Skip to main content

The Internet, Social Media, and Health Decision-Making

  • Chapter
  • First Online:
Handbook of Health Decision Science

Abstract

The Internet has fundamentally changed healthcare and health decision-making . For patients like JoAnne struggling to make sense of a new diagnosis, the Internet provides a wealth of information on everything from the etiology of disease to its genetic underpinnings, details on its manifestation and symptom progression, and effective treatments. An encyclopedic amount of information is available literally with just a few clicks of the keyboard. There are thousands of health information websites from hospitals and hospital systems, HMOs, federal and state government agencies, academic institutions, nonprofit organizations, pharmaceutical companies and other commercial entities, and research institutes, to name just a few. And it is not just text-based information: there are photos and videos and bar charts and graphs for every possible medical condition one can name. There are interactive symptom checkers, pill identification tools, body mass calculators, quizzes and assessments, and even games for health. With this dizzying array of informational resources, it might be easy to envision personal health decisions being made in isolation, by individuals sitting alone in front of their computer, parsing through a massive amount of information. However, available data suggests that even with the vast amount of information available online, people appear to make decisions the way they always haveā€”in the context of social relations.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 54.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Adams, S. A. (2010). Revisiting the online health information reliability debate in the wake of ā€œweb 2.0ā€: An inter-disciplinary literature and website review. International Journal of Medical Informatics, 79(6), 391ā€“400. doi:10.1016/j.ijmedinf.2010.01.006

    Google ScholarĀ 

  • Adler, M. J. (1997). Aristotle for everybody. Touchstone.

    Google ScholarĀ 

  • An, L. C., Perry, C. L., Lein, E. B., Klatt, C., Farley, D. M., Bliss, R. L. ā€¦ Ehlinger, E. P. (2006). Strategies for increasing adherence to an online smoking cessation intervention for college students. Nicotine & Tobacco Research, 8(Suppl 1), S7ā€“12.

    Google ScholarĀ 

  • Barak, A., Boniel-Nissim, M., & Suler, J. (2008). Fostering empowerment in online support groups. Computers in Human Behavior, 24(5), 1867ā€“1883. doi:10.1016/j.chb.2008.02.004

    Google ScholarĀ 

  • Barker, K. K. (2008). Electronic support groups, patient-consumers, and medicalization: The case of contested illness. Journal of Health and Social Behavior, 49(1), 20ā€“36.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Barnett, M. L., Landon, B. E., Oā€™Malley, A. J., Keating, N. L., & Christakis, N. A. (2011). Mapping physician networks with self-reported and administrative data. Health Services Research, 46(5), 1592ā€“1609. doi:10.1111/j.1475-6773.2011.01262.x

    Google ScholarĀ 

  • Bender, J. L., Oā€™Grady, L., & Jadad, A. R. (2008). Supporting cancer patients through the continuum of care: a view from the age of social networks and computer-mediated communication. Current Oncology, 15(Suppl 2), s107ā€“es42.

    Google ScholarĀ 

  • Berg, S. (2005, July/August). The well-informed patient: A new breed of health care consumer. Asthma Magazine, 28ā€“30.

    Google ScholarĀ 

  • Berkman, L. F. (1995). The role of social relations in health promotion. Psychosomatic Medicine, 57(3), 245ā€“254.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Berkman, L. F., Glass, T., Brissette, I., & Seeman, T. E. (2000). From social integration to health: Durkheim in the new millennium. Social Science and Medicine, 51(6), 843ā€“857. (S0277953600000654 [pii]).

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Bock, B. C., Graham, A. L., Whiteley, J. A., & Stoddard, J. L. (2008). A review of web-assisted tobacco interventions (WATIs). Journal of Medical Internet Research, 10(5), e39. doi:10.2196/jmir.989

    Google ScholarĀ 

  • Bock, B., Graham, A., Sciamanna, C., Krishnamoorthy, J., Whiteley, J., Carmona-Barros, R., et al. (2004). Smoking cessation treatment on the Internet: content, quality, and usability. Nicotine & Tobacco Research, 6(2), 207ā€“219. doi:10.1080/14622200410001676332

    Google ScholarĀ 

  • Bond, R. M., Fariss, C. J., Jones, J. J., Kramer, A. D., Marlow, C., Settle, J. E., et al. (2012). A 61-million-person experiment in social influence and political mobilization. Nature, 489(7415), 295ā€“298. doi:10.1038/nature11421

    Google ScholarĀ 

  • Boothroyd, R. I., & Fisher, E. B. (2010). Peers for progress: promoting peer support for health around the world. Family Practice, 27(Suppl 1), i62ā€“68. doi:10.1093/fampra/cmq017

    Google ScholarĀ 

  • Boyd, D. M., & Ellison, N. B. (2008). Social Network Sites: Definition, History, and Scholarship. Journal of Computer-Mediated Communication, 13, 210ā€“230. doi:10.1111/j.1083-6101.2007.00393.x

    Google ScholarĀ 

  • Brenner, J., & Smith, A. (2013). 72% of online adults are social networking site users. Washington, D.C.: Pew Research Centerā€™s Internet & American Life Project.

    Google ScholarĀ 

  • Brownell, K. D., Heckerman, C. L., Westlake, R. J., Hayes, S. C., & Monti, P. M. (1978). The effect of couples training and partner co-operativeness in the behavioral treatment of obesity. Behaviour Research and Therapy, 16(5), 323ā€“333. (0005-7967(78)90002-5 [pii]).

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Brownson, C. A., & Heisler, M. (2009). The role of peer support in diabetes care and self-management. Patient, 2(1), 5ā€“17. doi:10.2165/01312067-200902010-00002

    Google ScholarĀ 

  • Bruns, A. (2008). Blogs, wikipedia, second life and beyond: From production to produsage. New York: Peter Lang.

