Looking into the Crystal Ball: Initiatives from the Sjögren’s Syndrome Foundation That Will Impact Patient Care

Abstract

The Sjögren’s Syndrome Foundation (SSF) has developed and implemented programs critical to the health and well-being of Sjögren’s syndrome (SS) patients worldwide and that will have a profound impact on patients as well as on the diverse range of physicians who care for them. Some of the most recent initiatives include the development of Clinical Practice Guidelines, a Clinical Trials Consortium, and broad-reaching projects to increase professional education and awareness of SS. The development of Clinical Practice Guidelines will delineate, for the first time, guidelines which will lead to better decision-making in treating SS patients. Standardization of care across practices will decrease disease-related morbidity and improve patient quality of life. The launching of a Clinical Trials Consortium in SS will accelerate the availability and accessibility of drugs/biologics/over-the-counter products for treatment of SS. The implementation of numerous professional educational programs will enhance knowledge and awareness of SS on the part of health care providers. The SSF remains committed to expanding and solidifying its leadership role worldwide to improve the lives of SS patients and arm the clinician with the latest and best tools and resources for treating their patients.