Abstract
Rajendra Kale (1997) states that, “The history of epilepsy can be summarized as 4000 years of ignorance, superstition, and stigma followed by 100 years of knowledge, superstition, and stigma” (p. 1). Epilepsy was first recorded in Babylonian times, as far back as 2000 bc. The recordings of that time describe many of the different seizure types that we see today and treatments that were essentially spiritual in manner (WHO, 1997a). In the 5th century Hippocrates believed that epilepsy was not a “sacred disease” but rather a disorder of the brain. The word “epilepsia” is of Greek origin and means to “seize” or “take hold of.” The stigma and superstition associated with this condition was pervasive. It was not until the 19th century, when the field of neurology appeared, that the concept of epilepsy being a disorder of the brain became widespread and the idea of it being a medical condition started to counter the magical thinking to date (WHO, 1997b). However, Rajendra Kale is correct: After 100 years of medical knowledge and learning about epilepsy, most of the world continues to shroud the disorder in mystical and spiritual terms. This means that many who suffer from the disorder do not receive help, those that do receive help are many times discriminated against, and epilepsy stays ”in the shadows“ (WHO, 1997c).
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
References
Alper, K., Devinsky, O., Perrine, K., Vazquez, B., & Luciano, D. (1993). Nonepileptic seizures and childhood sexual and physical abuse. Neurology, 43, 1950–1953.
American Academy of Neurology (1999). New guidelines offer recommendations for women with epilepsy. St. Paul, MN: Author.
Asian American Health Forum. (1990). Asian and Pacific Islander American population statistics (Monograph Series 1). San Francisco: Author.
Baumann, R. J., Wison, J. F., & Wiese, H. J. (1995). Kentuckians’s attitudes toward children with epilepsy. Epilepsia, 36, 1003–1008.
Bennett, T. L., & Maile, R. Ho. (1997). The neuropsychology of Pediatric epilepsy and antiepileptic drugs. In C. R. Reynolds & E. Fletcher-Janzen (Eds.), Handbook of clinical child neuropsychology (2nd ed.; pp. 517–538). New York: Plenum.
Bharucha, N. E., & Shorvon, S. D. (1997). Epidemiology in developing countries. In J. Engel & T. A. Pedley (Eds.), Epilepsy: A comprehensive textbook (pp. 105–118). Philadelphia: Lippincott-Raven.
Black, K. C., & Hynd, G. W. (1995). Epilepsy in the school aged child: Cognitive-Behavioral characteristics and effects on academic performance. School Psychology Quarterly, 10, 345–358.
Boivin, M. J., Chounramany, C., Giordani, B., Xaisida, S., Choulamountry, L., Pholsena, P., Crist, C. L., & Olness, K. (1996). Validating a cognitive ability testing protocol with Lao children for community development applications. American Psychologist, 10, 588–599.
Bourgeois, B. F. D. (1998). Antiepileptic drugs, learning, and behavior in childhood epilepsy. Epilepsia, 39, 913–921.
Carrazana, E., De Toledo, J., Tatum, W., Rivas-Vaszuez, R., Rey, G., & Wheeler, S. (1999). Epilepsy and religious experiences: Voodoo possession. Epilepsia, 40, 239–241.
Centers for Disease Control and Prevention. (1993). Use of race and ethnicity in public health surveillance summary of the CDC/ATSDR workshop. MMWR Weekly (No. RR-10).
Centers for Disease Control and Prevention. (1994). Health United States. Washington, DC: Author.
Centers for Disease Control and Prevention. (1995). Current trends prevalence of self-reported epilepsy—United States, 1986–1990. MMWR Weekly, 43, 810–811.
Chaplin, J. E., & Malmgren, K. (1999). Cross-cultural adaptation and use of the Epilepsy Psychosocial Effects Scale: Comparison between the psychosocial effects of chronic epilepsy in Sweden and the United Kingdom. Epilepsia, 40, 951–954.
Chen, J., & Gardner, H. (1997). Alternative assessment from a multiple intelligences theoretical perspective. In D. P. Flanagan, J. L. Genshaft, & P. L. Harrison (Eds.), Contemporary Intellectual Assessment (pp. 105–121). New York: Guilford.
Cooper, W. O., Federspiel, C. F., Griffin, M. R., & Hickson, G. B. (1997). New use of anticonvulsant medication among children enrolled in the Tennessee Medicaid Program. Archives of Pediatric Adolescent Medicine, 151, 1242–1246.
