Abstract
This entry discusses promoting the healthy development of youth living with a chronic illness. Chronic illness has been defined as a condition that often appears at birth or early childhood, interferes with daily functioning, causes hospitalizations, and involves symptoms that can often be adequately managed but not cured (Pless & Pinkerton, 1975; Wallander & Thompson, 1995). Traditionally, chronic illness has been differentiated from terminal illness in that chronic illnesses are not typically fatal. However, advances in medicine have enabled previously fatal illnesses to become chronic. Diseases most often classified as chronic among adolescents include asthma, cancer, cerebral palsy, congenital heart disease, cystic fibrosis, insulin-dependent diabetes mellitus (IDDM), hemophilia, human immunodeficiency virus (HIV), juvenile rheumatoid arthritis, leukemia, renal disease, sickle cell anemia, epilepsy, and spina bifida.
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References
Adams, G.R., Gullotta, T.P., & Montemayor, R. (1992). Adolescent identity formation. Newbury Park, CA: Sage.
American Academy of Pediatric Committee on School Health (2001). School health centers and other integrated school health services: Committee on School Health. Pediatrics, 107(1), 198–201.
American Lung Association. (1998). Trends in asthma morbidity and mortality. Washington, DC: Author.
Anderson, B.J., Brackett, J., Ho, J., & Laffel, L.M.B. (2000). An intervention to promote family teamwork in diabetes management tasks: Relationships among parental involvement, adherence to blood glucose monitoring, and glycemic control in young adolescents with type 1 diabetes. In D. Drotar (Ed.), Promoting adherence to medical treatment in chronic childhood illness: Concepts, methods, and inter- ventions (pp. 347–365). Mahwah, NJ: Lawrence Erlbaum Associates.
Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, NJ: Prentice-Hall.
Baranowski, T., Perry, C.L., & Parcel. G.S. (1997). How individuals, environments, and health behavior interact: Social cognitive theory. In K. Glanz, F.M. Lewis, & B.K. Rimer (Eds.), Health behavior and health education: Theory, research, and practice (2nd ed., pp. 153–179). San Francisco: Jossey-Bass.
Bartholomew, L.K., Czyzewski, D.I., Parcel, G.S., Swank, P.R., Sockrider, M.M., Mariotto, M.J., Schidlow, D.V., Fink, R.J., & Seilheimer, D.K. (1997). Self-management of cystic fibrosis: Short-term outcomes of the Cystic Fibrosis Family Education Program. Health Education and Behavior, 24(5), 652–666.
Bender, B.G. (1996). Establishing a role for psychology in respiratory med- icine. In R.J. Resnick & R.H. Rozensky (Eds.), Health psychology through the lifespan: Practice and research opportunities (pp. 227–238). Washington, DC: American Psychological Association.
Bernard-Bonnin, A., Stachenko, S., Bonin, D., Charette, C., & Rousseau, E. (1995). Self-management teaching programs and morbidity of pedi- atric asthma: A meta-analysis. Journal of Allergy and Clinical Immunology, 95, 34–1.
Bronfenbrenner, U. (1992). Ecological systems theory. In R. Vasta (Ed.), Six theories of child development: Revised formulations and current issues (pp. 187–249). Bristol, PA: Jessica Kingsley.
Centers for Disease Control and Prevention (2001). HIV/AIDS surveillance report. Atlanta: Author.
Dunbar-Jacob, J., Burke, L.E., & Puczynski, S. (1998). Clinical assessment and management of adherence to medical regimens. In P.M. Nicassio and T.W. Smith (Eds.), Managing chronic illness. Washington, DC: American Psychological Association.
Drotar, D., Riekert, K.A., Burgess, E., Levi, R., Nobile, C., Kaugars, A.S., & Walders, N. (2000). Treatment adherence in childhood chronic ill- ness: Issues and recommendations to enhance practice, research, and training. In D. Drotar (Ed.), Promoting adherence to medical treat- ment in chronic childhood illness: Concepts, methods, and interventions (pp. 367–381). Mahwah, NJ: Lawrence Erlbaum Associates.
Elkind, D. (1978). Understanding the young adolescent. Adolescence, 13, 127–134.
Erickson, S.R., Ascione, F.J., Kirking, D.M., & Johnson, C.E. (1998). Use of a paging system to improve medication self-management in patients with asthma. Journal of the American Pharmaceutical Association, 38, 767–769.
Erikson, E.H. (1968). Identity: Youth and crisis. New York: Norton.
Garmezy, N. (1991). Resilience in children’s adaptation to negative life events and stressed environments. Pediatric Annals, 20, 460–466.
Garmezy, N., Masten, A.S., & Tellegen, A. (1984). The study of stress and competence in children: A building block for developmental psychopathology. Child Development, 55, 97–111.
Gavaghan, M.P., & Roach, J.E. (1987). Ego identity development of ado- lescents with cancer. Journal of Pediatric Psychology, 12(2), 203–213.
Gebo, K.A., Chaisson, R.E., Folkemer, J.G., Bartlett, J.G., & Moore, R.D.(1999). Costs of HIV medical care in the era of highly active anti-retroviral therapy. AIDS, 13, 963–969.
