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Ethical Issues in Conducting Research on Religion and Spirituality

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Abstract

The conduct of research with human participants that focuses on religion or spirituality raises significant ethical issues. These include identification of communities that may be vulnerable and the development of special protections; the maintenance of confidentiality and privacy in relatively close-knit communities; the avoidance of stigmatization; and appropriate mechanisms for the dissemination of research findings.

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References

  • Antle, B. J., & Regehr, C. (2003). Beyond individual rights and freedoms: Metaethics in social work research. Social Work, 48(1), 135–144.

    Article  Google Scholar 

  • Appelbaum, P., Roth, L., Lidz, C., & Bensens, P. W. W. (1987). False hopes and best data: Consent to research and the therapeutic misconception. Hastings Center Report, 2, 20–24.

    Article  Google Scholar 

  • Aronson Fontes, L. (1998). Ethics in family violence research: Cross-cultural issues. Family Relations, 47(1), 53–61.

    Article  Google Scholar 

  • Auriti, E. (2013). Who can obtain access to research data? Protecting research data against compelled disclosure. NACUA Notes, 11(7). Washington, D.C.: National Association of College and University Attorneys. https://www.calstate.edu/gc/documents/NACUANOTES-WhoCanObtainAccess-to-Research-ProtectingData.pdf. Accessed 19 December 2016.

  • Beauchamp, T. & Childress, J. (1994). Principles of biomedical ethics. New York: Oxford University Press.

    Google Scholar 

  • Davis v. Lhim. (1983). 124 Mich. App. 291, aff’d on rem 147 Mich. App. 8 (1985), rev’d on grounds of government immunity in Canon v. Thumudo, 430 Mich. 326 (1988).

    Google Scholar 

  • De Craemer, W. (1983). A cross-cultural perspective on personhood. Milbank Memorial Fund Quarterly, 61, 19–34.

    Article  Google Scholar 

  • De Vries, R., DeBruin, D. A., & Goodgame, A. (2004). Ethics review of social, behavioral, and economic research: Where should we go from here? Ethics and Behavior, 14(4), 351–368.

    Article  Google Scholar 

  • Denny, C. C., & Grady, C. (2007). Clinical research with economically disadvantaged populations. Journal of Medical Ethics, 33, 382–385.

    Article  Google Scholar 

  • Dresser, R. (2001). Advance directives in dementia research: Promoting autonomy and protecting subjects. IRB: Ethics & Human Research, 23(1), 1–6.

    Google Scholar 

  • Earle v. Kuklo. (1953). 26 N.J. Super. 471 (App. Div.).

    Google Scholar 

  • Ewing v. Goldstein. (2004). 120 Cal. App. 4th 807.

    Google Scholar 

  • Ewing v. Northridge Hospital Medical Center. (2004). 120 Cal. App. 4th 1289.

    Google Scholar 

  • Faden, R. R., & Beauchamp, T. L. (1986). A history and theory of informed consent. Oxford: Oxford University Press.

    Google Scholar 

  • Grady, C. (2001). Money for research participation: Does it jeopardize informed consent? American Journal of Bioethics, 1(2), 40–44.

    Article  Google Scholar 

  • Grady, C. (2005). Payment of clinical research subjects. Journal of Clinical Investigation, 115(7), 1681–1687.

    Article  Google Scholar 

  • Grisso, T., & Appelbaum, P. (1998). Assessing competence to consent to treatment: A guide for physicians and other health professionals. New York: Oxford University Press.

    Google Scholar 

  • Hayes, C. (2011). IRA researchers at Boston College file suit against US govt. Irish Central. http://www.irishcentral.com/news/others-from-boston-college-project-file-separate-suit-to-suppressira-interviews-129168208-237409721.html. Accessed 19 June 2014.

  • International Committee of Medical Journal Editors. (2014). Defining the role of authors and contributors. http://www.icmje.org/recommendations/browse/roles-and-responsibilities/defining-the-role-of-authors-and-contributors.html. Accessed 19 June 2014.

  • Jablonski v. United States. (1983). 712 F.2d 391 (9th Cir.).

