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Culture, Religion, and Family-Centred Care

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Part of the book series: International Library of Ethics, Law, and the New Medicine ((LIME,volume 57))

Abstract

Paediatric family-centred care is an innovative approach to care that can lead to improved health outcomes and quality care. However, gaps continue to exist in the realization of this potential, particularly where issues of cultural diversity are involved. Cultural diversity is frequently identified as a barrier or challenge in implementing family-centred care. Literature on health disparities and family-centred care, although limited, shows that racially and culturally diverse families are less likely to report receiving family-centred care than their white counterparts. This chapter explores paediatric family-centred care through the lens of religious and cultural diversity. Cultural competence is generally recognized as an approach to understand and integrate the patient’s and family’s cultural needs into care. While family-centred care and cultural competence are very synergistic approaches to care, family-centred does not necessarily lead to effective integration of culture into care.

In this chapter, I have argued that the paradigm shift of collaboration and partnership can be greatly facilitated through a more deliberate understanding and integration of cultural competence in the paediatric family-centred care agenda. This will not only begin to address the perception of “cultural diversity as barrier” to effective collaboration, but also allow for a deeper understanding of why clinicians and care environments continue to experience difficulties in understanding and supporting paediatric family-centred care overall. Frameworks for cultural competence highlight that transformation in care not only requires awareness and attitudinal shifts, but also supports through new skills, tools and resources. Reframing our conceptual understanding of family-centred care and its associated competencies through the lens of cultural competence offers considerable promise. The chapter will conclude with a discussion of strategies to integrate cultural competence into paediatric family-centred care.

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Notes

  1. 1.

    For a discussion of explanations of illness associated with various religions see Taylor (2012).

  2. 2.

    A belief that one’s own cultural values, beliefs, and behaviours are the most superior, and best for everyone.

  3. 3.

    See previous discussion in truth telling as an example.

  4. 4.

    These strategies were first presented by Madeline Leininger (1978) as part of the Culture Care Theory of Universality and Diversity which outlines three modes of decision-making: Culture care preservation, culture care accommodation and negotiation, and culture care re-patterning. The discussion here is an adaptation of Leininger’s work as developed by Srivastava (2007a).

References

  • American Academy of Paediatrics. 2012. Patient and family centered care and the paediatrician’s role. Paediatrics 129:394–404. doi:10.1542/peds.2011-3084, ISSN: 1098-4275.

    Google Scholar 

  • Arango, P. 2011. Family-centered care. Academic Paediatrics 11:97–99.

    Article  Google Scholar 

  • Bruce, B., N. Letourneau, J. Ritchie, et al. 2002. A multisite study of health professionals’ perceptions and practices of family-centered care. Journal of Family Nursing 8:408–429. doi:10.1177/107484002237515.

    Article  Google Scholar 

  • Carter, B. 2008. Commentary on Shields L, Pratt J, Hunter J (2006) Family centred care: A review of qualitative studies. Journal of Clinical Nursing 5, 1317-1323, 17 (15): 2091–2093.

    Google Scholar 

  • Coker, T. R., M. A. Rodriguez, and G. Flores. 2010. Family-centered care for us children with special health care needs: Who gets it and why? Paediatrics 125:1159. doi:10.1542/peds.2009-1994.

    Article  Google Scholar 

  • Cross, T., D. K. Bazron, and M. Issacs. 1989. Toward a culturally competent system of care. Washington, D.C.: Georgetown University Child Development Center. http://www.mhsoac.ca.gov/meetings/docs/Meetings/2010/June/CLCC_Tab_4_Towards_Culturally_Competent_System.pdf. Accessed 16 Oct 2012.

  • Debs-Ivall, S. 2007. Caring for diverse families. In The healthcare professional’s guide to clinical cultural competence, ed. R. H. Srivatava, 144–171. Toronto: Mosby.

