.), Handbook integrated care (pp. 449–468). Cham, Switzerland: Springer. https://doi.org/10.1007/978-3-319-56103-5_28
Birken, S. A., Powell, B. J., Shea, C. M., Haines, E. R., Alexis Kirk, M., Leeman, J., … Presseau, J. (2017). Criteria for selecting implementation science theories and frameworks: Results from an international survey. Implementation Science, 12, 124. https://doi.org/10.1186/s13012-017-0656-y
Bitler, M., Hoynes, H., & Kuka, E. (2017). Child poverty, the great recession, and the social safety net in the United States. Journal of Policy Analysis and Management, 36(2), 358–389. https://doi.org/10.1002/pam.21963
Bölte, S. (2014). Is autism curable? Developmental Medicine & Child Neurology, 56(10), 927–931. https://doi.org/10.1111/dmcn.12495
Bryson, J. M. (2018). Strategic planning for public and non-profit organizations: A guide to strengthening and sustaining organizational achievement. Hoboken, NJ: Wiley.
Bushman, G., Victor, B. G., Ryan, J. P., & Perron, B. E. (2018). In utero exposure to opioids: An observational study of mothers involved in the child welfare system. Substance Use & Misuse, 53(5), 844–851. https://doi.org/10.1080/10826084.2017.1388406
Chambers, C. (2017). The seven deadly sins of psychology: A manifesto for reforming the culture of scientific practice. Princeton, NJ: Princeton University Press.
Clark, C. A. C., Fernandez, F., Sakhon, S., Spanò, G., & Edgin, J. O. (2017). The medial temporal memory system in Down syndrome: Translating animal models of hippocampal compromise. Hippocampus, 27(6), 683–691. https://doi.org/10.1002/hipo.22724
Clark, M. M., Stark, Z., Farnaes, L., Tan, T. Y., White, S. M., Dimmock, D., & Kingsmore, S. F. (2018). Meta-analysis of the diagnostic and clinical utility of genome and exome sequencing and chromosomal microarray in children with suspected genetic diseases. Npj Genomic Medicine, 3(1), 16. https://doi.org/10.1038/s41525-018-0053-8
Crnic, K. A., Neece, C. L., McIntyre, L. L., Blacher, J., & Baker, B. L. (2017). Intellectual disability and developmental risk: Promoting intervention to improve child and family well-being. Child Development, 88(2), 436–445. https://doi.org/10.1111/cdev.12740
D’Intino, J., Lysenko, E., & Shaw, S. R. (2018). Questionable research practices and evidence-based interventions in school psychology. NASP Communique, 47(4), 1–3.
Dan, O., Hochner-Celnikier, D., Solnica, A., & Loewenstein, Y. (2017). Association of catastrophic neonatal outcomes with increased rate of subsequent Cesarean deliveries. Obstetrics & Gynecology, 129(4), 671. https://doi.org/10.1097/AOG.0000000000001925
dos Santos, J. F., de Melo Bastos Cavalcante, C., Barbosa, F. T., Gitaí, D. L. G., Duzzioni, M., Tilelli, C. Q., … de Castro, O. W. (2018). Maternal, fetal and neonatal consequences associated with the use of crack cocaine during the gestational period: A systematic review and meta-analysis. Archives of Gynecology and Obstetrics, 298(3), 487–503. https://doi.org/10.1007/s00404-018-4833-2
Esmonde, I., & Booker, A. N. (2016). Power and privilege in the learning sciences: Critical and sociocultural theories of learning. New York, NY: Taylor & Francis.