Geller, M. (1996). Acute management of severe childhood asthma. AACN Clinical Issues, 7, 519–528.
Hains, A.A., Davies, W.H., Behrens, D., & Biller, J.A. (1997). Cognitive behavioral interventions for adolescents with cystic fibrosis. Journal of Pediatric Psychology, 22(5), 669–687.
Harper, G.W. (1999). A developmentally sensitive approach to clinical hyp- nosis for chronically and terminally ill adolescents. American Journal of Clinical Hypnois, 42, 50–60.
Havighurst, R.J. (1972). Developmental tasks and education (3rd ed.). NewYork: McKay.
Hinrichsen, G.A., Revenson, T.A., & Shinn, M. (1985). Does self-help help? An empirical investigation of scoliosis peer support groups.Journal of Social Issues, 41(1), 65–87.
Johnson, K.B., Ravert, R.D., & Everton, A. (2001). Hopkins Teen Central:Assessment of an internet-based support system for children with cystic fibrosis. Pediatrics, 107(2), E24.
Johnson, S.B. (1995). Insulin-dependent diabetes mellitus in childhood.In M.C. Roberts (Ed.), Handbook of pediatric psychology (2nd ed.).New York: Guilford Press.
Kaplan, R.M., Chadwick, M.W., & Schimmel, L.E. (1985). Social learning intervention to promote metabolic control in type I diabetes mellitus:Pilot experiment results. Diabetes Care, 8, 152–155.
Kibby, M.Y., Tyc, V.L., & Mulhern, R.K. (1998). Effectiveness of psycho- logical intervention for children and adolescents with chronic medicalillness: A meta-analysis. Clinical Psychology Review, 18(1), 103–117.
Koocher, G.P. (1996). Pediatric oncology: Medical crisis intervention. In R.J. Resnick & R.H. Rozensky (Eds.), Health psychology through the lifespan: Practice and research opportunities (pp. 227–238).Washington, DC: American Psychological Association.
La Greca, A.M. (1990). Social consequences of pediatric conditions: Fertile area for future investigation and intervention? Journal of Pediatric Psychology, 15, 285–307.
La Greca, A.M., & Varni, J.W. (1993). Editorial: Interventions in pediatric psychology: A look toward the future. Journal of Pediatric Psychology, 18(6), 667–679.
Lazarus, R.S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
Lieberman, D.A. (2001). Management of chronic pediatric diseases with interactive health games: Theory and research findings. Journal of Ambulatory Care Management, 24(1), 26–38.
Lemanek, K.L., Buckloh, L.M., Woods, G., & Butler, R. (1995). Diseases of the circulatory system: Sickle cell disease and hemophilia. In M.C.Roberts (Ed.), Handbook of pediatric psychology (2nd ed.). New York:Guilford Press.
Litt, I.F., & Cuskey, W.R. (1980). Compliance with medical regimens during adolescence. Pediatric Clinics of North America, 27, 1–15.
Mannino, D.M., Homa, D.M., Pertowski, C.A., Ashizawa, A., Nixon, L.L.,Johnson, C.A., Ball, L.B., Jack, E., Kang, D.S. (1998, April 24).Surveillance for asthma-United States, 1960–1995. In CDC Surveillance Summaries. Morbidity and Mortality Weekly Report,47(SS-1), 1–28.
Mehta, S., Moore, R.D., & Graham, N.M. (1997). Potential factors affect- ing adherence with HIV therapy. AIDS, 11, 1665–1670.
Meijer, A.M., & Oppenheimer, L. (1995). The excitation-adaptation model of pediatric chronic illness. Family Process, 34, 441–454.
Melamed, B.G., Kaplan, B., & Fogel, J. (2001). Childhood health issues across the life span. In A. Baum, T.A. Revenson, & J.E. Singer (Eds.), Handbook of health psychology (pp. 449–457). Mahwah, NJ: Lawrence Erlbaum Associates.
Pidgeon, V. (1989). Compliance with chronic illness regimens: School- aged children and adolescents. Journal of Pediatric Nursing, 4(1), 36–47.
Pless, I.B., & Pinkerton, P. (1975). Chronic childhood disorders: Promoting patterns of adjustment. Chicago: Year Book Medical.
Rapoff, M.A. (1999). Adherence to pediatric medical regimens. New York: Kluwer Academic/Plenum.
Rapoff, M.A. (2000). Facilitating adherence to medical regimens for pedi- atric rheumatic diseases: Primary, secondary, and tertiary prevention. In D. Drotar (Ed.), Promoting adherence to medical treatment in chronic childhood illness (pp. 329–345). Mahwah, NJ: Lawrence Erlbaum Associates.
Riekert, K.A., & Drotar, D. (2000). Adherence to medical treatment in pediatric chronic illness: Critical issues and answered questions. In D. Drotar (Ed.), Promoting adherence to medical treatment in chronic childhood illness (pp. 3–32). Mahwah, NJ: Lawrence Erlbaum Associates.