    Google ScholarĀ 

  • Bull, S.S., Levine, D.K., Black, S.R., Schmiege, S.J., & Santelli, J. (2012). Social media-delivered sexual health intervention: A cluster randomized controlled trial. Am J Prev Med, 43(5).

    Google ScholarĀ 

  • Car, J., Lang, B., Colledge, A., Ung, C., & Majeed, A. (2011). Interventions for enhancing consumersā€™ online health literacy. Cochrane Database Syst Rev(6), CD007092. doi:10.1002/14651858.CD007092.pub2

  • Carlbring, P., Furmark, T., Steczko, J., Ekselius, L., & Andersson, G. (2006). An open study of Internet-based bibliotherapy with minimal therapist contact via email for social phobia. Clinical Psychologist, 10, 30ā€“38.

    ArticleĀ  Google ScholarĀ 

  • Carlbring, P., Nilsson-Ihrfelt, E., Waara, J., Kollenstam, C., Buhrman, M., Kaldo, V., et al. (2005). Treatment of panic disorder: live therapy vs. self-help via the Internet. Behaviour Research and Therapy, 43(10), 1321ā€“1333. doi:10.1016/j.brat.2004.10.002

    Google ScholarĀ 

  • Cavallo, D.N., Tate, D.F., Ries, A.V., Brown, J.D., DeVellis, R.F., & Ammerman, A.S. (2012). Effıcacy of an online social network based physical activity intervention: A randomized controlled trial. Am J Prev Med, 43(5).

    Google ScholarĀ 

  • Centola, D. (2010). The spread of behavior in an online social network experiment. Science, 329(5996), 1194ā€“1197. doi:10.1126/science.1185231

    Google ScholarĀ 

  • Chou, W. Y., Hunt, Y. M., Beckjord, E. B., Moser, R. P., & Hesse, B. W. (2009). Social media use in the United States: Implications for health communication. Journal of Medical Internet Research, 11(4), e48. doi:10.2196/jmir.1249

    Google ScholarĀ 

  • Chou, W. Y., Prestin, A., Lyons, C., & Wen, K. Y. (2013). Web 2.0 for health promotion: Reviewing the current evidence. American Journal of Public Health, 103(1), e9ā€“18. doi:10.2105/AJPH.2012.301071

    Google ScholarĀ 

  • Christakis, N. A. (2004). Social networks and collateral health effects. BMJ, 329(7459), 184ā€“185. doi:10.1136/bmj.329.7459.184

    Google ScholarĀ 

  • Christakis, N. A., & Fowler, J. H. (2008). The collective dynamics of smoking in a large social network. New England Journal of Medicine, 358(21), 2249ā€“2258. doi:10.1056/NEJMsa0706154

    Google ScholarĀ 

  • Cobb, N. K., & Graham, A. L. (2006). Characterizing Internet searchers of smoking cessation information. Journal of Medical Internet Research, 8(3), e17.

    ArticleĀ  PubMedĀ  PubMed CentralĀ  Google ScholarĀ 

  • Cobb, N. K., Graham, A. L., & Abrams, D. B. (2010). Social network structure of a large online community for smoking cessation. American Journal of Public Health, 100(7), 1282ā€“1289. doi:10.2105/AJPH.2009.165449

    Google ScholarĀ 

  • Cobb, N. K., Graham, A. L., Bock, B. C., Papandonatos, G., & Abrams, D. B. (2005). Initial evaluation of a real-world Internet smoking cessation system. Nicotine & Tobacco Research, 7(2), 207ā€“216.

    ArticleĀ  Google ScholarĀ 

  • Cobb, N. K., Graham, A. L., Byron, M. J., Niaura, R. S., & Abrams, D. B. (2011). Online social networks and smoking cessation: A scientific research agenda. Journal of Medical Internet Research, 13(4), e119. doi:10.2196/jmir.1911

    Google ScholarĀ 

  • Cobb, N. K., & Graham, A. L. (2012). Health behavior interventions in the age of Facebook. American Journal of Preventive Medicine, 43(5), 571ā€“572.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Cobb, N. K., Jacobs, M. A., Saul, J., Wileyto, P., & Graham, A. L. (2013a). Diffusion of an evidence-based smoking cessation intervention through facebook: A randomized controlled trial study protocol. BMJ Open.

    Google ScholarĀ 

  • Cobb, N. K., Mays, D., & Graham, A. L. (2013b). Sentiment analysis to determine the impact of online messages on smokersā€™ choices to use varenicline. Journal of the National Cancer Institute Monographs, 47, 224ā€“230. doi:10.1093/jncimonographs/lgt020

    Google ScholarĀ 

  • Cohen, S. (1988). Psychosocial models of the role of social support in the etiology of physical disease. Health Psychology, 7(3), 269ā€“297.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Cohen, S., & Janicki-Deverts, D. (2009). Can we improve our physical health by altering our social networks? Perspectives on Psychological Science, 4(4), 375ā€“378. doi:10.1111/j.1745-6924.2009.01141.x

    Google ScholarĀ 

  • Cohen, S., & Lemay, E. P. (2007). Why would social networks be linked to affect and health practices? Health Psychology, 26(4), 410ā€“417. doi:10.1037/0278-6133.26.4.410

    Google ScholarĀ 

  • Crocco, A. G., Villasis-Keever, M., & Jadad, A. R. (2002a). Analysis of cases of harm associated with use of health information on the internet. JAMA, 287(21), 2869ā€“2871.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Crocco, A. G., Villasis-Keever, M., & Jadad, A. R. (2002b). Two wrongs donā€™t make a right: Harm aggravated by inaccurate information on the Internet. Pediatrics, 109(3), 522ā€“523.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Cunningham, J. A., van Mierlo, T., & Fournier, R. (2008). An online support group for problem drinkers: AlcoholHelpCenter.net. Patient Education and Counseling, 70(2), 193ā€“198. doi:10.1016/j.pec.2007.10.003

    Google ScholarĀ 

  • Dale, J. R., Williams, S. M., & Bowyer, V. (2012). What is the effect of peer support on diabetes outcomes in adults?. A systematic review: Diabet Med. doi:10.1111/j.1464-5491.2012.03749.x.