Feldman, M. A., Bosett, J., Collet, C., & Burnham-Riosa, P. (2014). Where are persons with intellectual disabilities in medical research? A survey of published clinical trials. Journal of Intellectual Disability Research, 58(9), 800–809. https://doi.org/10.1111/jir.12091
Freeman, J., Simonsen, B., Briere, D. E., & MacSuga-Gage, A. S. (2014). Pre-service teacher training in classroom management: A review of state accreditation policy and teacher preparation programs. Teacher Education and Special Education, 37(2), 106–120. https://doi.org/10.1177/0888406413507002
Fuchs, W. W., Fahsl, A. J., & James, S. M. (2014). Redesigning a special education teacher-preparation program: The rationale, process, and outcomes. The New Educator, 10(2), 145–152. https://doi.org/10.1080/1547688X.2014.898493
Gambrill, E. (2006). Evidence-based practice and policy: Choices ahead. Research on Social Work Practice, 16(3), 338–357. https://doi.org/10.1177/1049731505284205
Generoso, J. S., Collodel, A., Simões, L. R., Dagostin, C., Dominguini, D., Lodetti, B. F., … Barichello, T. (2018). RAGE inhibitor prevents cognitive dysfunction and reduces inflammatory mediators in experimental pneumococcal meningitis. The Journal of Immunology, 200(Suppl. 1), 50.2.
Goodley, D. (2016). Disability studies: An interdisciplinary introduction. London, England: SAGE.
Graham, H. (2005). Intellectual disabilities and socioeconomic inequalities in health: An overview of research. Journal of Applied Research in Intellectual Disabilities, 18(2), 101–111. https://doi.org/10.1111/j.1468-3148.2005.00239.x
Gupta, K. K., Gupta, V. K., & Shirasaka, T. (2016). An update on fetal alcohol syndrome—Pathogenesis, risks, and treatment. Alcoholism: Clinical and Experimental Research, 40(8), 1594–1602. https://doi.org/10.1111/acer.13135
Harrison, C., Falvo, D., Weiss, V., & Holland, B. E. (2017). Medical and psychosocial aspects of chronic illness and disability. Burlington, MA: Jones & Bartlett Learning.
Inglis, A., Lohn, Z., Austin, J. C., & Hippman, C. (2014). A ‘cure’ for down syndrome: What do parents want? Clinical Genetics, 86(4), 310–317. https://doi.org/10.1111/cge.12364
Ioannidis, J. P. A. (2018). Meta-research: Why research on research matters. PLoS Biology, 16(3), e2005468. https://doi.org/10.1371/journal.pbio.2005468
John, L. K., Loewenstein, G., & Prelec, D. (2012). Measuring the prevalence of questionable research practices with incentives for truth telling measuring the prevalence of questionable research practices with incentives for truth telling. Psychological Science, 23(5), 524–532. https://doi.org/10.1177/0956797611430953
Johnson, N. M., Carrillo, G., & Mehta, R. K. (2016). Academic and psychosocial impact of air pollution on children. In C. A. Riccio & J. R. Sullivan (Eds.), Pediatric neurotoxicology. Specialty topics in pediatric neuropsychology (pp. 167–180). Cham, Switzerland: Springer.
Lee, H., Park, H., Ha, E., Hong, Y.-C., Ha, M., Park, H., … Kim, Y. (2017). Stability of cognitive development during the first five years of life in relation to heavy metal concentrations in umbilical cord blood: Mothers’ and Children’s Environmental Health (MOCEH) birth cohort study. Science of the Total Environment, 609, 153–159. https://doi.org/10.1016/j.scitotenv.2017.07.074
Matsuda, N., Taki, A., Tsuji, A., Nakajima, K., Takasawa, K., Morioka, C., … Morio, T. (2018). Perinatal factors affecting growth and development at age 3 years in extremely low birth weight infants born small for gestational age. Clinical Pediatric Endocrinology, 27(1), 31–38. https://doi.org/10.1297/cpe.27.31
Open Science Collaboration. (2012). An open, large-scale, collaborative effort to estimate the reproducibility of psychological science. Perspectives on Psychological Science, 7(6), 657–660. https://doi.org/10.1177/1745691612462588
Pearson, D. (2018). The importance of organisational factors in transferring the principles of effective intervention to offender rehabilitation in the real world. In G. Akerman, A. Needs, & C. Bainbridge (Eds.), Transforming environments and rehabilitation: A guide for practitioners in forensic settings and criminal justice (pp. 348–370). New York, NY: Taylor & Francis. Retrieved from https://researchportal.port.ac.uk/portal/en/publications/the-importance-of-organisational-factors-in-transferring-the-principles-of-effective-intervention-to-offender-rehabilitation-in-the-real-world(d4859cc9-3dc0-48df-91c9-b75bacf71ef8).html
Potier, M.-C., & Reeves, R. H. (2016). Editorial: Intellectual disabilities in Down Syndrome from birth and throughout life: Assessment and treatment. Frontiers in Behavioral Neuroscience, 10, 120. https://doi.org/10.3389/fnbeh.2016.00120
Richards, S. B., Brady, M. P., & Taylor, R. L. (2014). Cognitive and intellectual disabilities: Historical perspectives, current practices, and future directions. New York, NY: Routledge.
