Stress and Coping in Families of Autistic Adolescents

  • Marie M. Bristol
  • Eric Schopler
Part of the Current Issues in Autism book series (CIAM)


Our understanding of the problems and needs of autistic adolescents and adults is still in its infancy, compared with what we know about autism in children. During the past decade some important strides have been made in the study and treatment of autistic children and their families (Paluszny, 1979; Rutter & Schopler, 1978). These have included the recognition that autism is not primarily an emotional illness but a developmental disability (Schopler, Rutter, & Chess, 1979). Autism is not caused by parental pathology; instead parents can be productively involved in their own child’s treatment (Schopler & Reichler, 1971). Moreover the optimum treatment for such children is not psychotherapy, but special education made available in our public schools and implemented with the collaboration of parents (Schopler & Bristol, 1980). However, in most of our public schools special education ends when the student reaches 18 years of age. What happens to the adolescent with autism? What happens to the struggles of his parents?


Autistic Child Parent Training Handicapped Child Family Stress Informal Social Support 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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  1. Ackerley, M. The invulnerable parent. Journal of Autism and Childhood Schizophrenia, 1975, 5, 275–281.CrossRefGoogle Scholar
  2. Beckman-Bell, P. B. Characteristics of handicapped infants: A study of the relationship between child characteristics and stress as reported by mothers. Unpublished doctoral dissertation, University of North Carolina, Chapel Hill, North Carolina 1980.Google Scholar
  3. Bristol, M. M. Maternal coping with autistic children: The effects of child characteristics and interpersonal supports. Unpublished doctoral dissertation, University of North Carolina, Chapel Hill, North Carolina 1979.Google Scholar
  4. Bristol, M. M. Gallagher, J. J. A family focus for intervention. In Finding and educating the high risk and handicapped infant ( C. Ramey P. Trohanis, eds.) Baltimore: University Park Press, 1982.Google Scholar
  5. Burr, W. R. Satisfaction with various aspects of marriage over the life cycle: A random middle-class sample. Journal of Marriage and the Family, 1970, 32 (1), 29–37.CrossRefGoogle Scholar
  6. Caldwell, B. M., Guze, S. B. A study of the adjustment of parents and siblings of institutionalized and noninstitutionalized retarded children. American Journal of Mental Deficiency, 1960, 64, 845–861.PubMedGoogle Scholar
  7. Cassel, J. C. Psychosocial processes and stresses: Theoretical formulation. International Journal of Health Services, 1974, 4, 471–482.Google Scholar
  8. Cassel, J. C. The contribution of the social environment to host resistance. American Journal of Epidemiology,1976, 104(2),107–123.Google Scholar
  9. Cleveland, D. W., Miller, N. B. Attitudes and life commitments of older siblings of mentally retarded adults: An exploratory study. Mental Retardation, 1977, 15, 38–41.Google Scholar
  10. Cobb, S. Social support as a moderator of life stress. Psychosomatic Medicine, 1976, 38, 300–314.PubMedGoogle Scholar
  11. Cohen, F., Lazarus, R. Coping with the stresses of illness. In Health psychology: A handbook ( G. C. Stone, F. Cohen, N. Adler Associates, eds.) San Francisco: Jossey-Bass, 1979.Google Scholar
  12. Cohen, P. C. The impact of the handicapped child on the family. Social Casework, 1962, 43, 137–142.Google Scholar
  13. Cox, A., Rutter, M., Newman, S., Bartak, L. A comparative study of infantile autism and specific developmental receptive language disorder. II. Parental characteristics. British Journal of Psychiatry, 1975, 126, 146–159.PubMedCrossRefGoogle Scholar
  14. Cummings, S. J., Bayley, H. C., Rie, H. E. Effects of the child’s deficiency on the mother: A study of mothers of mentally retarded, chronically ill and neurotic children. American Journal of Orthopsychiatry, 1966, 36, 595–608.PubMedCrossRefGoogle Scholar