    Google ScholarĀ 

  • deBronkart, D. (2011). TED Talks: Meet e-Patient Dave. TEDxMaastricht. Retrieved from http://www.ted.com/talks/dave_debronkart_meet_e_patient_dave.html

  • Demiris, G. (2006). The diffusion of virtual communities in health care: concepts and challenges. Patient Education and Counseling, 62(2), 178ā€“188. doi:10.1016/j.pec.2005.10.003

    Google ScholarĀ 

  • Dickerson, S. S., Flaig, D. M., & Kennedy, M. C. (2000). Therapeutic connection: Help seeking on the Internet for persons with implantable cardioverter defibrillators. Heart and Lung, 29(4), 248ā€“255. doi:10.1067/mhl.2000.108326

    Google ScholarĀ 

  • Duggan, M., & Smith, A. (2014). Social media update 2013 Pew Internet and American Life Project. Washington, D.C.: Pew Research Center.

    Google ScholarĀ 

  • Eichhorn, K. C. (2008). Soliciting and providing social support over the internet: An investigation of online eating disorder support groups. Journal of Computer-Mediated Communication, 14(1), 67ā€“78. doi:10.1111/j.1083-6101.2008.01431.x

    Google ScholarĀ 

  • Ellison, N., Steinfield, C., & Lampe, C. (2007). The benefits of Facebook ā€œfriendsā€: Exploring the relationship between college studentsā€™ use of online social networks and social capital. Journal of Computer-Mediated Communication, 12(3), article 1.

    Google ScholarĀ 

  • Emmons, K. M., Barbeau, E. M., Gutheil, C., Stryker, J. E., & Stoddard, A. M. (2007). Social influences, social context, and health behaviors among working-class, multi-ethnic adults. Health Education and Behavior Journal, 34(2), 315ā€“334. doi:10.1177/1090198106288011

    Google ScholarĀ 

  • Eysenbach, G. (2005). The law of attrition. Journal of Medical Internet Research, 7(1), e11. doi:10.2196/jmir.7.1.e11

    Google ScholarĀ 

  • Eysenbach, G. (2008). Medicine 2.0: Social networking, collaboration, participation, apomediation, and openness. Journal of Medical Internet Research, 10(3), e22. doi:10.2196/jmir.1030

    Google ScholarĀ 

  • Eysenbach, G., Kohler, C., Yihune, G., Lampe, K., Cross, P., & Brickley, D. (2001). A framework for improving the quality of health information on the world-wide-web and bettering public (e-)health: The MedCERTAIN approach. Medinfo, 10(Pt 2), 1450ā€“1454.

    Google ScholarĀ 

  • Eysenbach, G., Powell, J., Englesakis, M., Rizo, C., & Stern, A. (2004). Health related virtual communities and electronic support groups: Systematic review of the effects of online peer to peer interactions. BMJ, 328(7449), 1166. doi:10.1136/bmj.328.7449.1166

    Google ScholarĀ 

  • Eysenbach, G., Powell, J., Kuss, O., & Sa, E. R. (2002). Empirical studies assessing the quality of health information for consumers on the world wide web: A systematic review. JAMA, 287(20), 2691ā€“2700.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Ferguson, T., & The e-Patient Scholars Working Group. (2007). e-patients: How they can help us heal health care.

    Google ScholarĀ 

  • Ferri, M., Amato, L., & Davoli, M. (2006). Alcoholics Anonymous and other 12-step programmes for alcohol dependence. Cochrane Database Syst Rev(3), CD005032. doi:10.1002/14651858.CD005032.pub2

  • Fox, S. (2011). Peer-to-peer healthcare. http://pewinternet.org/Reports/2011/P2PHealthcare.aspx. Archived at: http://www.webcitation.org/69cRxwJlK.

  • Fox, S., & Brenner, J. (2012). Family Caregivers Online. Washington, DC: Pew Internet & American Life Project.

    Google ScholarĀ 

  • Fox, S., & Duggan, M. (2013). Health Online 2013: Pew Research Centerā€™s Internet & American Life Project.

    Google ScholarĀ 

  • Fox, S., & Jones, S. (2009). The social life of health information: Americansā€™ pursuit of health takes places within a widening network of both online and offline sources. http://www.pewinternet.org/~/media//Files/Reports/2009/PIP_Health_2009.pdf. Archived at: http://www.webcitation.org/67LNe4tne

  • Frost, J. H., & Massagli, M. P. (2008). Social uses of personal health information within PatientsLikeMe, an online patient community: What can happen when patients have access to one anotherā€™s data. Journal of Medical Internet Research, 10(3), e15. doi:10.2196/jmir.1053

    Google ScholarĀ 

  • Frost, J. H., Massagli, M. P., Wicks, P., & Heywood, J. (2008). How the Social Web Supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics. AMIA Annu Symp Proc, 217ā€“221.

    Google ScholarĀ 

  • George, D. R., Dellasega, C., Whitehead, M. M., & Bordon, A. (2013). Facebook-based stress management resources for first-year medical students: A multi-method evaluation. Computers in Human Behavior, 29(3), 559ā€“562.