Richmond, G., & Floden, R. E. (2018). Leveraging research for teacher education policy, design, and practice. Journal of Teacher Education, 69(1), 4–6. https://doi.org/10.1177/0022487117742131
Shaw, S. R., Boulanger, M. M., & Gomes, P. (2015). Enhancing treatment integrity: A proposed model for improving implementation and supporting teachers. Communiqué, 44, 1–18.
Shogren, K. A., Shaw, L. A., Wehmeyer, M. L., Thompson, J. R., Lang, K. M., Tassé, M. J., & Schalock, R. L. (2017). The support needs of children with intellectual disability and autism: Implications for supports planning and subgroup classification. Journal of Autism and Developmental Disorders, 47(3), 865–877. https://doi.org/10.1007/s10803-016-2995-y
Singer, L. T., Min, M. O., Lang, A., & Minnes, S. (2016). In utero exposure to nicotine, cocaine, and amphetamines. In C. A. Riccio & J. R. Sullivan (Eds.), Pediatric neurotoxicology. Specialty topics in pediatric neuropsychology (pp. 51–76). Cham, Switzerland: Springer.
Singh, N. N., Lancioni, G. E., Myers, R. E., Karazsia, B. T., Courtney, T. M., & Nugent, K. (2017). A mindfulness-based intervention for self-management of verbal and physical aggression by adolescents with Prader–Willi syndrome. Developmental Neurorehabilitation, 20(5), 253–260. https://doi.org/10.3109/17518423.2016.1141436
Tomlinson, M., Yasamy, M. T., Emerson, E., Officer, A., Richler, D., & Saxena, S. (2014). Setting global research priorities for developmental disabilities, including intellectual disabilities and autism. Journal of Intellectual Disability Research, 58, 1121–1130. https://doi.org/10.1111/jir.12106
Trasande, L. (2017). When enough data are not enough to enact policy: The failure to ban chlorpyrifos. PLoS Biology, 15(12), e2003671. https://doi.org/10.1371/journal.pbio.2003671
Van der Zee, T., & Reich, J. (2018). Open education science. AERA Open, 4, 1–15. https://doi.org/10.1177/2332858418787466
Wallace, R. A. (2016). Genetic testing of aetiology of intellectual disability in a dedicated physical healthcare outpatient clinic for adults with intellectual disability. Internal Medicine Journal, 46(2), 177–185. https://doi.org/10.1111/imj.12946
Wilkinson, D., Skene, L., Crespigny, L. D., & Savulescu, J. (2016). Protecting future children from in-utero harm. Bioethics, 30(6), 425–432. https://doi.org/10.1111/bioe.12238
Wojtal, D., Kemaladewi, D. U., Malam, Z., Abdullah, S., Wong, T. W. Y., Hyatt, E., … Cohn, R. D. (2016). Spell checking nature: Versatility of CRISPR/Cas9 for developing treatments for inherited disorders. The American Journal of Human Genetics, 98(1), 90–101. https://doi.org/10.1016/j.ajhg.2015.11.012
Author information
Authors and Affiliations
Rights and permissions
Copyright information
© 2018 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Shaw, S.R., Jankowska, A.M. (2018). Future Directions to Support People with Intellectual Disabilities. In: Pediatric Intellectual Disabilities at School. Pediatric School Psychology. Springer, Cham. https://doi.org/10.1007/978-3-030-02992-0_9
Download citation
DOI: https://doi.org/10.1007/978-3-030-02992-0_9
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-02990-6
Online ISBN: 978-3-030-02992-0
eBook Packages: Behavioral Science and PsychologyBehavioral Science and Psychology (R0)