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A Practical Guide: Role of the Independent Living Donor Advocate: Protect or Advocate or Is it Both?

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Living Donor Advocacy
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Abstract

What does it mean to be an advocate for a potential living donor or to protect a donor’s “best interest?” When might the imperative to protect a potential donor from harm morph into paternalism? How might the independent living donor advocate (ILDA)’s perceived advocacy for a potential donor be in direct conflict with respect for the individual’s autonomous decision making? How might the values of an ILDA affect whether or not a potential donor is ruled out? Using case-based examples, this chapter explores key ethical underpinnings that inform and assist an ILDA to traverse the complexities and pitfalls of challenging cases.

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References

  1. Criteria for selection of living donor needs to be consistent with general principles of medical ethics. Federal Register, Vol. 72, No. 61, March 30, 2007, Dept. of Health and Human Resources, Centers for Medicare and Medicaid Services 42 CFR parts 405,482,488,498/Rules and Regulations.

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  4. Wikipedia, The Free Encyclopedia. Coercion. http:// en.wikipedia.org/wiki:coercion_persuasion. (Accessed June 24, 2013).

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Correspondence to Betsy B. Johnson MA, MEd .

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© 2014 Springer Science+Business Media New York

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Johnson, B. (2014). A Practical Guide: Role of the Independent Living Donor Advocate: Protect or Advocate or Is it Both?. In: STEEL, J. (eds) Living Donor Advocacy. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-9143-9_22

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  • DOI: https://doi.org/10.1007/978-1-4614-9143-9_22

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  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4614-9142-2

  • Online ISBN: 978-1-4614-9143-9

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