    ArticleĀ  Google ScholarĀ 

  • Graham, A. L., & Abrams, D. B. (2005). Reducing the cancer burden of lifestyle factors: Opportunities and challenges of the Internet. Journal of Medical Internet Research, 7(3), e26.

    ArticleĀ  PubMedĀ  PubMed CentralĀ  Google ScholarĀ 

  • Graham, A. L., Bock, B. C., Cobb, N. K., Niaura, R., & Abrams, D. B. (2006a). Characteristics of smokers reached and recruited to an internet smoking cessation trial: A case of denominators. Nicotine & Tobacco Research, 8(Suppl 1), S43ā€“S48.

    ArticleĀ  Google ScholarĀ 

  • Graham, A. L., Cha, S., Papandonatos, G. D., Cobb, N. K., Mushro, A., Fang, Y., et al. (2013). Improving adherence to web-based cessation programs: A randomized controlled trial study protocol. Trials, 14(48). doi:10.1186/1745-6215-14-48

    Google ScholarĀ 

  • Graham, A. L., Cobb, N. K., Papandonatos, G. D., Moreno, J. L., Kang, H., Tinkelman, D. G., et al. (2011a). A randomized trial of Internet and telephone treatment for smoking cessation. Archives of Internal Medicine, 171(1), 46ā€“53. doi:10.1001/archinternmed.2010.451

  • Graham, A. L., & Papandonatos, G. D. (2008). Reliability of internet-versus telephone-administered questionnaires in a diverse sample of smokers. Journal of Medical Internet Research, 10(1), e8. doi:10.2196/jmir.987

    Google ScholarĀ 

  • Graham, A. L., Papandonatos, G. D., Bock, B. C., Cobb, N. K., Baskin-Sommers, A., Niaura, R., et al. (2006b). Internet- vs. telephone-administered questionnaires in a randomized trial of smoking cessation. Nicotine & Tobacco Research, 8(Suppl 1), S49ā€“S57.

    ArticleĀ  Google ScholarĀ 

  • Graham, A. L., Papandonatos, G. D., Kang, H., Moreno, J. L., & Abrams, D. B. (2011b). Development and validation of the online social support for smokers scale. Journal of Medical Internet Research, 13(3), e69. doi:10.2196/jmir.1801

    Google ScholarĀ 

  • Granovetter, M. S. (1973). The strength of weak ties. American Journal of Sociology, 78(6), 1360ā€“1380.

    ArticleĀ  Google ScholarĀ 

  • Greenberg, L., Dā€™Andrea, G., & Lorence, D. (2004). Setting the public agenda for online health search: a white paper and action agenda. Journal of Medical Internet Research, 6(2), e18. doi:10.2196/jmir.6.2.e18

    Google ScholarĀ 

  • Griffiths, K. M., Calear, A. L., & Banfield, M. (2009a). Systematic review on Internet Support Groups (ISGs) and depression (1): Do ISGs reduce depressive symptoms? Journal of Medical Internet Research, 11(3), e40. doi:10.2196/jmir.1270

    Google ScholarĀ 

  • Griffiths, K. M., Calear, A. L., Banfield, M., & Tam, A. (2009b). Systematic review on Internet Support Groups (ISGs) and depression (2): What is known about depression ISGs? Journal of Medical Internet Research, 11(3), e41. doi:10.2196/jmir.1303

    Google ScholarĀ 

  • Groh, D. R., Jason, L. A., & Keys, C. B. (2008). Social network variables in alcoholics anonymous: A literature review. Clinical Psychology Review, 28(3), 430ā€“450. doi:10.1016/j.cpr.2007.07.014

    Google ScholarĀ 

  • Gruder, C. L., Mermelstein, R. J., Kirkendol, S., Hedeker, D., Wong, S. C., Schreckengost, J. ā€¦ Miller, T. Q. (1993). Effects of social support and relapse prevention training as adjuncts to a televised smoking-cessation intervention. Journal of Consulting and Clinical Psychology, 61(1), 113ā€“120.

    Google ScholarĀ 

  • Gustafson, D. H., Hawkins, R., Boberg, E., Pingree, S., Serlin, R. E., Graziano, F., et al. (1999). Impact of a patient-centered, computer-based health information/support system. American Journal of Preventive Medicine, 16(1), 1ā€“9.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Gustafson, D. H., Hawkins, R., Pingree, S., McTavish, F., Arora, N. K., Mendenhall, J., et al. (2001). Effect of computer support on younger women with breast cancer. Journal of General Internal Medicine, 16(7), 435ā€“445 (jgi00332 [pii]).

    Google ScholarĀ 

  • Heffner, R. (2012, July 4, 2012). The Lemon of Illness and the Demand for Lemonade: An Interview with Dr. Jessie Gruman. Richard Heffnerā€™s Open Mind. from http://www.thirteen.org/openmind/health/the-lemon-of-illness-and-the-demand-for-lemonade/2603/

  • Hill, W., Weinert, C., & Cudney, S. (2006). Influence of a computer intervention on the psychological status of chronically ill rural women: Preliminary results. Nursing Research, 55(1), 34ā€“42. 00006199-200601000-00005 [pii].

    ArticleĀ  PubMedĀ  PubMed CentralĀ  Google ScholarĀ 

  • Hoey, L. M., Ieropoli, S. C., White, V. M., & Jefford, M. (2008). Systematic review of peer-support programs for people with cancer. Patient Education and Counseling, 70(3), 315ā€“337. doi:10.1016/j.pec.2007.11.016

    Google ScholarĀ 

  • Holt-Lunstad, J., Smith, T. B., & Layton, J. B. (2010). Social relationships and mortality risk: A meta-analytic review. PLoS Med, 7(7), e1000316. doi:10.1371/journal.pmed.1000316

    Google ScholarĀ 

  • House, J. S., & Kahn, R. L. (1985). Measures and concepts of social support. In S. Cohen & S. L. Syme (Eds.), Social support and health (pp. 83ā€“108). Orlando: Academic Press.