    Google Scholar 

  • Fowler, M., and S. Reimer-Kirkham. 2012. Religious ethics, religious social ethics, and nursing. In Religion, religious ethics, and nursing, eds. M. Fowler, S. Reimer-Kirkham, R. Sawatzky, et al., 27–60. New York: Springer.

    Google Scholar 

  • Fung, K., H. T. Lo, R. Srivastava, et al. 2012. Organizational cultural competence consultation to a mental health institution. Transcultural Psychiatry 49:165–184. doi:10.1177/1363461512439740.

    Article  PubMed  Google Scholar 

  • Gleick, J. 1987. Chaos: Making a new science. London: Viking.

    Google Scholar 

  • Guerrero, A. D., J. Chen, M. Inkelas, et al. 2010. Racial and ethnic disparities in paediatric experiences of family-centered care. Medical Care 48:388–393.

    Article  PubMed  Google Scholar 

  • Harrison, T. M. 2010. Family centered paediatric nursing care: State of the science. Journal of Paediatric Nursing 25:335–343. doi:10.1016/j.pedn.2009.01.006.

    Article  Google Scholar 

  • Ho, A. 2008. Relational autonomy or undue pressure? Family’s role in medical decision-making. Scandinavian Journal of Caring Science 22:128–135.

    Article  Google Scholar 

  • Institute for Patient and Family-Centered Care. 2011. Advancing the practice of patient- and family-centered care in primary care and other ambulatory settings: How to get started. http://www.ipfcc.org/pdf/GettingStarted-AmbulatoryCare.pdf. Accessed 12 Oct 2012.

  • Institute of Medicine (IOM). 2001. Envisioning a National Health Care Quality Report. National Academy of Sciences.

    Google Scholar 

  • Jolley, J., and L. Sheilds. 2009. The evolution of family-centered care. Journal of Paediatric Nursing 24:164–170. doi:10.1016/j.pedn.

    Article  Google Scholar 

  • Kuo, D. J., A. J. Houtrow, P. Arango, et al. 2012. Family-centered care: Current applications and future directions in paediatric health care. Maternal Child Health Journal 16:297–305. doi:10.1007/s10995-011-0751-7.

    Article  PubMed Central  PubMed  Google Scholar 

  • Leininger, M. 1978. Transcultural nursing: Concepts, theories, and practices. New York: John Wiley and Sons.

    Google Scholar 

  • MacKay, L. J. 2009. Exploring family-centered care among paediatric oncology nurses. Unpublished thesis University of Lethbridge. https://www.uleth.ca/dspace/bitstream/handle/10133/2483/mackay,%20lyndsay.pdf?sequence=1. Accessed 19 Sept 2012.

  • Montes, G., and J. S. Halterman. 2011. White-black disparities in family-centered care among children with autism in the united states: Evidence from the ns-cshcn 2005-2006. Academic Paediatrics 11:297–304.

    Article  Google Scholar 

  • National Center for Cultural Competence. 2007. A guide for advancing family-centered and culturally and linguistically competent care. http://nccc.georgetown.edu/documents/fcclcguide.pdf. Accessed 12 Oct 2012.

  • Ngo-Metzger, Q., J. Telfair, D. H. Sorkin, et al. 2006. Cultural competency and quality of care: Obtaining the patient’s perspective. Commonwealth fund. http://www.commonwealthfund.org/Publications/Fund-Reports/2006/Oct/Cultural-Competency-and-Quality-of-Care-Obtaining-the-Patients-Perspective.aspx. Accessed 20 Sept 2012.

  • Pergert, P., S. Ekblad, K. Enskar, et al. 2007. Obstacles to transcultural caring relationships: Experiences of health care staff in paediatric oncology. Journal of Paediatric Oncology Nursing 24 (6): 314–328.

    Article  Google Scholar 

  • Pettoello-Mantovani, M., A. Campanozzi, L. Maiuri, et al. 2009. Family-oriented and family-centered care in paediatrics. Italian Journal of Paediatrics 35:12. doi:10.1186/1824-7288-35-12.