  15. DeMyer, M. K. Comments on “Siblings of autistic children.” Journal of Autism and Developmental Disorders, 1979, 9, 296–298.Google Scholar
  16. Devellis, R., Revicki, D., Bristol, M. Development of the child improvement locus of control (CILC) scales (Unpublished paper). Frank Porter Graham Child Development Center and Division TEACCH, School of Medicine, University of North Carolina at Chapel Hill, 1981.Google Scholar
  17. Eaton, W. Life events, social support and psychiatric symptoms. Journal of Health and Social Behavior,1978, /9, 230–234.Google Scholar
  18. Farber, B. Effects of a severely retarded child on family integration. Monographs of the Society for Research in Child Development,1959, 24,No. 71.Google Scholar
  19. Finlayson, A. Social networks as coping resources: Lay help and consultation patterns used by women in husband’s post-infarction career. Social Science and Medicine,1976, 10(2),97–103.Google Scholar
  20. Gath, A. Sibling reactions to mental handicap: A comparison of the brothers and sisters of mongol children. Journal of Child Psychology and Psychiatry,1974, /5, 189–198.Google Scholar
  21. Gore, S. Effect of social support in moderating the health consequences of unemployment. Journal of Health and Social Behavior, 1978, 19, 157–169.PubMedCrossRefGoogle Scholar
  22. Graliker, B. V., Fischler, K., Koch, R. Teenage reaction to a mentally retarded sibling. American Journal of Mental Deficiency, 1962, 66, 838–843.PubMedGoogle Scholar
  23. Grossman, F. K. Brothers and sisters of retarded children: An exploratory study. Syracuse, N.Y.: Syracuse University Press, 1972.Google Scholar
  24. Hill, R. L. Families under stress: Adjustment to the crises of war separation and reunion. New York: Harper, 1949.Google Scholar
  25. Hill, R. Sociology of marriage and family behavior, 1945–1956: A trend report and bibliography. Current Sociology, 1958, 7 (May), 1098.Google Scholar
  26. Holroyd, J. The questionnaire on resources and stress: An instrument to measure family response to a handicapped member. Journal of Community Psychology, 1974, 2, 9294.CrossRefGoogle Scholar
  27. Holroyd, J., McArthur, D. Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal of Mental Deficiency, 1976, 80, 431–436.Google Scholar
  28. Levinson, D. J. The seasons of a man’s life. New York: Knopf, 1978.Google Scholar
  29. Love, H. The mentally retarded child and his family. Springfield, III.: Charles C Thomas, 1973.Google Scholar
  30. Marcus, L. Patterns of coping in families of psychotic children. American Journal of Orthopsychiatry, 1977, 47 (3), 383–399.Google Scholar
  31. Marcus, L., Lansing, M., Andrews, C., Schopler, E. Improvement of teaching effectiveness in parents of autistic children. Journal of the American Academy of Child Psychiatry, 1978, 17, 625–639.PubMedCrossRefGoogle Scholar
  32. McCubbin, H. Integrating coping behavior in family stress theory. Journal of Marriage and the Family,1979, 41(2),237–244.Google Scholar
  33. McCubbin, H. I., Joy, C. B., Cauble, A. E., Comeau, J. K., Patterson, J. M., Needle, R. H. Family stress and coping: A decade review. Journal of Marriage and the Family,1980, 42(4),855–871.Google Scholar
  34. McCubbin, H., Dahl, B., Lester, G., Benson, D., Robertson, M. Coping repertoires of families adapting to prolonged war-induced separation. Journal of Marriage and the Family, 1976, 38 (3), 461.CrossRefGoogle Scholar
  35. Nuckolls, C., Cassel, J., Kaplan, B. Psycho-social assets, life crises and prognosis of pregnancy. American Journal of Epidemiology, 1972, 95, 431–444.PubMedGoogle Scholar
  36. Paluszny, M. Autism: A practical guide for parents and professionals. Syracuse, N.Y.: Syracuse University Press, 1979.Google Scholar
  37. Pearlin, L., Schooler, C. The structure of coping. Journal of Health and Social Behavior, 1978, 19, 2–21.CrossRefGoogle Scholar
  38. Price-Bonham, S., Addison, S. Families and mentally retarded children: Emphasis on the father. The Family Coordinator, 1978, 27 (3), 221–230.Google Scholar
  39. Rabkin, J., Struening, E. Life events, stress, and illness. Science, 1976, 194, 1013–1020.PubMedCrossRefGoogle Scholar