    Google ScholarĀ 

  • House, J. S., Landis, K. R., & Umberson, D. (1988). Social relationships and health. Science, 241(4865), 540ā€“545.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Houston, T. K., Cooper, L. A., & Ford, D. E. (2002). Internet support groups for depression: A 1-year prospective cohort study. American Journal of Psychiatry, 159(12), 2062ā€“2068.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Hu, X., Bell, R. A., Kravitz, R. L., & Orrange, S. (2012). the prepared patient: Information seeking of online support group members before their medical appointments. Journal of Health Communication. doi:10.1080/10810730.2011.650828

    Google ScholarĀ 

  • Hwang, K. O., Ottenbacher, A. J., Graham, A. L., Thomas, E. J., Street, R. L, Jr., & Vernon, S. W. (2013). Online narratives and peer support for colorectal cancer screening: A pilot randomized trial. American Journal of Preventive Medicine, 45(1), 98ā€“107. doi:10.1016/j.amepre.2013.02.024

    Google ScholarĀ 

  • Hwang, K. O., Ottenbacher, A. J., Green, A. P., Cannon-Diehl, M. R., Richardson, O., Bernstam, E. V., et al. (2010). Social support in an Internet weight loss community. International Journal of Medical Informatics, 79(1), 5ā€“13. doi:10.1016/j.ijmedinf.2009.10.003

    Google ScholarĀ 

  • Hwang, K. O., Ottenbacher, A. J., Lucke, J. F., Etchegaray, J. M., Graham, A. L., Thomas, E. J., et al. (2011). Measuring social support for weight loss in an internet weight loss community. Journal of Health Communication, 16(2), 198ā€“211. doi:10.1080/10810730.2010.535106

    Google ScholarĀ 

  • Hwang, K. O., Trickey, A. W., Graham, A. L., Thomas, E. J., Street, R. L., Jr., Kraschnewski, J. L., & Vernon, S. W. (2012). Acceptability of narratives to promote colorectal cancer screening in an online community. Preventive Medicine, 54(6), 405ā€“407. doi:10.1016/j.ypmed.2012.03.018

    Google ScholarĀ 

  • Idriss, S. Z., Kvedar, J. C., & Watson, A. J. (2009). The role of online support communities: benefits of expanded social networks to patients with psoriasis. Archives of Dermatology, 145(1), 46ā€“51. doi:10.1001/archdermatol.2008.529

  • Jain, V., & Raut, D. K. (2011). Medical literature search dot com. Indian Journal of Dermatology Venereology and Leprology, 77(2), 135ā€“140. doi:10.4103/0378-6323.77451

    Google ScholarĀ 

  • Japuntich, S. J., Zehner, M. E., Smith, S. S., Jorenby, D. E., Valdez, J. A., Fiore, M. C., et al. (2006). Smoking cessation via the internet: A randomized clinical trial of an internet intervention as adjuvant treatment in a smoking cessation intervention. Nicotine & Tobacco Research, 8(Suppl 1), S59ā€“67.

    Google ScholarĀ 

  • Johnsen, J. A., Rosenvinge, J. H., & Gammon, D. (2002). Online group interaction and mental health: An analysis of three online discussion forums. Scandinavian Journal of Psychology, 43(5), 445ā€“449.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Joshi, M. P., Bhangoo, R. S., & Kumar, K. (2011). Quality of nutrition related information on the internet for osteoporosis patients: a critical review. Technology and Health Care, 19(6), 391ā€“400. doi:10.3233/THC-2011-0643

  • Kaicker, J., Debono, V. B., Dang, W., Buckley, N., & Thabane, L. (2010). Assessment of the quality and variability of health information on chronic pain websites using the DISCERN instrument. BMC Medicine, 8, 59. doi:10.1186/1741-7015-8-59

  • Kang, S. H., & Bloom, J. R. (1993). Social support and cancer screening among older black Americans. Journal of the National Cancer Institute, 85(9), 737ā€“742.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Kernot, J., Olds, T., Lewis, L. K., & Maher, C. (2013). Effectiveness of a facebook-delivered physical activity intervention for post-partum women: A randomized controlled trial protocol. BMC Public Health, 13, 518. doi:10.1186/1471-2458-13-518

  • Kontos, E. Z., Emmons, K. M., Puleo, E., & Viswanath, K. (2010). Communication inequalities and public health implications of adult social networking site use in the United States. Journal of Health Communication, 15(Suppl 3), 216ā€“235. doi:10.1080/10810730.2010.522689

    Google ScholarĀ 

  • Korda, H., & Itani, Z. (2011). Harnessing Social Media for Health Promotion and Behavior Change. Health Promotion Practice, doi:10.1177/1524839911405850

    Google ScholarĀ 

  • Kownacki, R. J., & Shadish, W. R. (1999). Does Alcoholics Anonymous work? The results from a meta-analysis of controlled experiments. Substance Use and Misuse, 34(13), 1897ā€“1916.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Kummervold, P. E., Gammon, D., Bergvik, S., Johnsen, J. A., Hasvold, T., & Rosenvinge, J. H. (2002). Social support in a wired world: Use of online mental health forums in Norway. Nordic Journal of Psychiatry, 56(1), 59ā€“65. doi:10.1080/08039480252803945

    Google ScholarĀ 

  • Lazer, D., Pentland, A., Adamic, L., Aral, S., Barabasi, A. L., Brewer, D., et al. (2009). Social science. Computational social science. Science, 323(5915), 721ā€“723. doi:10.1126/science.1167742

