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Patients’ and Professionals’ Views on Autonomy, Disability, and “Discrimination”

Results of a 36-Nation Survey

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Abstract

Autonomy is the primary ethical value in medicine in most Western countries. Many people feel that they are entitled to whatever services they request, especially if they are willing to pay out of pocket. Worldwide, increasing numbers of service providers appear willing to honor even controversial patient requests. This “triumph of autonomy” creates a ready market for “consumer” products in medicine generally and also enables companies to increase existing markets or to create new markets by direct advertising to consumers. This makes it harder to “draw lines” in providing services, and leads, perhaps inevitably, to the development of “private” health care alongside any publicly-supported system.

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References

  • CORN (Council of Regional Networks of Genetic Services). 1996 “Code of Ethical Principles for Genetic Professionals: An Explication” American Journal of Medical Genetics, Vol. 65, pp. 179–183.

    Article  Google Scholar 

  • Fraser, F.C. 1974. “Genetic Counselling” American Journal of Human Genetics, Vol. 26, pp. 636–661.

    Google Scholar 

  • Lapham, E.V. et al. 1996. “Genetic Discrimination: Perspectives of Consumers” Science, Vol. 274, p. 621.

    Article  Google Scholar 

  • Marteau, T. 1998. “Genetic Counseling and Information: Psychosocial Impact” International Conference on Genetic Diagnosis: From Prenatal to Preimplantation. Rennes, May 3.

    Google Scholar 

  • Wertz, D.C. 1996. “Opinions des Généticiens des 37 pays sur la présélection du Sexe” Sociologie et Societes, Vol. 28, pp. 77–80.

    Google Scholar 

  • Wertz, D.C. & Fletcher, J.C. 1998. “Ethical and Social Issues in Prenatal Sex Selection: A Survey of Geneticists in 37 Nations” Social Science and Medicine, Vol. 46(2), pp. 255–273.

    Article  Google Scholar 

  • Wertz, D.C. 1999. “Drawing Lines: Notes for Policymakers” Prenatal Diagnosis and Genetic Disability, E. Parens (Ed.), Washington, DC: Georgetown University Press, in press.

    Google Scholar 

  • Wertz, D.C. & Fletcher, J.C. (Eds.) 1989. Ethics and Human Genetics: A Cross-cultural Perspective, Berlin: Springer-Verlag.

    Google Scholar 

  • World Health Organization. 1998. Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services, Geneva, WHO, Hereditary Diseases Programme.

    Google Scholar 

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© 1999 Springer Science+Business Media New York

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Wertz, D.C. (1999). Patients’ and Professionals’ Views on Autonomy, Disability, and “Discrimination”. In: Caulfield, T.A., Williams-Jones, B. (eds) The Commercialization of Genetic Research. Springer, Boston, MA. https://doi.org/10.1007/978-1-4615-4713-6_11

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  • DOI: https://doi.org/10.1007/978-1-4615-4713-6_11

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-1-4613-7135-9

  • Online ISBN: 978-1-4615-4713-6

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