Cramer, J. A., Perrine, K., Devinsky, O., Bryant-Comstock, L., Meador, K., & Hermann, B. (1998). Development and cross-cultural translations of a 31-item Quality of Life in Epilepsy Inventory. Epilepsia, 39, 2148–2159.
DeBruyn, L. M. (1990). Tewa children who have epilepsy: A health care dilemma. American Indian and Alaska Native Mental Health Research, 4(2), 25–42.
Devinsky, O., Vicrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R. D. (1995). Development of the Quality of Life in Epilepsy Inventory. Epilepsia, 36, 1089–1104.
Dhanak, M. (1996). Racial differences in leukocyte counts. American Journal of Psychiatry, 153, 586–587.
Dodrill, C. B. (1978). A neuropsychological battery for epilepsy. Epilepsia, 19, 611–623.
Dodrill, C. B. (1992). Neuropsychological aspects of epilepsy. Psychiatric Clinics of North America, 15, 383–394.
Dodrill, C. B., & Batzel, L. W. (1994). The Washington Psychosocial Seizure Inventory and quality of life in epilepsy. In M. R. Trimble & W. E. Dodson (Eds.), Epilepsy and quality of life (pp. 109–122). New York: Raven.
Dodrill, C. B., Batzel, L. W., Queisser, H. R., & Temkin, N. R. (1980). An objective method for the assessment of psychological and social difficulties among epileptics. Epilepsia, 21, 123–135.
Dodrill, C., & Matthews, C. G. (1992). The role of neuropsychology in the assessment and treatment of persons with epilepsy. American Psychologist, 47, 1139–1142.
Ellis, B. B., & Kimmel, H. D. (1992). Identification of unique cultural response patterns by means of item response theory. Journal of Applied Psychology, 77, 177–184.
Epilepsy Foundation of America (1999a). Epilepsy: A report to the nation. Landover, MD: Author.
Epilepsy Foundation of America (1999b). Epilepsy facts and figures. Landover, MD: Author.
Epilepsy Foundation of America (1999c). Women and epilepsy initiative. Landover, MD: Author.
Epilepsy Ontario (1999). Women and epilepsy. Ontario, Canada: Author.
Everitt, A. D., & Sander, J. W. (1998). Incidence of epilepsy is now higher in elderly people than children. British Medical Journal, 3, 780.
Fisher, R. S. (1994). Imitators of epilepsy. New York: Demos.
Flack, J. M., Amaro, H., Jenkins, W., Kunitz, S., Levy, J., Mixon, M., & Yu, E. (1995). Epidemiology of minority health. Health Psychology, 14, 592–600.
Greenfield, P. M. (1997). You can’t take it with you: Why ability assessment doesn’t cross cultures. American Psychologist, 52, 115–124.
Griebel, M. L., Roscoe, A., Dykman, R. A., & Williams, J. (1997). Demographic factors related to treatment compliance in Pediatric patients with new onset seizures. Poster Session at American Epilepsy Society Annual Meeting, December 7–10, San Francisco, CA.
Hauser, W. A. (1990). Epidemiology of alcohol use and epilepsy: The magnitude of the problem. In R. J. Porter & R. Mattson (Eds.), Alcohol and seizures: Basic mechanisms and clinical concepts (pp. 12–21). Philadelphia: F. A. Davis.
Hauser, W. A. (1994). Seizures and epilepsy in the elderly. In A. Martin & J. Knoefel (Eds.), Clinical neurology of aging (2nd ed., pp. 595–610). New York: Oxford.
Hauser, W. A. (1997). Incidence and prevalence. In J. Engel & T. A. Pedley (Eds.), Epilepsy: A comprehensive textbook (pp. 47–57). Philadelphia: Lippincott-Raven.
Hauser, W. A., & Hesdorffer, D. C. (1990). Epilepsy: Frequency, causes and consequences. New York: Demos.
Hauser, W. A., Morris, M. L., Heston, L. L., & Anderson, V. E. (1986). Seizures and myoclonus in patients with Alzheimer’s disease. Neurology, 36, 1226–1230.
Hays, P. (1997). Culturally responsive assessment with diverse older clients. Professional Psychology: Research and Practice, 27(2), 188–193.
Hermann, B. P., Whitman, S., & Anton, M. (1992). A multietiological model of psychological and social dysfunction in epilepsy. In T. L. Bennett (Ed.), The neuropsychology of epilepsy (pp. 39–57). New York: Plenum.