    Google ScholarĀ 

  • Leggatt-Cook, C., & Chamberlain, K. (2011). Blogging for weight loss: personal accountability, writing selves, and the weight-loss blogosphere. Sociology of Health & Illness. doi:10.1111/j.1467-9566.2011.01435.x

    Google ScholarĀ 

  • Lichtenstein, E., Glasgow, R. E., & Abrams, D. B. (1986). Social support in smoking cessation: In search of effective interventions. Behavior Therapy, 17(5), 607ā€“619. doi:10.1016/S0005-7894(86)80098-3

    Google ScholarĀ 

  • Lorig, K. R., Laurent, D. D., Deyo, R. A., Marnell, M. E., Minor, M. A., & Ritter, P. L. (2002). Can a Back Pain E-mail Discussion Group improve health status and lower health care costs?: A randomized study. Archives of Internal Medicine, 162(7), 792ā€“796.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • May, S., & West, R. (2000). Do social support interventions (ā€œbuddy systemsā€) aid smoking cessation? A review. Tob Control, 9(4), 415ā€“422.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • MayoClinic Admin. (2011). Mayo Clinic launches social network to connect global Mayo Clinic community. http://socialmedia.mayoclinic.org/2011/07/05/mayo-clinic-launches-social-network-to-connect-global-mayo-clinic-community/

  • Meier, A., Lyons, E. J., Frydman, G., Forlenza, M., & Rimer, B. K. (2007). How cancer survivors provide support on cancer-related Internet mailing lists. Journal of Medical Internet Research, 9(2), e12. doi:10.2196/jmir.9.2.e12

  • Mermelstein, R., Cohen, S., Lichtenstein, E., Baer, J. S., & Kamarck, T. (1986). Social support and smoking cessation and maintenance. Journal of Consulting and Clinical Psychology, 54(4), 447ā€“453.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Mermelstein, R., Lichtenstein, E., & McIntyre, K. (1983). Partner support and relapse in smoking-cessation programs. Journal of Consulting and Clinical Psychology, 51(3), 465ā€“466.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Moorhead, S. A., Hazlett, D. E., Harrison, L., Carroll, J. K., Irwin, A., & Hoving, C. (2013). A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. Journal of Medical Internet Research, 15(4), e85. doi:10.2196/jmir.1933

    Google ScholarĀ 

  • Murray, E., Lo, B., Pollack, L., Donelan, K., Catania, J., Lee, K., et al. (2003). The impact of health information on the Internet on health care and the physician-patient relationship: National U.S. survey among 1.050 U.S. physicians. Journal of Medical Internet Research, 5(3), e17. doi:10.2196/jmir.5.3.e17

    Google ScholarĀ 

  • Muthukumarasamy, S., Osmani, Z., Sharpe, A., & England, R. J. (2012). Quality of information available on the World Wide Web for patients undergoing thyroidectomy: Review. Journal of Laryngology and Otology, 126(2), 116ā€“119. doi:10.1017/S0022215111002246

    Google ScholarĀ 

  • Namkoong, K., DuBenske, L. L., Shaw, B. R., Gustafson, D. H., Hawkins, R. P., Shah, D. V., et al. (2012). Creating a bond between caregivers online: Effect on caregiversā€™ coping strategies. Journal of Health Communication, 17(2), 125ā€“140. doi:10.1080/10810730.2011.585687

    Google ScholarĀ 

  • Napolitano, M. A., Hayes, S., Bennett, G. G., Ives, A. K., & Foster, G. D. (2013). Using Facebook and text messaging to deliver a weight loss program to college students. Obesity (Silver Spring), 21(1), 25ā€“31. doi:10.1002/oby.20232

    Google ScholarĀ 

  • Oā€™Grady, L., & Jadad, A. (2010, November 8). Shifting from shared to collaborative decision making: A change in thinking and doing. Journal of Participatory Medicine, 2.

    Google ScholarĀ 

  • Park, E. W., Schultz, J. K., Tudiver, F., Campbell, T., & Becker, L. (2004). Enhancing partner support to improve smoking cessation. Cochrane Database of Systematic Reviews (3), CD002928.

    Google ScholarĀ 

  • Peterson, G., Aslani, P., & Williams, K. A. (2003). How do consumers search for and appraise information on medicines on the Internet? A qualitative study using focus groups. Journal of Medical Internet Research, 5(4), e33. doi:10.2196/jmir.5.4.e33

    Google ScholarĀ 

  • Pew Internet & American Life Project. (2013). Demographics of internet users: Pew Research Centerā€™s Internet & American Life Project Spring Tracking Survey, April 17ā€“May 19, 2013. Retrieved September 13, 2013, from http://www.pewinternet.org/Static-Pages/Trend-Data-%28Adults%29/Whos-Online.aspx. Archived at http://www.webcitation.org/6JedVxUVN

  • Poirier, J., & Cobb, N. K. (2012). Social influence as a driver of engagement in a web-based health intervention. Journal of Medical Internet Research, 14(1), e36. doi:10.2196/jmir.1957

    Google ScholarĀ 

  • Preyde, M., & Ardal, F. (2003). Effectiveness of a parent ā€œbuddyā€ program for mothers of very preterm infants in a neonatal intensive care unit. CMAJ, 168(8), 969ā€“973.

    PubMedĀ  PubMed CentralĀ  Google ScholarĀ 

  • PricewaterhouseCoopers, Health Research Institute. (2012). Social media ā€œlikesā€ healthcare from marketing to social business.

    Google ScholarĀ 

  • Rao, N. R., Mohapatra, M., Mishra, S., & Joshi, A. (2012). Evaluation of dengue-related health information on the internet. Perspect Health Inf Manag, 9, 1c.

