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Considérations éthiques en réanimation pédiatrique. Besoins de l’enfant et de ses parents. Situations de fin de vie

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Résumé

Dans le domaine du soin, et tout particulièrement en réanimation, l’éthique est le plus souvent assimilée à l’analyse et à la résolution de tensions ou de conflits de valeurs dans une situation concrète et singulière. On parle volontiers d’éthique clinique pour nommer la démarche collégiale qui cherche à discerner la meilleure (ou la moins mauvaise) décision, illustrée par les décisions de limitation ou d’arrêt de traitements de suppléance vitale (LAT) visant à éviter ou à faire cesser une obstination déraisonnable.

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Références

  1. Colville G (2008) The psychologic impact on children of admission to intensive care. Pediatr Clin North Am 55: 605–16

    Article  PubMed  Google Scholar 

  2. Shudy M, de Almeida ML, Ly S et al. (2006) Impact of pediatric critical illness and injury on families: a systematic literature review. Pediatrics 118: S203–18

    Article  PubMed  Google Scholar 

  3. Diaz Caneja A, Gledhill J, Weaver T et al. (2005) A child’s admission to hospital: a qualitative study examining the experiences of parents. Intensive Care Med 31: 1248–54

    Article  PubMed  CAS  Google Scholar 

  4. Way C (1993) Parental stress in paediatric intensive care. Brit J Nursing 2: 572–7

    CAS  Google Scholar 

  5. Rennick J, Rashotte J (2009) Psychological outcomes in children following pediatric intensive care unit hospitalization: a systematic review of the research. J Child Health Care 13: 128–49

    Article  PubMed  Google Scholar 

  6. Rees G, Gledhill J, Garralda ME, Nadel S (2004) Psychiatric outcome following paediatric intensive care unit (PICU) admission: a cohort study. Intensive Care Med 30: 1607–14

    Article  PubMed  Google Scholar 

  7. Conférence de consensus SFAR-SRLF (2009) Mieux vivre la réanimation disponible sur le site: http://www.sfar.org/article/180/mieux-vivre-la-reanimation-cc-2009

  8. Chundamala J, Wright J, Kemp S (2009) An evidence-based review of parental presence during anesthesia induction and parent/child anxiety. Can J Anaesth 56: 57–70

    Article  PubMed  Google Scholar 

  9. Latour J, van Goudoever J, Hazelzet J (2008) Parent satisfaction in the pediatric ICU. Pediatr Clin North Am 55: 779–90

    Article  PubMed  Google Scholar 

  10. Meyer E, Snelling L, Myren-Manbeck L (1998) pediatric intensive care: the parents’ experience. AACN Clin Issues 9: 64–74

    Article  PubMed  CAS  Google Scholar 

  11. McPherson M, Sachdeva R, Jeferson L (2005) Development of a survey to measure parent satisfaction in a pediatric intensive care unit. Crit Care Med 6: 578–84

    Article  Google Scholar 

  12. Haines C, Childs H (2005) Parental satisfaction with paediatric intensive care Paediatr Nurs 17: 37–41

    PubMed  Google Scholar 

  13. Azoulay E, Pochard F, Chevret S et al. (2001) Meeting the needs of intensive care unit patient families: a multicenter study. J Respir Crit Care Med 163: 135–9

    Article  CAS  Google Scholar 

  14. Noyes J (1998) A critique of studies exploring the experiences and needs of parents of children admitted to paediatric intensive care units. J Adv Nurs 28: 134–41

    Article  PubMed  CAS  Google Scholar 

  15. Slota M, Shearn D, Potersnak K, Haas L (2003) Perspectives on family-centered, flexible visitation in the intensive care unit setting. Crit Care Med 31: S362–6

    Article  PubMed  Google Scholar 

  16. Association Sparadrapt (2004) Enquête nationale sur la place des parents à l’hôpital. Actes du colloque disponible sur le site: http://www.sparadrap.org/Parents/Textes-de-reference/Etudes-articles

