Abstract
Patient empowerment can be defined as “the increasing ability of patients to actively understand, participate in, and influence their health status.”1 Increased involvement of patients in the healthcare process is one facet of a more global trend of modern societies, where citizens no longer accept being passive about decisions that concern their lives, their environment, or their country. Patient empowerment is expected to improve outcome and be cost effective.2 At the same time, consumer empowerment is likely associated with the development of technologies that perpetuate or accentuate inequalities between the literate and illiterate.3 This chapter defends the idea that health information technologies, namely telemedicine and cybermedicine, are necessary but not sufficient conditions of patient empowerment. Change in the patient-physician relationship is a logical consequence of patient empowerment and should lead to cultural changes and significant revision of education and training programs for both health professionals and citizens.
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References
Bruegel RB. Patient empowerment—a trend that matters. J AHIMA 1998;69(8):30–3; quiz 35–6.
Landensuo A. Guided self management of asthma—how to do it. BMJ 1999; 319: 759760.
Anderson JM. Empowering patients: issues and strategies. Soc Sei Med 1996;43(5):697–705.128 P. Degoulet et al
Shenkin BN, Warner DC. Giving the patient his medical record: a proposal to improve the system. N Engl J Med 1973; 289: 688–692.
Schoenfelt S. Next generation: how Internet technology propels the electronic medical record. J AHIMA 1999;70(8):30–36; discussion 38.
Shepperd S, Charnock D, Gann B. Helping patients access high quality health information. BMJ 1999; 319: 764–766.
Bouhaddou O, Lambert JG, Miller S. Consumer health informatics. Proc AMIA Symp 1998; 612–616.
Bruegel R, Andrew W. The CPR: patient empowerment paradigm. Healthcare Inform 1996;13(10):26–28,30,33.
Brennan PF, Strombon I. Improving healthcare by understanding patient preferences. JAMIA 1998; 5: 257–262.
Entwistle VA, Sheldon TA, Sowden A, Watt IS. Evidence-informed patient choice. Practical issues of involving patients in decisions about healthcare technologies. Int J Tech Assess Health Care 1998; 14: 212–225.
Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ 1999; 319: 766–769.
Charles C, Whelan T, Gafni A. What do we mean by partnership in making decisions about treatment? EMI 1999; 319: 780–782.
Jone R, Pearson J, McGregor S, et al. Randomised trial of personalised based information for cancer patients. BMJ 1999; 319: 1241–1247.
Friedman RH, Stollerman JE, Mahoney DM, Rozenblyum L. The virtual visit: using telecommunications to take care of patients. JAMIA 1997; 4 (6): 413–425.
Finkelstein J, Hripcsak G, Cabrera MR. Patients’ acceptance of Internet-based home asthma telemonitoring. Proc AMIA Symp 1998; 336–340.
Gray J, Pompilio-Weitzner G, Jones PC, Wang Q, Coriat M, Safran C. Baby CareLink: development and implementation of a WWW-based system for neonatal home telemedicine. Proc AMIA Symp 1998; 351–355.
Slack WV. Cybermedicine. How computing empowers doctors and patients for better health care. San Francisco: Jossey-Bass, 1997.
Goldsmith DM, Safran C. Using the Web to reduce post operative following ambulatory surgery. Proc AMIA Symp 1999; 780–784.
Eysenbach G, Ryoung E, Diepgen TL. Shopping around the Internet today and tomorrow: towards the millennium of cybermedicine. BMJ 1999; 319: 1294.
Coeira E. The Internet’s challenge to health care provision. BMJ 1996; 312: 3–4.
Coulter A, Entwistle V, Gilbert D. Sharing the decision with the patients: is the information good enough. BMJ 1999; 318: 318–322.
Brennan PF. Patient satisfaction and normative decision theory. JAMIA 1995; 2: 250259.
Ham C. Health care rationing. BMJ 1994; 310: 1483–1484.
Hurwitz B. Clinical guidelines and the law. BMJ 1995; 311: 2.
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Degoulet, P., Fieschi, M., Jaulent, MC., Ménard, J. (2004). Patient Empowerment, Cybermedicine, and Citizen Education. In: Nelson, R., Ball, M.J. (eds) Consumer Informatics. Health Informatics. Springer, New York, NY. https://doi.org/10.1007/978-1-4757-3920-6_10
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DOI: https://doi.org/10.1007/978-1-4757-3920-6_10
Publisher Name: Springer, New York, NY
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