    PubMedĀ  PubMed CentralĀ  Google ScholarĀ 

  • Richardson, A., Graham, A. L., Cobb, N., Xiao, H., Mushro, A., Abrams, D., & Vallone, D. (2013). Engagement promotes abstinence in a web-based cessation intervention: cohort study. Journal of Medical Internet Research, 15(1), e14. doi:10.2196/jmir.2277

    Google ScholarĀ 

  • Rimer, B. K., Lyons, E. J., Ribisl, K. M., Bowling, J. M., Golin, C. E., Forlenza, M. J., & Meier, A. (2005). How new subscribers use cancer-related online mailing lists. Journal of Medical Internet Research, 7(3), e32. doi:10.2196/jmir.7.3.e32

    Google ScholarĀ 

  • Robinson, T. N., Patrick, K., Eng, T. R., & Gustafson, D. (1998). An evidence-based approach to interactive health communication: A challenge to medicine in the information age. Science Panel on Interactive Communication and Health. JAMA, 280(14), 1264ā€“1269.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Schwarzer, R., & Satow, L. (2012). Online intervention engagement predicts smoking cessation. Preventive Medicine. doi:10.1016/j.ypmed.2012.07.006

    Google ScholarĀ 

  • Schwitzer, G. (2002). A review of features in Internet consumer health decision-support tools. Journal of Medical Internet Research, 4(2), E11. doi:10.2196/jmir.4.2.e11

    Google ScholarĀ 

  • Seeman, T. E. (1996). Social ties and health: The benefits of social integration. Annals of Epidemiology, 6(5), 442ā€“451. S1047279796000956 [pii].

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Selby, P., van Mierlo, T., Voci, S. C., Parent, D., & Cunningham, J. A. (2010). Online social and professional support for smokers trying to quit: an exploration of first time posts from 2562 members. Journal of Medical Internet Research, 12(3), e34. doi:10.2196/jmir.1340

    Google ScholarĀ 

  • Shahar, S., Shirley, N., & Noah, S. A. (2013). Quality and accuracy assessment of nutrition information on the Web for cancer prevention. Informatics for Health and Social Care, 38(1), 15ā€“26. doi:10.3109/17538157.2012.710684

    Google ScholarĀ 

  • Shaw, B. R., McTavish, F., Hawkins, R., Gustafson, D. H., & Pingree, S. (2000). Experiences of women with breast cancer: exchanging social support over the CHESS computer network. Journal of Health Communication, 5(2), 135ā€“159. doi:10.1080/108107300406866

  • Smithson, J., Sharkey, S., Hewis, E., Jones, R. B., Emmens, T., Ford, T., & Owens, C. (2011). Membership and boundary maintenance on an online self-harm forum. Qualitative Health Research, 21(11), 1567ā€“1575. doi:10.1177/1049732311413784

    Google ScholarĀ 

  • Suarez, L., Lloyd, L., Weiss, N., Rainbolt, T., & Pulley, L. (1994). Effect of social networks on cancer-screening behavior of older Mexican-American women. Journal of the National Cancer Institute, 86(10), 775ā€“779.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Suler, J. (2004). The online disinhibition effect. Cyberpsychol Behav, 7(3), 321ā€“326. doi:10.1089/1094931041291295

    Google ScholarĀ 

  • Tang, T. S., Ayala, G. X., Cherrington, A., & Rana, G. (2011). A review of volunteer-based support interventions in diabetes. Diabetes Spectrum, 24, 85ā€“98.

    ArticleĀ  Google ScholarĀ 

  • Tate, D. F., Wing, R. R., & Winett, R. A. (2001). Using Internet technology to deliver a behavioral weight loss program. JAMA, 285(9), 1172ā€“1177.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Taylor, J. O., Gustafson, D. H., Hawkins, R., Pingree, S., McTavish, F., Wise, M., & Carter, M. (1994). The Comprehensive Health Enhancement Support System. Quality Management in Health care, 2(4), 36ā€“43.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Valente, T. W. (1996). Social network thresholds in the diffusion of innovations. Social Networks, 18(1), 69ā€“89.

    ArticleĀ  Google ScholarĀ 

  • Valente, T. W. (2012). Network interventions. Science, 337(6090), 49ā€“53. doi:10.1126/science.1217330

    Google ScholarĀ 

  • Valle, C. G., Tate, D. F., Mayer, D. K., Allicock, M., & Cai, J. (2013). A randomized trial of a Facebook-based physical activity intervention for young adult cancer survivors. Journal of Cancer Survivorship, 7(3), 355ā€“368. doi:10.1007/s11764-013-0279-5

    Google ScholarĀ 

  • van der Marel, S., Duijvestein, M., Hardwick, J. C., van den Brink, G. R., Veenendaal, R., Hommes, D. W., & Fidder, H. H. (2009). Quality of web-based information on inflammatory bowel diseases. Inflammatory Bowel Diseases, 15(12), 1891ā€“1896. doi:10.1002/ibd.20976

    Google ScholarĀ 

  • van Uden-Kraan, C. F., Drossaert, C. H., Taal, E., Seydel, E. R., & van de Laar, M. A. (2009). Participation in online patient support groups endorses patientsā€™ empowerment. Patient Education and Counseling, 74(1), 61ā€“69. doi:10.1016/j.pec.2008.07.044

    Google ScholarĀ 

  • Wald, H. S., Dube, C. E., & Anthony, D. C. (2007). Untangling the Webā€“the impact of Internet use on health care and the physician-patient relationship. Patient Education and Counseling, 68(3), 218ā€“224. doi:10.1016/j.pec.2007.05.016

    Google ScholarĀ 

  • Wasserman, M., Baxter, N. N., Rosen, B., Burnstein, M., & Halverson, A. L. (2014). Systematic review of internet patient information on colorectal cancer surgery. Diseases of the Colon & Rectum, 57(1), 64ā€“69. doi:10.1097/DCR.0000000000000011