    Google Scholar 

  • Kimbrough, D. L. (1995). Taking up serpents: Snake handlers of Eastern Kentucky. Chapel Hill, NC: University of North Carolina Press.

    Google Scholar 

  • Kipnis, K. (2001, March). Vulnerability in research subjects: A bioethical taxonomy. In Ethical and policy issues in research involving human participants. Vol. II: commissioned papers and staff analysis (pp. G-1–G-13). Bethesda, MD: National Bioethics Advisory Commission.

    Google Scholar 

  • Kipnis, K. (2003). Seven vulnerabilities in the pediatric research subject. Theoretical Medicine, 24, 107–120.

    Article  Google Scholar 

  • Largent, E. A., Grady, C., Miller, F. G., & Wertheimer, A. (2012). Money, coercion, and undue inducement: A survey of attitudes about payments to research participants. IRB, 34(1), 1–8.

    Google Scholar 

  • Levine, R. J. (1988). Ethics and regulation of clinical research. New Haven, CT: Yale University Press.

    Google Scholar 

  • Levine, C., Faden, R., Grady, C., Hammerschmidt, D., Eckenwiler, L., & Sugarman, J. (2004). The limitations of “vulnerability” as a protection for human research participants. American Journal of Bioethics, 4(3), 44–49.

    Article  Google Scholar 

  • McIntosh v. Milano. (1979). 168 N.J. Super. 466.

    Google Scholar 

  • National Association of Social Workers. (2008). Code of ethics. http://www.socialworkers.org/pubs/code/code.asp. Accessed 7 July 2014.

  • National Bioethics Advisory Commission. (1998). Research involving persons with mental disorders that may affect decisionmaking capacity, Vol. 1. Rockville, MD: Author.

    Google Scholar 

  • National Bioethics Advisory Commission. (2001). Ethical and policy issues involving human participants (Vol. 1). Rockville, Maryland: U.S. Government Printing Office.

    Google Scholar 

  • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1979). The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research. Washington, D.C.:United States Department of Health, Education, and Welfare [DHEW Pub. No. OS 78-0012].

    Google Scholar 

  • Nuremberg Code. (1946). In K. Lebacqz & R.J. Levine. (1982). Informed consent in human research: Ethical and legal aspects. In W. T. Reich (Ed.). Encyclopedia of bioethics (p. 757). New York: The Free Press.

    Google Scholar 

  • People v. Newman. (1973). 298 N.E.2d 651 (App. Div.).

    Google Scholar 

  • Rawls, J. (1999). A theory of justice (rev ed.). Cambridge, Massachusetts: The Belknap Press.

    Google Scholar 

  • Tarasoff v. Regents of the University of California. (1976). 17 Cal. 3d 425.

    Google Scholar 

  • Thompson v. County of Alameda. (1980). 27 Cal. 3d 741.

    Google Scholar 

  • Wager, E. & Kleinert, S. (2010). Responsible research publication: International standards for authors. A position statement developed at the Second World Conference in Research Integrity, Singapore, July 22–24. http://publicationethics.org/files/International%20standards_authors_for%20website_11_Nov_2011.pdf. Accessed 19 June 2014.

  • Wax, M. L. (1991). The ethics of research in American Indian communities. American Indian Quarterly, 15(4), 431–456.

    Article  Google Scholar 

  • Weijer, C., & Emanuel, E. J. (2000). Protecting communities in biomedical research. Science, 289, 1142–1144.

    Article  Google Scholar 

  • Weinstock, R., Bonnici, D., Seroussi, A., & Leong, G. S. (2014). No duty to warn in California: Now unambiguously solely a duty to protect. Journal of the American Academy of Psychiatry and the Law, 42(1), 101–108.

    Google Scholar 

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Correspondence to Sana Loue .

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Loue, S. (2017). Ethical Issues in Conducting Research on Religion and Spirituality. In: Handbook of Religion and Spirituality in Social Work Practice and Research. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-7039-1_22

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  • DOI: https://doi.org/10.1007/978-1-4939-7039-1_22

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