Hempal, A. M., Risse, G. L., Frost, M. D., & Ritter, F. (1994). The utility of neuropsychological testing for identifying lateralization of the epileptogenic region in children. Epilepsia, 35(Suppl. 84), 80.
Hubert, T. J. (1992). Classroom performance and adaptive skills in children with Epilepsy. Journal of School Psychology, 30, 331–342.
International Epilepsy Commission (1989). Classification of epilepsy syndromes. Epilepsia, 30, 389–399.
Jones, B. P., Duncan, C. C., Mirsky, A. F., Post, R. M., & Theodore, W. H. (1998). Neuropsychological profiles in bipolar affective disorder and complex partial seizure disorder. American Psychologist, 8, 55–64.
Kale, R. (1997). Bringing epilepsy out of the shadows. British Medical Journal, 3(15), 2–3.
Klein, P., & Herzog, A. G. (1997). Endocrine aspects of partial seizures. In S. C. Schachter & D. L. Schomer (Eds.), The comprehensive evaluation and treatment of epilepsy (pp. 207–232). Boston: Academic Press.
Krumholz, A., Grufferman, S., Orr, S. T., & Stern, B. J. (1989). Seizures and seizure care in an emergency department. Epilepsia, 30, 175–181.
Lesser, R. P. (1996). Psychogenic seizures. Neurology, 46, 1499–1507.
Levy, J. E. (1987). Psychological and social problems of epileptic children in four southwestern Indian tribes. Journal of Community Psychology, 15, 307–315.
Levy, J. E., Neutra, R., & Parker, D. (1979). Life careers of Navajo epileptics and convulsive hysterics. Social Science and Medicine, 13B(1), 53–66.
Lin, K.-M., Anderson, D., & Poland, R. E. (1995). Ethnicity and psychopharmacology: Bridging the gap. Psychiatric Clinics of North America, 18, 635–647.
Manly, J. J., Jacobs, D. M., Sano, M., Bell, K., Merchant, C. A., Small, S. A., & Stern, Y. (1998). Cognitive test performance among nondemented elderly African Americans and whites. Neurology, 50, 1238–1245.
McKenzie, K. (1996). Describing race, ethnicity, and culture in medical research. British Medical Journal, 312, 1054.
McLin, W. M. (1992). Introduction to issues in psychology and epilepsy. American Psychologist, 47, 1124–1125.
Medina, M. T., Rosas, E., Rubio-Donnadieu, F., & Sotelo, J. (1990). Neurocysticercosis as the main cause of late-onset epilepsy in Mexico. Archives of Internal Medicine, 150, 325–327.
Minh-Thu, T., & Rausch, R., (1996). Stress and employment status among multiple ethnic groups of individuals with epilepsy. Poster Session at American Epilepsy Society Annual Meeting, December 7–10, San Francisco, CA.
Mitchell, W. G., Scheier, L. M., & Baker, S. A. (1994). Psychosocial, behavioral and medical outcomes in children with epilepsy: A developmental risk factor model using longitudinal data. Pediatrics, 94, 471–477.
Murphy, J. V., & Dehkharghani, F. (1994). Diagnosis of childhood seizure disorders. Epilepsia, 35(Suppl. 2), S7–S17.
Murphy, C. C., Trevathan, E., & Yeargin-Allsopp, M. (1995). Prevalence of epilepsy and epileptic seizures in 10-year-old children: Results from the Metropolitan Atlanta Developmental Disabilities Study. Epilepsia, 36, 866–872.
National Institute of Neurological Disorders and Stroke (1999). Epilepsy. Bethesda, MD: National Institutes of Health Office of Communications and Public Liaison.
Neutra, R., Levy, J. E., & Parker D. (1977). Cultural expectations versus reality in Navajo seizure patterns and sick roles. Culture, Medicine and Psychiatry, 1, 255–275.
Novelly, R. A. (1992). The debt of neuropsychology to the epilepsies. American Psychologist, 47, 1126–1129.
Oquendo, M. A. (1995). Differential diagnosis of ataque de nervios. American Journal of Orthopsychiatry, 65(1), 60–65.
Pedley, T. A. (1995). Epilepsy and education. Epilepsia, 36(Suppl. 8), S18–S22.
Penn, N. E., Kar, S., Kramer, J., Skinner, J., & Zambrana, R. E. (1995). Ethnic minorities, health care systems, and behavior. Health Psychology, 14, 641–646.