Roberts, M.C. (1992). Vale dictum: An editor’s view of the field of pediatric psychology. Journal of Pediatric Psychology, 13, 329–347.
Rotheram-Borus, M.J., Lee, M.B., Murphy, D.A., Futterman, D., Duan, N., Birnbaum, J.M., & Lightfoot, M. (2001). Teens linked to care consor- tium. Efficacy of preventive intervention for youths living with HIV. American Journal of Public Health, 91(3), 400–405.
Santelli, J., Kouzis, A., & Newcomer, S. (1996). School-based health cen- ters and adolescent use of primary care and hospital care. Journal of Adolescent Health, 19(4), 267–275.
Sayer, A.G., Hauser, S.T., Jacobson, A.M., Willett, J.B., & Cole, C.F. (1995). Developmental influences on adolescent health. In J.L. Wallander & L.J. Siegel (Eds.), Adolescent Health Problems. New York: Guilford Press.
Stark, L.J., Jelalian, E., & Miller, D.L. (1995). Cystic fibrosis. In M.C. Roberts (Ed.), Handbook of pediatric psychology (2nd ed.). New York: Guilford Press.
Stefl, M.E., Shear, E.S., & Levinson, J.E. (1989). Summer camps for juve- niles with rheumatic disease: Do they make a difference? Arthritis Care and Research, 2(1), 10–15.
Tebbi, C.K. (1993). Treatment compliance in childhood and adolescence. Cancer, 71(10), 3441–3449.
Thompson, R.J., Gustafson, K.E., & Gil, K.G. (1995). Psychological adjustment of adolescents with cystic fibrosis or sickle cell disease and their mothers (pp. 232–247). In J.L. Wallander & L.J. Siegel (Eds.), Adolescent Health Problems. New York: Guilford Press.
Thompson, R.J., Jr., Gustafson, K.E., Hamlett, K.W., & Spock, A. (1992). Psychological adjustment of children with cystic fibrosis: The role of child cognitive processes and maternal adjustment. Journal of Pediatric Psychology, 17, 741–755.
Van Sciver, M.M., D’Angelo, E.J., Rappaport, L., & Woolf, A.D. (1995). Pediatric compliance and the roles of distinct treatment characteristics, treatment attitudes, and family stress: A preliminary report. Developmental and Behavioral Pediatrics, 16(5), 350–358.
Varni, J.W., La Greca, A.M., & Spirito, A. (2000). Cognitive-behavioral interventions for children with chronic health conditions. In P.C. Kendall (Ed.), Child & adolescent therapy: Cognitive-behavioral pro- cedures (2nd ed., pp. 291–333). New York, NY: Guilford Press.
Varni, J.W., & Setoguchi, Y. (1991). Correlates of perceived physical appearance in children with congenital/acquired limb deficiencies. Journal of Developmental and Behavioral Pediatrics, 12, 171–176.
Varni, J.W., & Setoguchi, Y. (1996). Perceived physical appearance and adjustment of adolescents with congenital/acquired limb deficiencies: A path-analytic model. Journal of Clinical Child Psychology, 25(2), 201–208.
Walco, G.A., Varni, J.W., & Ilowite, N.T. (1992). Cognitive-behavioral pain management in children with juvenile rheumatoid arthritis. Pediatrics, 89(6), 1075–1079.
Wallander, J.L., & Thompson, R.J., Jr. (1995). Psychosocial adjustment of children with chronic physical conditions. In M.C. Roberts (Ed.), Handbook of pediatric psychology (2nd ed.). New York: Guilford Press.
Wallander, J.L., & Varni, J.W. (1992). Adjust in children with chronic phys- ical disorders: Programmatic research on a disability-stress-coping model. In A.M. La Greca, L.J. Siegel, J.L. Wallander, & C.E. Walker (Eds.), Stress and coping in child health (pp. 279–298). New York: Guilford Press.
Wallander, J.L., & Varni, J.W. (1995). Appraisal, coping, and adjustment in adolescents with a physical disability. In J.L. Wallander & L.J. Siegel (Eds.), Adolescent health problems. New York: Guilford Press.
Wood, B.L. (1994). One articulation of the structural family therapy model: A biobehavioral family model of chronic illness in children. Journal of Family Therapy, 16(1), 53–72.
World Health Organization. (2000). World Health Report 2000. Geneva, Switzerland: Author.
Wysocki, T., Greco, P., Harris, M.A., & White, N.H. (2000). Behavioral family systems therapy for adolescents with diabetes. In D. Drotar (Ed.), Promoting adherence to medical treatment in chronic childhood illness: Concepts, methods, and interventions (pp. 367–381). Mahwah, NJ: Lawrence Erlbaum Associates.
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Harper, G.W., Hosek, S.G. (2003). Chronic Disease, Adolescence. In: Gullotta, T.P., et al. Encyclopedia of Primary Prevention and Health Promotion. Springer, Boston, MA. https://doi.org/10.1007/978-1-4615-0195-4_41
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DOI: https://doi.org/10.1007/978-1-4615-0195-4_41
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