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How Patients Make Decisions with Their Surgeons: The Role of Counseling and Patient Decision Aids

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Difficult Decisions in Thoracic Surgery

Abstract

Recent studies of patient decision making about surgical options that involve making trade-offs between benefits and harms underscore major gaps in decision quality. Following standard counseling, patients’ score D on knowledge tests and F on their understanding of the probabilities of benefits and harms. Moreover, there is a mismatch between the benefits and harms that patients’ value most and the option that is chosen. Patients participate in decision making less than they prefer; some have high levels of decisional discomfort which is an independent predictor of downstream dissatisfaction, regret, and the tendency to blame their doctor for bad outcomes. The underlying mechanisms explaining the poor decision quality with standard counseling is (1) patients’ difficulties recalling facts and understanding probabilities and (2) surgeons’ difficulties judging the values that patients’ place on benefits versus harms.

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References

  1. O’Connor AM, Stacey D, Entwistle V, et al. Decision Aids for People Facing Health Treatment or Screening Decisions [Cochrane Review]. Oxford: Update Software; 2003.

    Google Scholar 

  2. Gattellari M, Ward JE. Men’s reactions to disclosed and undisclosed opportunistic PSA screening for prostate cancer. Med J Aust 2005;182:386–389.

    PubMed  Google Scholar 

  3. Sun Q. Predicting Downstream Effects of High Decisional Conflict: Meta-analysis of the Decisional Conflict Scale [master’s thesis]. Ottawa: University of Ottawa; 2004.

    Google Scholar 

  4. Sackett DL, Straus SE, Richardson WS, et al. Evidence-Based Medicine. How to Practice and Teach EBM. Edinburgh: Churchill Livingstone; 2000.

    Google Scholar 

  5. O’Connor AM, Légaré F, Stacey D. Risk communication in practice: the contribution of decision aids. BMJ 2003;327:736–740

    Article  PubMed  Google Scholar 

  6. Wennberg JE. Unwarranted variations in healthcare delivery: implications for academic medical centres. BMJ 2002;325:961–964.

    Article  PubMed  Google Scholar 

  7. Gafni A, Charles C, Whelan T. The physician-patient encounter: the physician as a perfect agent for the patient versus the informed treatment decision-making model. Soc Sci Med 1998;47:347–354.

    Article  PubMed  CAS  Google Scholar 

  8. Deber RB. Physicians in health care management: 7. The patient-physician partnership: changing roles and the desire for information. CMAJ 1994;151:171–176.

    PubMed  CAS  Google Scholar 

  9. Deber RB. Physicians in health care management: 8. The patient-physician partnership: decision making, problem solving and the desire to participate [review]. CMAJ 1994;151:423–427.

    PubMed  CAS  Google Scholar 

  10. Martin S. ’shared responsibility’ becoming the new medical buzz phrase. CMAJ 2002;167:295.

    PubMed  Google Scholar 

  11. O’Connor AM, Drake ER, Wells GA, et al. A survey of the decision-making needs of Canadians faced with complex health decisions. Health Expect 2003;6:97–109.

    Article  PubMed  Google Scholar 

  12. Briss P, Rimer B, Reilley B, et al. Promoting informed decisions about cancer screening in communities and healthcare systems. Am J Prev Med 2004;26:67–80.

    Article  PubMed  Google Scholar 

  13. Wetzels R, Geest TA, Wensing M, et al. GPs’ views on involvement of older patients: an European qualitative study. Patient Educ Counsel 2004;53:183–188.

    Article  Google Scholar 

  14. Howie JG, Heaney D, Maxwell M. Quality, core values and the general practitioner consultation: Issues of definition, measurement, and delivery. Family Pract 2004;21:458–468.

    Article  CAS  Google Scholar 

  15. Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ 1999;319:766–771.

    PubMed  CAS  Google Scholar 

  16. Edwards A, Elwyn G. How should effectiveness of risk communication to aid patients’ decisions be judged? A review of the literature. Med Decis Making 1999;19:428–434.

    Article  PubMed  CAS  Google Scholar 

  17. Moore C, Collins E, Clay K, et al. Can decision support be successfully integrated into clinical care? Med Decis Making 2005;24:E48.

    Google Scholar 

  18. Davison BJ, Degner L. Empowerment of men newly diagnosed with prostate cancer. Cancer Nurs 1997;20:187–196.

    Article  PubMed  CAS  Google Scholar 

  19. Morgan MW, Deber RB, Llewellyn-Thomas H, et al. Randomized, controlled trial of an interactive videodisc decision aid for patients with ischemic heart disease. J Gen Intern Med 2000;15:685–699.