  40. Rutter, M., Schopler, E. (Eds.), Autism: A reappraisal of concepts and treatment. New York: Plenum Press, 1978.Google Scholar
  41. Schopler, E., Bristol, M. Autistic children in public school, an ERIC Exceptional Child Education Report. Reston, Va.: Council for Exceptional Children, 1980.Google Scholar
  42. Schopler, E., Loftin, J. Thought disorders in parents of psychotic children. Archives of General Psychiatry, 1969, 20, 174–181.PubMedCrossRefGoogle Scholar
  43. Schopler, E., Reichler, R. Developmental therapy by parents with their own autistic child. In Infantile autism: Concepts, characteristics, and treatment ( M. Rutter, ed.), London: Churchill Livingstone, 1971.Google Scholar
  44. Schopler, E., Rutter, M., Chess, S. Editorial: Change of journal scope and title. Journal of Autism and Developmental Disorders, 1979, 9, 1–10.PubMedCrossRefGoogle Scholar
  45. Schopler, E., Mesibov, G., DeVellis, R., Short, A. Treatment outcomes for autistic children and their families. In Frontiers of knowledge in mental retardation, Vol. I ( P. Mittler, ed.), Baltimore: University Park Press, 1981.Google Scholar
  46. Schwirian, P. Effects of the presence of a hearing-impaired preschool in the family on behavior of older “normal” siblings. American Annals of the Deaf,1976, 121,373380.Google Scholar
  47. Sheehy, G. Passages: Predictable crises of adult life. New York: E. P. Dutton, 1976.Google Scholar
  48. Short, A. Short-term treatment outcome using parents as co-therapists for their own autistic children. Unpublished doctoral dissertation, University of North Carolina, Chapel Hill, North Carolina, 1980.Google Scholar
  49. Sullivan, R. Autism: Current trends in services. In Autism: Diagnosis, current research and management ( E. R. Ritvo, ed.), New York: Halsted Press, 1976.Google Scholar
  50. Turnbull, S., Turnbull, H. Parents speak out: Views from the other side of the two-way mirror. Columbus, Ohio: Charles E. Merrill, 1978.Google Scholar
  51. Reference NotesGoogle Scholar
  52. 1.
    Bristol, M. M. Sources of help for parents of autistic children. Paper presented at the International Conference of the Society for Autistic Children, Boston, July 1981.Google Scholar
  53. 2.
    Gallagher, J. J., Cross, A., Scharfman, W. The characteristics of successful parents. Unpublished manuscript, University of North Carolina, 1980.Google Scholar
  54. 3.
    Krause-Eheart, B. Special needs of low-income mothers of developmentally delayed children. Paper presented at the National Conference of the Society for Research in Child Development, Boston, May 1980.Google Scholar
  55. 4.
    Bristol, M. M. Impact of handicapped children on mothers: Some research results. Paper presented at the OSE Handicapped Children’s Early Education Program/CEC Division for Early Childhood Conference, Washington, D.C., December 1980.Google Scholar
  56. 5.
    Tavormina, J. Fathers and families of handicapped children. Unpublished manuscript, University of Virginia, 1977.Google Scholar
  57. 6.
    Tavormina, J., Ball, N., Dunn, R., Luscomb, B., Taylor, J. Psychosocial effects of raising a physically handicapped child on parents. Unpublished manuscript, University of Virginia, 1977.Google Scholar
  58. 7.
    Lettick, A. On growing—up and away. A position paper approved by the Board of Directors of the National Society for Autistic Children, Washington, D.C., 1974.Google Scholar
  59. 8.
    National Society for Autistic Children. Community policy resolution. A position paper approved by the Board of Directors of the National Society for Autistic Children, Washington, D.C., July 1981.Google Scholar

Copyright information

© Springer Science+Business Media New York 1983

Authors and Affiliations

  • Marie M. Bristol
    • 1
  • Eric Schopler
    • 2
  1. 1.Carolina Institute for Research on Early Education of the Handicapped, Frank Porter Graham Child Development CenterUniversity of North CarolinaChapel HillUSA
  2. 2.Division TEACCH, Department of PsychiatryUniversity of North Carolina Medical SchoolChapel HillUSA

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