    Article  Google Scholar 

  • Pottinger, A., A. Perivolaris, and D. Howe. 2007. The end of life. In The healthcare professional’s guide to clinical cultural competence, ed. R. H. Srivastava, 227–246. Toronto: Mosby.

    Google Scholar 

  • Registered Nurses Association of Ontario (RNAO). 2007. Embracing diversity: Developing cultural competence. Toronto: Author. www.rnao.org/Page.asp?PageID=122&ContentID=1200.

  • Rodriguez-Osorio, C. A., and G. Dominguez-Cherit. 2008. Medical decision making: Paternalism versus patient-centered (autonomous) care. Current Opinion in Critical Care 14:708–713.

    Article  PubMed  Google Scholar 

  • Saha, S., M. C. Beach, and L. A. Cooper. 2008. Patient centeredness, cultural competence, and health care quality. Journal of the National Medical Association 100:1275–1285.

    PubMed Central  PubMed  Google Scholar 

  • Saskatchewan Ministry of Health. 2009. The need for more effective patient- and family-centred care. http://www.health.gov.sk.ca/adx/aspx/adxGetMedia.aspx?DocID=21252c45-e338-4811-9c16-9296ce7e2075&MediaID=3458&Filename=detailed-research-report-patient-first-web.pdf&l=English. Accessed 2 Sept 2012.

  • Seth, T. 2010. Communication to paediatric cancer patients and their families: A cultural perspective. Indian Journal of Palliative Care 16 (1): 26–29. doi:10.4103/0973-1075.63131.

    Article  PubMed Central  PubMed  Google Scholar 

  • Shields, L., J. Pratt, and J. Hunter. 2006. Family centred care: A review of qualitative studies. Journal of Clinical Nursing 15:1317–1323. doi:10.1111/j.1365-2702.2006.01433.

    Article  PubMed  Google Scholar 

  • Slade, C. 2007. Does patient-centered care affect racial disparities in health? Public management and policy dissertations. Paper 24. http://digitalarchive.gsu.edu/pmap_diss. Accessed 2 Sept 2012.

  • Srivastava, R. 2007a. Culture care framework II: Culture knowledge, resources, and bridging the gap. In The healthcare professional’s guide to clinical cultural competence, ed. R. H. Srivastava, 75–100. Toronto: Mosby.

    Google Scholar 

  • Srivastava, R. 2007b. Cross cultural communication. In The healthcare professional’s guide to clinical cultural competence, ed. R. Srivastava, 101–124. Toronto: Mosby.

    Google Scholar 

  • Srivastava, R. 2007c. Working effectively with interpreters. In The healthcare professional’s guide to clinical cultural competence, ed. R. Srivastava, 125–143. Toronto: Mosby.

    Google Scholar 

  • Srivastava, R. 2008. The ABC(DE) of cultural competence in clinical care. Ethnicities and inequities in health and social care 1 (1): 27–33.

    Article  Google Scholar 

  • Srivastava, R., B. Srivastva, and R. Srivastava. 2012. Hinduism and nursing. In Religion, religious ethics, and nursing, eds. M. Fowler, M. Reimer-Kirkham, S. Sawatzky, et al., 173–196. New York: Springer.

    Google Scholar 

  • Statistics Canada. 2008. Canada’s ethnocultural mosaic: 2006 census. Ottawa: Ministry of Industry. Catalogue no. 97-562-X.

    Google Scholar 

  • Taylor, E. J. ed. 2012. Religion a clinical guide for nurses. New York: Springer.

    Google Scholar 

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Correspondence to Rani H. Srivastava .

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Srivastava, R. (2014). Culture, Religion, and Family-Centred Care. In: Zlotnik Shaul, R. (eds) Paediatric Patient and Family-Centred Care: Ethical and Legal Issues. International Library of Ethics, Law, and the New Medicine, vol 57. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-0323-8_4

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  • DOI: https://doi.org/10.1007/978-1-4939-0323-8_4

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