    Google ScholarĀ 

  • Webel, A. R., Okonsky, J., Trompeta, J., & Holzemer, W. L. (2010). A systematic review of the effectiveness of peer-based interventions on health-related behaviors in adults. American Journal of Public Health, 100(2), 247ā€“253. doi:10.2105/AJPH.2008.149419

    Google ScholarĀ 

  • WebMD Health Corp. (2010). WebMD announces new health social networking platform on WebMD.com. Retrieved from WebMD.com website: http://investor.shareholder.com/wbmd/releasedetail.cfm?ReleaseID=450474&CompanyID=WBMD

  • Weinert, C., Cudney, S., & Winters, C. (2005). Social support in cyberspace: The next generation. Comput Inform Nurs, 23(1), 7ā€“15. 00024665-200501000-00004 [pii].

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Weis, R., Stamm, K., Smith, C., Nilan, M., Clark, F., Weis, J., et al. (2003). Communities of Care and Caring: The case of MSWatch.com(R). Journal of Health Psychology, 8(1), 135ā€“148. doi:10.1177/1359105303008001449

    Google ScholarĀ 

  • White, M., & Dorman, S. M. (2001). Receiving social support online: Implications for health education. Health Education Research, 16(6), 693ā€“707.

    ArticleĀ  PubMedĀ  Google ScholarĀ 

  • Wicks, P., Keininger, D. L., Massagli, M. P., de la Loge, C., Brownstein, C., Isojarvi, J., & Heywood, J. (2012). Perceived benefits of sharing health data between people with epilepsy on an online platform. Epilepsy & Behavior, 23(1), 16ā€“23. doi:10.1016/j.yebeh.2011.09.026

    Google ScholarĀ 

  • Wicks, P., Massagli, M., Frost, J., Brownstein, C., Okun, S., Vaughan, T. ā€¦ Heywood, J. (2010). Sharing health data for better outcomes on PatientsLikeMe. Journal of Medical Internet Research, 12(2), e19. doi:10.2196/jmir.1549

    Google ScholarĀ 

  • Wikipedia (n.d.). (2012, September 11, 2012). On the Internet, nobody knows youā€™re a dog. Retrieved October 13, 2012, from http://en.wikipedia.org/w/index.php?title=On_the_Internet,_nobody_knows_you%27re_a_dog&oldid=511879668

  • Wilson, C. T., & Brownell, K. D. (1978). Behavior therapy for obesity: Including family members in the treatment process. Behavior Therapy, 9, 943ā€“945.

    ArticleĀ  Google ScholarĀ 

  • Winzelberg, A. J., Classen, C., Alpers, G. W., Roberts, H., Koopman, C., Adams, R. E., et al. (2003). Evaluation of an internet support group for women with primary breast cancer. Cancer, 97(5), 1164ā€“1173. doi:10.1002/cncr.11174

    Google ScholarĀ 

  • Womble, L. G., Wadden, T. A., McGuckin, B. G., Sargent, S. L., Rothman, R. A., & Krauthamer-Ewing, E. S. (2004). A randomized controlled trial of a commercial internet weight loss program. Obesity Research, 12(6), 1011ā€“1018. doi:10.1038/oby.2004.124

    Google ScholarĀ 

  • Wright, K. B., & Bell, S. B. (2003). Health-related Support Groups on the Internet: Linking empirical findings to social support and computer-mediated communication theory. Journal of Health Psychology, 8(1), 39ā€“54. doi:10.1177/1359105303008001429

    Google ScholarĀ 

  • Yee, L., & Simon, M. (2010). The role of the social network in contraceptive decision-making among young, African American and Latina women. Journal of Adolescent Health, 47(4), 374ā€“380. doi:10.1016/j.jadohealth.2010.03.014

    Google ScholarĀ 

  • Young, S. D., Cumberland, W. G., Lee, S. J., Jaganath, D., Szekeres, G., & Coates, T. (2013). Social networking technologies as an emerging tool for HIV prevention: A cluster randomized trial. Annals of Internal Medicine, 159(5), 318ā€“324. doi:10.7326/0003-4819-159-5-201309030-00005

    Google ScholarĀ 

  • Zabinski, M. F., Wilfley, D. E., Calfas, K. J., Winzelberg, A. J., & Taylor, C. B. (2004). An interactive psychoeducational intervention for women at risk of developing an eating disorder. Journal of Consulting and Clinical Psychology, 72(5), 914ā€“919. doi:10.1037/0022-006X.72.5.914

    Google ScholarĀ 

  • Zhao, S., Grasmuck, S., & Martin, J. (2008). Identity construction on Facebook: Digital empowerment in anchored relationships. Computers in Human Behavior, 24, 1816ā€“1836.

    Google ScholarĀ 

  • Ziebland, S., & Wyke, S. (2012). Health and illness in a connected world: How might sharing experiences on the internet affect peopleā€™s health? Milbank Quarterly, 90(2), 219ā€“249. doi:10.1111/j.1468-0009.2012.00662.x

    Google ScholarĀ 

  • Zitter, R. E., & Fremouw, W. J. (1978). Individual versus partner consequation for weight loss. Behavior Therapy, 9, 808ā€“813.

    Google ScholarĀ 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Amanda L. Graham .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

Ā© 2016 Springer Science+Business Media New York

About this chapter

Cite this chapter

Graham, A.L., Cobb, C.O., Cobb, N.K. (2016). The Internet, Social Media, and Health Decision-Making. In: Diefenbach, M., Miller-Halegoua, S., Bowen, D. (eds) Handbook of Health Decision Science. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-3486-7_24

Download citation

Publish with us

Policies and ethics