Psychological Aspects of Bladder Exstrophy
The dramatic transformation in the medical-surgical approaches to bladder exstrophy in the last three decades as well as in the results for exstrophy patients has not been legitimized by ongoing and concomitant studies of the psychological ramifications or patient adaptation. Such data that has been published is hampered by patient selection bias and an absence of longitudinal and systematic research. Because of recurrent anecdotal observations of psychological distress and problems with social adaptation in exstrophy patients, we initiated a set of longitudinal studies at the Johns Hopkins Hospital in 1993 looking at the psychosocial and psychosexual development in exstrophy patients and the implications for patients and family alike.
KeywordsJohns Hopkins Hospital Pediatric Urologist Bladder Exstrophy Patient Selection Bias Cloacal Exstrophy
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