Dementia pp 199-228 | Cite as

Dementia and the Family

  • Allen Jack Edwards
Part of the Perspectives on Individual Differences book series (PIDF)


Any devastating illness has effects on members of a family as well as the patient. Though there may be evidences of sympathy and empathy, there are also different effects and degrees among the involved parties. In the case of dementia, there is a ripple effect that has been described for several years now. Usually, there is a primary caregiver, most often a spouse or middle-aged child, who becomes responsible for the care of the patient as the process moves slowly but inexorably to its termination. Increasing physical and mental demands accompany the changes, with physical illness and stress as potential outcomes for the caregiver. Even if the demands are handled successfully, there will be a need to consider legal and economic factors, including the eventual placement of the patient in a long-term care facility. The complex of such events has led to the awareness of multiple and severe “burdens” that must be faced and adjusted to by the primary caregiver. The challenge may be met, or it may become overwhelming.


Support Group Primary Caregiver Caregiver Burden Dementia Patient Spiritual Support 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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Copyright information

© Springer Science+Business Media New York 1993

Authors and Affiliations

  • Allen Jack Edwards
    • 1
  1. 1.Southwest Missouri State UniversitySpringfieldUSA

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