  17. Rozdilsky J (2005) Enhancing sibling presence in pediatric ICU. Crit Care Nurs Clin North Am 17: 451–61

    Article  PubMed  Google Scholar 

  18. Gursky B (2007) The effect of educational interventions with siblings of hospitalized children. J Dev Behav Pediatr 28(5): 392-8

    Article  PubMed  Google Scholar 

  19. Vagnoli L, Caprilli S, Robiglio A, Messeri A (2005) Clown doctors as a treatment for preoperative anxiety in children: a randomized, prospective study. Pediatrics 116: e563–7

    Article  PubMed  Google Scholar 

  20. Melnyk B, Alpert-Gillis L, Feinstein N et al. (2004) Creating opportunities for parent empowerment: program effects on the mental health/coping outcomes of critically ill young children and their mothers. Pediatrics 113: e597–607

    Article  PubMed  Google Scholar 

  21. Power N, Franck L (2008) Parent participation in the care of hospitalized children: a systematic review. J Adv Nurs 62: 622–41

    Article  PubMed  Google Scholar 

  22. Groupe Francophone de Réanimation et Urgences Pédiatriques (2002) Limitations et arrêts des traitements en réanimation pédiatrique: repères pour la pratique. Paris Fondation de France

    Google Scholar 

  23. Leikin S (1989) A proposal concerning decisions to forgo life-sustaining treatment for young people. J Pediatr 115: 17–22

    Article  PubMed  CAS  Google Scholar 

  24. Weithorn L, Campbell S (1982) The competency of children and adolescents to make informed treatment decisions. Child Dev 53: 1589–98

    Article  PubMed  CAS  Google Scholar 

  25. Hubert P, Canoui P, Cremer R, Leclerc F (2005) Limitations et arrêts des traitements actifs en réanimation pédiatrique: recommandations du GFRUP. Arch Pediatr 12: 1501–8

    Article  PubMed  CAS  Google Scholar 

  26. Abbott K, Sago J, Breen C et al. (2001) Families looking back: One year after discussion of withdrawal or withholding of life-sustaining support. Crit Care Med 29: 197–201

    Article  PubMed  CAS  Google Scholar 

  27. Azoulay E, Chevret S, Leleu G et al. (2000) Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 28: 3044–9

    Article  PubMed  CAS  Google Scholar 

  28. Studdert D, Burns J, Mello M et al. (2003) Nature of conflict in the care of pediatric intensive care patients with prolonged stay. Pediatrics 112: 553–8

    Article  PubMed  Google Scholar 

  29. Azoulay E, Cattaneo I, Ferrand E et al. (2001) L’information au patient en réanimation et à ses proches: le point de vue de la SRLF. Réanimation 10: 571–81

    Article  Google Scholar 

  30. Sfar (2001) Informations aux patients de réanimation et à leurs proches. Ann Fr Anesth Réanim 20: 119–28

    Google Scholar 

  31. HAS (2008) Recommandations professionnelles: Annoncer une mauvaise nouvelle

    Google Scholar 

  32. Azoulay E, Pochard F, Chevret S et al. (2002) Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients: a multicenter, prospective, randomized, controlled trial. Am J Respir Crit Care Med 165: 438–42

    Article  PubMed  Google Scholar 

  33. Arrêté relatif au contenu du livret d’accueil des établissements de santé (2008) JORF n∘ 0112 du 15 mai 2008

    Google Scholar 

  34. Todres I, Earle M Jr, Jellinek M (1994) Enhancing communication. The physician and family in the pediatric intensive care unit. Pediatr Clin North Am 41: 1395–404

    CAS  Google Scholar 

  35. McDonagh J, Elliott T, Engelberg R, Treece P et al. (2004) Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med 32: 1484–8

    Article  PubMed  Google Scholar 

  36. Linton S, Grant C, Pellegrini J (2008) Supporting families through discharge from PICU to the ward: the development and evaluation of a discharge information brochure for families. Intensive Crit Care Nurs 24: 329–37

