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Story Behind the Story

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Abstract

Each donor brings along a unique and compelling story. The donation of the organ is one beautiful gift; the story that brought the donor to this point is yet another gift. This story touches the lives of the living donor advocate (LDA) and the transplant team. The LDA has the blessing of hearing and holding on to those stories. The other aspect of this storytelling is to ask the questions of the donor that will unpack and unlock some of the meaning and reasoning as to why they feel compelled, or why they are questioning their decision to donate. These stories open the door to understanding both the LDA and the donor; we understand better, the relationships and the struggles of the donor and sometimes the recipient. This chapter shares with you stories of related, nonrelated, and altruistic donors and donors who wanted to donate, but could not for either psychosocial or medical reasons. There is also an analysis of each of the stories.

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Suggested Readings

  1. Boisen AT. The living human document. In: Dykstra RC, editor. Images of pastoral care: classic readings. St. Louis: Chalice Press; 2005.

    Google Scholar 

  2. Gaydos HL. Issues and innovations 2 nursing practice. Understanding personal narrative: An approach to practice. J Adv Nursing. 2005;49(3):254–9.

    Article  Google Scholar 

  3. Gerkin CV. Reclaiming the living human document. In: Dykstra RC, editor. Images of pastoral care: Classic readings. St. Louis: Chalice Press; 2005.

    Google Scholar 

  4. Hoffman PJ. The most altruistic living organ donor: A best friend. JAOA. 2011 Jul;111(7):445–449.

    Google Scholar 

  5. Kornfeld MZ (for Blanton-Peale Institute). Cultivating wholeness: A guide to care and counseling in faith communities. New York: Continuum; 2001.

    Google Scholar 

  6. O’Connell Killen P, DeBeer J. The art of theological reflection. New York: Crossroad; 2006.

    Google Scholar 

  7. Saijad I, Baines LS, Salifu M, Jindal RM. The dynamics of recipient-donor relationships in living kidney transplantation. Am J Kidney Dis. 2007 Nov;50(5):834–54.

    Article  Google Scholar 

  8. Tong A, Chapman JR, Wong G, Kanellis J, McCarthy G, Craig JC. The motivations and experiences of living kidney donors: A thematic synthesis. Am J Kidney Dis. 2012;60(1):15–26.

    Article  PubMed  Google Scholar 

  9. Waterman AD, Stanley SL, Covelli T, Hazel E, Hong BA, Brennan DC. Living donation decision making: Recipients’ concerns and educational needs. Prog Transplant. 2006 Mar;16(1):17–23.

    PubMed  Google Scholar 

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Correspondence to Barbara L. Rutt .

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© 2014 Springer Science+Business Media New York

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Rutt, B. (2014). Story Behind the Story. In: STEEL, J. (eds) Living Donor Advocacy. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-9143-9_16

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  • DOI: https://doi.org/10.1007/978-1-4614-9143-9_16

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  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4614-9142-2

  • Online ISBN: 978-1-4614-9143-9

  • eBook Packages: MedicineMedicine (R0)

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