The Impact of Chronic and Terminal Illness

  • Lena Nilsson Schönnesson
  • Michael W. Ross
Part of the AIDS Prevention and Mental Health book series (APMH)


HIV disease does not occur in a vacuum from other illness processes, both chronic and terminal. As a consequence, a significant amount of what we know about responses to, and impact of, chronic and terminal illnesses has relevance to HIV disease. On the other hand, the pandemic in predominantly gay men in the 1980s in North America and Western Europe also brought a number of unique features into the situation, among them the collective experience of the gay subculture, the stigmatization resulting from the co-categorization of male gayness and AIDS, and the experience of dealing with the stigmatization of a gay orientation. This chapter explores both the common and unique elements of dealing with HIV disease in this population.


Terminal Illness Life Plan Illness Narrative Illness Concept Mental Adjustment 
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  1. 1.
    Barnard D. Chronic illness and the dynamics of hoping. In: Toombs SK, Barnard D, Carson RA, eds. Chronic Illness: From Experience to Policy. Bloomington: Indiana University Press; 1995; 38–57.Google Scholar
  2. 2.
    Kleinman A. The Illness Narratives: Suffering, Healing and the Human Condition. New York: Basic Books; 1988.Google Scholar
  3. 3.
    Murphy RF. The Body Silent. New York: Henry Holt; 1987.Google Scholar
  4. 4.
    Taylor SE. Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist 1983; 38:1161–1173.CrossRefGoogle Scholar
  5. 5.
    Brody H. Stories of Sickness. New Haven: Yale University Press; 1987.Google Scholar
  6. 6.
    Sontag S. Illness as Metaphor. New York: Farrar, Strauss & Giroux; 1978.Google Scholar
  7. 7.
    Sontag S. AIDS and Its Metaphors. New York: Farrar, Strauss & Giroux; 1989.Google Scholar
  8. 8.
    Butler S. Erewhon. (1872). New York: Penguin; 1985.Google Scholar
  9. 9.
    Lipowski ZJ. Physical illness, the individual and the coping process. Psychiatric Medicine 1970; 1:91–102.CrossRefGoogle Scholar
  10. 10.
    Schüssler G. Coping strategies and individual meanings of illness. Social Science and Medicine 1992; 34:427–432.PubMedCrossRefGoogle Scholar
  11. 11.
    Miller SM, Rodoletz M, Schroeder CM, et al. Applications of the monitoring process model to coping with severe long-term medical threats. Health Psychology 1996; 15:216–225.PubMedCrossRefGoogle Scholar
  12. 12.
    Ross MW, Tebble WEM, Viliunas D. Staging of psychological reactions to HIV infection in asymptomatic homosexual men. Journal of Psychology and Human Sexuality 1989; 2:93–104.CrossRefGoogle Scholar
  13. 13.
    Kübler-Ross E. On Death and Dying. London: Tavistock; 1970.Google Scholar
  14. 14.
    Cass VC. Homosexual identity formation: A theoretical model. Journal of Homosexuality 1979; 4:219–235.PubMedCrossRefGoogle Scholar
  15. 15.
    Ross MW, Ryan L. The little deaths: Perceptions of HIV, sexuality and quality of life in gay men. Journal of Psychology and Human Sexuality 1995; 7:1–20.CrossRefGoogle Scholar
  16. 16.
    Greer S, Morris T, Pettingale KW. Psychological responses to breast cancer: effect on outcome. Lancet 1979; 2:785–787.PubMedCrossRefGoogle Scholar
  17. 17.
    Ross MW, Hunter CE, Condon J, et al. The Mental Adjustment to HIV Scale: Measurement and dimensions of response to AIDS/HIV disease. AIDS Care 1994; 6:407–411.PubMedCrossRefGoogle Scholar
  18. 18.
    Watson M, Greer S, Bliss JM. Mental Adjustment to Cancer (MAC) Users’ Manual. Sutton, UK: Institute of Cancer Research; 1989.Google Scholar
  19. 19.
    Sacks O. Awakenings. London: Picador; 1991.Google Scholar

Copyright information

© Springer Science+Business Media New York 1999

Authors and Affiliations

  • Lena Nilsson Schönnesson
    • 1
  • Michael W. Ross
    • 2
  1. 1.Department of Social WorkUniversity of GothenburgGothenburgSweden
  2. 2.WHO Center for Health Promotion Research and Development School of Public HealthUniversity of Texas, Houston Health Science CenterHoustonUSA

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