    Article  PubMed  Google Scholar 

  37. Prise en charge de la douleur postopératoire chez l’adulte et l’enfant (2008) Annales Françaises d’Anesthésie et de Réanimation 27: 1035–41

    Article  Google Scholar 

  38. Cremer R, Leclerc F, Lacroix J et al. (2009) Children with chronic conditions in pediatric intensive care units located in predominantly French-speaking regions: Prevalence and implications on rehabilitation care need and utilization. Crit Care Med 37: 1456–62

    Article  PubMed  Google Scholar 

  39. Graham R, Pemstein D, Curley M (2009) Experiencing the pediatric intensive care unit: perspective from parents of children with severe antecedent disabilities. Crit Care Med 37: 2064–70

    Article  PubMed  Google Scholar 

  40. Azoulay E, Timsit JF, Sprung C et al. (2009) Prevalence and factors of intensive care unit conflicts: the conflicus study. Am J Respir Crit Care Med 180: 853–60

    Article  PubMed  Google Scholar 

  41. Medland JJ, Ferrans CE (1998) Effectiveness of a structured communication program for family members of patients in an ICU. Am J Crit Care 7(1): 24-9

    PubMed  CAS  Google Scholar 

  42. Tracy MF, Ceronsky C (2001) Creating a collaborative environment to care for complex patients and families. AACN Clin Issues 12: 383–400

    Article  PubMed  CAS  Google Scholar 

  43. Maxton F (1997) Old habits die hard: changing paediatric nurses’ perceptions of families in ICU. Intensive Crit Care Nurs 13: 145–50

    Article  PubMed  CAS  Google Scholar 

  44. Cremer R, Hubert P, Dauger S et al. (2009) Limitations et arrêt des traitements en réanimation pédiatrique: résultats d’une étude multicentrique de 18 mois. Réanimation 18S: S115–S116

    Google Scholar 

  45. Devictor D, Nguyen D (2001) Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units. Crit Care Med 29: 1356–9

    Article  PubMed  CAS  Google Scholar 

  46. Cremer R, Hubert P, Grandbastien B, et al. GFRUP’s study group on forgoing treatments (2011) Prevalence of questioning regarding life-sustaining treatment and time utilisation by forgoing treatment in francophone PICUs. Intensive Care Med 37(10): 1648–55

    Article  PubMed  Google Scholar 

  47. Lindenmeyer E, Lalanne B, Plaindoux S, Reymond J-B (2009) La loi Léonetti: une loi médiatisée? Connaissance et application dans un établissement hospitalier. Journal Européen des Urgences 22, A38

    Article  Google Scholar 

  48. Conférence de consensus HAS (2004) L’accompagnement des personnes en fin de vie et de leurs proches

    Google Scholar 

  49. Hawryluck L, Harvey W, Lemieux-Charles L, Singer P (2002) Consensus guidelines on analgesia and sedation in dying intensive care unit patients. BMC Med Ethics 12: E3

    Article  Google Scholar 

  50. Truog R, Campbell M, Curtis J et al. (2008) Recommendations for end-of-life care in the intensive care unit: A consensus statement by the American College of Critical Care Medicine. Crit Care Med 36: 953–63

    Article  PubMed  Google Scholar 

  51. Campbell M (2008) Psychometric Testing of a Respiratory Distress Observation Scale. Journal of Palliative Medicine 11: 44–50

    Article  PubMed  Google Scholar 

  52. Truog R, Meyer E, Burns J (2006) Toward interventions to improve end-of-life care in the pediatric intensive care unit. Crit Care Med 34: S373–9

    Article  PubMed  Google Scholar 

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Hubert, P., de Saint Blanquat, L. (2013). Considérations éthiques en réanimation pédiatrique. Besoins de l’enfant et de ses parents. Situations de fin de vie. In: Réanimation pédiatrique. Le point sur …. Springer, Paris. https://doi.org/10.1007/978-2-8178-0407-1_18

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  • DOI: https://doi.org/10.1007/978-2-8178-0407-1_18

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