    Article  PubMed  CAS  Google Scholar 

  20. Magee M. Relationship-based Health Care in the United States, United Kingdom, Canada, Germany, South Africa, and Japan. A Comparative Study of Patient and Physician Perceptions Worldwide. World Medical Association Annual meeting: Patient Safety in Care and Research; Helsinki, Finland, Sept II, 2003.

    Google Scholar 

  21. Kennedy AD. On what basis should the effectiveness of decision aids be judged? Health Expect 2003;6:255–268.

    Article  PubMed  Google Scholar 

  22. IPDAS. International Patient Decision Aid Standards Collaboration. Ottawa: IPDAS; 2005.

    Google Scholar 

  23. O’Connor AM. Validation of a decisional conflict scale. Med Decis Making 1995;15:25–30.

    Article  PubMed  CAS  Google Scholar 

  24. Ratliff A, Angell M, Dow R, et al. What is a good decision? Effect Clin Pract 1999;2:185–197.

    CAS  Google Scholar 

  25. Sepucha KR, Fowler FJ, Mulley AG. Policy support for patient-centered care: the need for measurable improvements in decision quality. Health Affairs 2004.

    Google Scholar 

  26. Barry MJ, Cherkin DC, Chang Y, et al. A randomized trial of a multi-media shared decision-making program for men facing a treatment decision for benign prostatic hyperplasia. Dis Manage Clin Outcomes 1997;1:5–14.

    Article  Google Scholar 

  27. Bernstein SJ, Skarupski KA, Grayson CE, et al. A randomized controlled trial of information-giving to patients referred for coronary angiography: effects on outcomes of care. Health Expect 1998;1:50–61.

    Article  PubMed  Google Scholar 

  28. Dodin S, Légaré F, Daudelin G, et al. Prise de decision en matière d hormonothérapie de remplacement: Essai clinique randomisé. Can Family Physician 2001;47:1586–1593

    CAS  Google Scholar 

  29. O’Connor AM, Wells G, Tugwell P, et al. The effects of an ‘explicit’ values clarification exercise in a woman’s decision aid regarding postmenopausal hormone therapy. Health Expect 1999;2:21–32.

    Article  PubMed  Google Scholar 

  30. Rothert ML, Holmes-Rovner M, Rovner D, et al. An educational intervention as decision support for menopausal women. Res Nurs Health 1997;20:387.

    Article  Google Scholar 

  31. Murray E, Davis H, Tai SS, et al. Randomized controlled trial of an interactive multimedia decision aid on benign prostatic hypertrophy in primary care. BMJ 2001;323:493–496.

    Article  PubMed  CAS  Google Scholar 

  32. Kennedy A, Sculpher MJ, Coulter A, et al. Effects of decision aids for menorrhagia on treatment choices, health outcomes, and costs. A randomized controlled trial. JAMA 2002;288:2701–2708.

    Article  PubMed  Google Scholar 

  33. Barry MJ. Watchful waiting vs. immediate transurethral resection for symptomatic prostatism: the importance of patients’ preferences. JAMA 1988;259:3010–3017.

    Article  PubMed  CAS  Google Scholar 

  34. Whelan T, Sawka C, Levine M, et al. Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node negative breast cancer. J Natl Cancer Inst 2003;95:581–587.

    Article  PubMed  Google Scholar 

  35. Street RLJ, Voigt B, Geyer CJ, et al. Increasing patient involvement in choosing treatment for early breast cancer. Cancer 1995;76:2285.

    Article  Google Scholar 

  36. Deyo RA, Cherkin DC, Weinstein J, et al. Involving patients in clinical decisions: Impact of an interactive video program on use of back surgery. Med Care 2000;38:959–969.

    Article  PubMed  CAS  Google Scholar 

  37. Wennberg JE, Peters PG Jr. Unwarranted variations in the quality of health care: can the law help medicine provide a remedy/remedies? Sepc Law Dig Health Care Law 2004;305:9–25.

    Google Scholar 

  38. Guimond P, Bunn H, O’Connor AM, et al. Validation of a tool to assess health practitioners’ decision support and communication skills. Patient Educ Counsel 2003;50:235–245.

    Article  Google Scholar 

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O’Connor, A.M., Légaré, F., Stacey, D. (2007). How Patients Make Decisions with Their Surgeons: The Role of Counseling and Patient Decision Aids. In: Ferguson, M.K. (eds) Difficult Decisions in Thoracic Surgery. Springer, London. https://doi.org/10.1007/978-1-84628-474-8_5

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  • DOI: https://doi.org/10.1007/978-1-84628-474-8_5

  • Publisher Name: Springer, London

  • Print ISBN: 978-1-84628-384-0

  • Online ISBN: 978-1-84628-474-8

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