Sander, J. W., & O’Donoghue, M. F. (1997). Epilepsy: Getting the diagnosis right. British Medical Journal, 312, 158.
Serge, P. L. J. C. (1996). Epilepsy in a large urban public hospital in the Midwest. Poster Session at American Epilepsy Society Annual Meeting, December 7–10, San Francisco, CA.
Shafer, P. O. (1998). Counseling women with epilepsy. Epilepsia, 39(Suppl. 8), S38–S44.
Shamansky, S. L., & Glaser, G. H. (1979). Socioeconomic characteristics of childhood seizure disorders in the New Haven area: An epidemiologic study. Epilepsia, 20, 457–474.
Simpson, G., Bloom, B., Cohen, R. A., & Parsons, E. (1993). Access to health care Part 1: Children. Vital and Health Statistics Data from the National Health Interview Survey No. 191. Hyattsville, MD: U.S. Department of Health and Human Services.
Smith, P. E. M. (1998). The teenager with epilepsy. British Medical Journal, 317, 960–961.
Snyder, P. J., & McConnell, H. W. (1997). Neuropsychological aspects of epilepsy in the elderly. In P. D. Nussbaum (Ed.), Handbook of neuropsychology of aging (pp. 271–279). New York: Plenum.
Stauss, E., Hunter, M., & Wada, J. (1995). Risk factors for cognitive impairment in epilepsy. Neuropsychology, 9, 457–463.
Stein, R. A., & Strickland, T. L. (1998). A review of the neuropsychological effects of commonly used prescription medicine. Archives of Clinical Neurology, 13, 259–284.
Strickland, T. L., Ranganath, V., Lin, K.-M., & Poland, R. E. (1991). Psychopharmacological considerations in the treatment of black American populations. Psychopharmacology Bulletin, 27, 441–448.
Sue, D. W., & Sue, D. (1990). Counseling the culturally different (2nd ed). New York: Wiley. (1981, 1st ed.)
Tohen, M. (1996). Blood dyscrasias with carbamazepine and valproate: A pharmacoepidemiological study of 2, 228 patients at risk: Reply. American Journal of Psychiatry, 153, 587.
Trostle, J. A., Hauser, W. A., Sharbrough, F. W. (1989). Psychologic and social adjustment to epilepsy in Rochester, Minnesota. Neurology, 39, 633–637.
Tucker, R. (1998). Seizure disorders presenting with psychiatric symptomatology. Psychiatric Clinics of North America, 21, 625–635.
Watanabe, M., Iwahashi, K., Kugoh, T., & Suwaki, H. (1998). The relationship between phenytoin pharmacokinetics and the CYP2C19 genotype in Japanese epileptic patients. Clinical Neuropharmacology, 21, 122–126.
Williams, J., Roscoe, D., Griebel, M. L., Lange, B., & Bates, S. (1996). AED effects on cognition and behavior in children. Poster Session at American Epilepsy Society Annual Meeting, December 7–10, San Francisco, CA.
World Health Organization (1995). Epilepsy demographics. Geneva, Switzerland: Author.
World Health Organization (1997a). Epilepsy: Historical overview (Fact Sheet N 168). Geneva, Switzerland: Author.
World Health Organization (1997b). Epilepsy: Aetiology, epidemiology and prognosis (Fact Sheet N 165). Geneva, Switzerland: Author.
World Health Organization (1997c). Bringing epilepsy out of the shadows (Press Release WHO/48). Geneva, Switzerland: Author.
World Health Organization (1997d). Epilepsy: social consequences and economic aspects (Fact Sheet N166). Geneva, Switzerland: Author.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2000 Springer Science+Business Media New York
About this chapter
Cite this chapter
Fletcher-Janzen, E. (2000). Multicultural Perspectives on the Neuropsychological Assessment and Treatment of Epilepsy. In: Fletcher-Janzen, E., Strickland, T.L., Reynolds, C.R. (eds) Handbook of Cross-Cultural Neuropsychology. Critical Issues in Neuropsychology. Springer, Boston, MA. https://doi.org/10.1007/978-1-4615-4219-3_12
Download citation
DOI: https://doi.org/10.1007/978-1-4615-4219-3_12
Publisher Name: Springer, Boston, MA
Print ISBN: 978-1-4613-6894-6
Online ISBN: 978-1-4615-4219-3
eBook Packages: Springer Book Archive