Abstract
The delivery of ‘child and family-centred care’ (C&FCC), used interchangeably with ‘paediatric patient-centred care’, is consistent with the vision, mission and values of The Hospital for Sick Children (SickKids). As innovators in child health, SickKids leads and partners to improve the health of children provincially, nationally and internationally through the integration of clinical care, research and education. Institutional aims as outlined in the mission of the hospital include providing the best in complex and specialized C&FCC. Components of C&FCC are discussed and examples of innovation in C&FCC at SickKids are identified.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Adams, S., E. Cohen, and S. Mahant, et al. 2010. The usefulness of care plans for children and youth with special health care needs. Paediatrics and Child Health 15:71.
Alsop‐Shields, L., and H. Mohay. 2001. John Bowlby and James Robertson: Theorists, scientists and crusaders for improvements in the care of children in hospital. Journal of Advanced Nursing 35 (1): 50–58.
Betancourt, J. R., A. R. Green, and J. E. Carrillo, et al. 2003. Defining cultural competence: A practical framework for addressing racial/ethnic disparities in health and health care. Public Health Reports 118 (4): 293–302.
Betz, C., and K. Smith. 2011. Measuring health care transition planning outcomes: Challenges and issues. International Journal of Child Adolescent Health 3 (4): 463–472.
Canadian Paediatric Society. 2007. Transition to adult care for youth with special health care needs. Paediatrics and Child Health 12 (9): 785–793
Citizenship and Immigration Canada. 2011. http://www.cic.gc.ca. Accessed 10 Oct 2012.
Davidson, J. E., K. Powers, and M. Hedayat, et al. 2007. Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004–2005. Critical Care Medicine 35 (2): 605–622.
Gany, F. M., C. J. Gonzalez, and G. Basu, et al. 2010. Reducing clinical errors in cancer education: Interpreter training. Journal of Cancer Education 25 (4): 560–564. doi:10.1007/s13187-010-0107-9.
Guerrero, A. D., J. Chen, and M. Inkelas, et al. 2010. Racial and ethnic disparities in pediatric experiences of family-centered care. Med Care 48 (4): 388–393. doi:10.1097/MLR.0b013e3181ca3ef7.
Hospital for Sick Children. 2010/2011. SickKids annual report. Hospital for sick children.
Hospital for Sick Children. 2011/2012. SickKids annual report. Hospital for sick children.
Institute for Patient- and Family-Centered Care. 2010. Frequently asked questions: What are the core concepts of patient- and family-centered care? http://www.ipfcc.org/faq.html. Accessed 29 Dec 2010.
Institute of Medicine, Committee on Quality of Health Care in America. 2001. Crossing the quality chasm: A new health system for the 21st century. Washington: National Academy Press.
Jolley, J., and L. Shields. 2009. The evolution of family-centered care. Journal of Pediatrics and Nursing 24 (2): 164–170. doi:10.1016/j.pedn.2008.03.010.
Karmali, K., L. Grobovsky, and J. Levy, et al. 2011. Cultural competence for improving access to quality care. Healthcare Quaterly 14:52–57.
Keilty, K., J. Blumberg, and K. Karmali, et al. 2012. Organizational review of child and family-centred care practices at SickKids. Poster presented at the Canadian Association for Paediatric Health Centres, Vancouver, November 2012.
LeGrow, K. S. 2011. A feasibility study of a Bourdieu-informed parent briefing intervention to improve parentsʼ satisfaction with decision making for hospitalized children with complex health care needs. Dissertation, University of Toronto.
Muething, S. E., U. R. Kotagal, and P. J. Schoettker, et al. 2007. Family-centered bedside rounds: A new approach to patient care and teaching. Pediatrics 119 (4): 829–832.
National Consensus Project for Quality Palliative Care. 2009. Clinical practice guidelines for quality palliative care. 2nd ed. http://www.nationalconsensusproject.org. Accessed 15 Sept 2012.
O’Malley, P. J., K. Brown, and S. E. Krug. 2008. Patient and family-centered care of children in the emergency department. Canadian Journal of Emergency Medicine 10 (1): 38–43.
Pai, A. L., and L. A. Schwartz. 2011. Introduction to the special section: Health care transitions of adolescents and young adults with pediatric chronic conditions. Journal of Pediatric Psychology 36 (2): 129–133.
Rappaport, D. I., T. A. Ketterer, and V. Nilforoshan, et al. 2012. Family-centered rounds: Views of families, nurses, trainees, and attending physicians. Clinical Pediatrics 51 (3): 260–266.
Rathert, C., and D. R. May. 2007. Health care work environments, employee satisfaction, and patient safety: Care provider perspectives. Health Care Management Review 32 (1): 2–11.
Reid Ponte, P., and K. Peterson. 2008. A patient- and family-centered care model paves the way for a culture of quality and safety. Critical Care Nursing Clinics of North America 20 (4): 451–464. doi:10.1016/j.ccell.2008.08.001.
Shaw, T. M., and D. E. DeLaet. 2010. Transition of adolescents to young adulthood for vulnerable populations. Pediatrics in Review 31 (12): 497–505. doi:10.1542/pir.31-12-497.
Stinson, J. N., G. C. Petroz, and G. Tait, et al. 2006. e-Ouch: Usability testing of an electronic chronic pain diary for adolescents with arthritis. The Clinical Journal of Pain 22 (3): 295–305.
Trajkovski, S., V. Schmied, and M. Vickers, et al. 2012. Neonatal nursesʼ perspectives of family-centred care: A qualitative study. Journal of Clinical Nursing 21 (17–18): 2477–2487. doi:10.1111/j.1365-2702.2012.04138.x.
Young, J. 1992. Changing attitudes towards families of hospitalized children from 1935 to 1975: A case study. Journal of Advanced Nursing 17 (12): 1422–1429.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2014 Springer Science+Business Media Dordrecht
About this chapter
Cite this chapter
Keilty, K., Nicholas, D., Sappleton, K., Karmali, K. (2014). Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care. In: Zlotnik Shaul, R. (eds) Paediatric Patient and Family-Centred Care: Ethical and Legal Issues. International Library of Ethics, Law, and the New Medicine, vol 57. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-0323-8_8
Download citation
DOI: https://doi.org/10.1007/978-1-4939-0323-8_8
Published:
Publisher Name: Springer, New York, NY
Print ISBN: 978-1-4939-0322-1
Online ISBN: 978-1-4939-0323-8
eBook Packages: MedicineMedicine (R0)