Abstract
Pain is often unrecognized in the elderly with Alzheimer’s disease (AD). As a result, challenging behaviors such as resistance to care, hitting, screaming, biting, refusal to eat, and others are attributed to deliberate resistance by the person with Alzheimer’s, or it may be assumed that the disease has led to psychotic behavior which would warrant the use of antipsychotic drugs. However, a clinical assessment for pain is usually absent. Failure to recognize pain, then, often leads to overmedicating with powerful antipsychotic and antianxiety medications with all their attendant side effects. Let us take a look at a case study of a woman who was recently admitted to an assisted living facility.
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Notes
- 1.
See FDA website: http://www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm152291.htm. Here is the black box warning: Elderly patients with dementia-related psychosis treated with antipsychotic drugs are at an increased risk of death. Risperdal [or other antipsychotic] is not approved for use in patients with dementia-related psychosis.)
References
Abbey, J., DeBellis, A., Piller, N., Esterman, A., Giles, L., Parker, D., & Lowcy, B. (1998–2002). Abbey Pain Scale, Funded by J.H. and Ginn Medical Research Foundation.
Abbey, J. A., Piller, N., DeBellis, A., Esterman, A., Parker, D., Giles, L., & Lowcay, B. (2004). The Abbey Pain Scale. A 1-minute numerical indicator for people with late-stage dementia. International Journal of Palliative Nursing, 10(1), 6–13.
Allen, M. (2014). One third of skilled nursing patients harmed in treatment, ProPublica, March 3rd 2014.
Arenella, C. (2007). Alzheimer’s disease (and other brain diseases) hospice care. Hospice foundation. www.americanhospice.org. Accessed 4 April 2014.
Bonner, A. (2013). Improving dementia care and reducing unnecessary use of antipsychotic medications in nursing homes. Medicare learning network, Washington D.C. (January 1, 2013).
Carson, V. B. (2011). Taking the angst out of bathing. Caring, 30, 40–42.
Declercq, T., Petrovic, M., Azermai, M., Vander, S. R., De Sutter, A. I. M., van Driel, M. L., Christiaens, T. (2013). Withdrawal versus continuation of chronic antipsychotic drugs for behavioural and psychological symptoms in older people with dementia. The Cochrane Collaboration®. Publsihed by John Wilet & Sons, Ltd.
Ferrell, B. A. (1995). Pain evaluation and management in the nursing home. Annals of Internal Medicine, 123, 681–687.
Ferrell, B. A. (1996). Pain evaluation and management, in Medical Care of the Nursing Home Resident. Philadelphia: American College of Physicians. (Edited by Besdine RW, Rubenstein LZ, Snyder L).
Ferrell, B. A. (2004). Managing pain and discomfort in older adults near the end of life. Annals of Long-Term Care, 12, 49–55.
Ferrell, B. A., Ferrell, B. R., Rivera, L. (1995). Pain in cognitively impaired nursing home patients. Journal of Pain and Symptom Management, 10, 591–598.
Konetzka, R., Tamara, D. J., Brauner, J. S., & Werner, R. M. (2014). The effects of public reporting on physical restraints and antipsychotic use in nursing home residents with severe cognitive impairment. Journal of the American Geriatrics Society, 62, 454–461.
Moss, M. S., Braunschweig, H., Rubinstein, R. L. (2002). Terminal care for nursing home residents with dementia. Alzheimer’s Care Quarterly, 3, 233–246.
Portenoy, R. K. (1999). Opiate therapy for chronic non-cancer pain: can we get past the bias? American Pain Society Bulletin, 1, 4–7.
Selbaek, G., Kirkevold, O., Engedal, K. (2007) The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes. International Journal of Geriatric Psychiatry, 22, 843–849.
Singer, P.A., Martin, D.K., & Comment, M. (1999). Quality end-of-life care: Patients' perspectives. Journal of American Medical Association, 281(16), 1488.
Vilaneuva, M. R., Smith, T.L., Erickson, J. S. (2003). Pain assessment for the dementing elderly (PADE): Reliability and validity of a new measure. Journal of the American Medical Directors Association, 4, 1–8. (http://blogs.lawyers.com/2013/09/antipsychotic-drugs-over-used-in-nursing-homes/).
Voyer, P., Martin, L. S. (2003) Improving geriatric mental health nursing care: Making a case for going beyond psychotropic medications. International Journal of Mental Health Nursing, 12, 11–21.
Warden, V., Hurley, A. C., Volicer, V. (2003). Development and psychometric evaluation of the pain assessment in advanced dementia (PAINAD) scale. Journal of American Medical Directors’ Association, 4, 9–15. (Developed at the New England Geriatric Research Education & Clinical Center, Bedford VAMC, MA).
Weiner, D., Peterson, B., Ladd, K., et al. (1999). Pain in nursing home residents: an exploration of prevalence, staff perspectives, and practical aspects of measurement. Clinical Journal of Pain, 15, 92–101.
Wong-Baker FACES® Pain Rating Scale used with permission from the Licensing Department Wong-Baker FACES® Foundation. http://wongbakerfaces.org/
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Benner Carson, V., Vanderhorst, K., Koenig, H. (2015). “If I knew My Loved One Was in Pain…”. In: Care Giving for Alzheimer’s Disease. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-2407-3_3
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