Abstract
This chapter concentrates on professionals working in education systems, mainly schools and kindergartens that provide. The special education school is an important system for students with disabilities, as it has the capacity to respond to the needs of both the child with disability and the parents, on an ecological level (i.e., addressing all of their contextual elements, such as culture, community, and environmental conditions) and on a systemic level (special education schools concentrate on the individual child’s needs, rather than on groups or the entire class). In addition, schools function as a primary framework for early prevention. This chapter uses an example of a disability from the field of mental health.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Behr, S. K., Murphy, D. L., & Summer, J. A. (1992). User’s manual: Kansas inventory of parental perceptions. Lawrence: University of Kansas, Beach Center on Families and Disability.
Bernheimer, L. P., Gallimore, R., & Weisner, T. S. (1990). Ecocultural theory as a context for the individual family service plan. Journal of Early Intervention, 14, 219–233.
Bernheimer, L. B., Weisner, T. S., & Lowe, E. D. (2003). Impacts of children with troubles on working poor families: Experimental and mixed-method evidence. Mental Retardation, 41, 403–419.
Blacher, J. (1984). Sequential stages of parental adjustment to a birth of a child with handicaps: Fact or artifact? Mental Retardation, 22, 55–68.
Blacher, J., & Hatton, C. (2007). Families in context. In S. Odom, R. Horner, M. Snell, & J. Blacher (Eds.), Handbook on developmental disabilities (pp. 531–551). New York: Guilford Press.
Blacher, J., Neece, C. L., & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507–513.
Bornstein, M. H. (Ed.). (2002). Handbook of parenting (2nd ed., Vol. 1–5). Mahwah, NJ: Lawrence Erlbaum.
Brown, S. (1998). The orchestrated body: An anthropology of embodiment and experience in brain injured children. Ph.D. thesis, University of Edinburgh.
Byrne, E. A., Cunningham, C. C., & Sloper, P. (1988). Families and their children with Down’s syndrome: One feature in common. London: Routledge.
Colombo, M. W. (2006). Building school partnership with culturally and linguistically diverse families. Phi Delta Kappan, 88, 314–318.
Coonrod, E. E., & Stone, W. L. (2004). Early concerns of parents of children with autistic and nonautistic disorders. Infants and Young Children, 17, 258–268.
Cunningham, C. C., & Davis, H. (1985). Working with parents: Frameworks for collaboration. Buckingham: Open University Press.
Dale, N. (1996). Working with families of children with special needs: Partnership and practice. London: Routledge.
Daley, T. C. (2004). From symptom recognition to diagnosis: Children with autism in India. Sociology Science and Medicine, 58, 1323–1335.
De Carvalho, M. E. P. (2001). Family-school interactions: Lessons from personal experience. In M. E. P. de Carvalho (Ed.), Rethinking family-school relations: A critique of parental involvement in schooling: Socio-cultural, political, and historical studies in education (pp. 29–42). Mahwah, NJ: Erlbaum.
DeCastro-Ambrosetti, D., & Cho, G. (2005). Do parents value education? Teachers’ perceptions of minority parents. Multicultural Education, 13, 44–46.
Devlieger, P. J., & Trach, J. S. (1999). Mediation as a transition process: The impact on postschool employment outcomes. Exceptional Children, 65, 507–523.
Dishion, T. J., & McMahon, R. J. (1998). Parental monitoring and the prevention of child and adolescent problem behavior: A conceptual and empirical formulation. Clinical Child and Family Psychology Review, 1, 61–75.
Drotar, D., Bashiewicz, A., Irvin, A., Kennnell, J., & Klaus, M. (1975). The adaptation of parents to the birth of an infant with a congenital malformation: A hypothetical model. Pediatrics, 55, 710–717.
Dunlap, G., & Fox, L. (2007). Parent-professional partnerships: A valuable context for addressing challenging behaviors. International Journal of Disability, Development and Education, 54(3), 273–285.
Edgerton, R. B. (1970). Mental retardation in non-Western societies: Toward a cross-cultural perspective on incompetence. In H. C. Haywood (Ed.), Social-cultural aspects of mental retardation (pp. 523–559). New York: Appleton.
Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50, 862–873.
Faircloth, S. C. (2006). Early childhood education among American Indian/Alaskan native children with disabilities: Implications for research and practice. Rural Special Education Quarterly, 25, 25–31.
Feinberg, E., & Vacca, J. (2000). The drama and trauma of creating policies on autism: Critical issues to consider in the new millennium. Focus on Autism and Other Developmental Disabilities, 15, 130–138.
Fox, L., Vaughn, B. J., Wyatte, M. L., et al. (2002). We can’t expect other people to understand: Family perspectives on problem behavior. Exceptional Children, 68, 437–450.
Gallimore, R., Bernheimer, L. P., & Weisner, T. S. (1999). Family life is more than managing crisis: Broadening the agenda of research on families adapting to childhood disability. In R. Gallimore, L. P. Bernheimer, D. L. MacMillan, D. L. Speece, & S. Vaughn (Eds.), Developmental perspectives on children with high incidence disabilities (pp. 55–80). Mahwah: Erlbaum.
Gallimore, R., Coots, J., Weisner, T., et al. (1996). Family responses to children with early developmental delays. II. Accommodation intensity and activity in early and middle childhood. American Journal of Mental Retardation, 101, 215–232.
Goin, R. P., & Myers, B. J. (2004). Characteristics of infantile autism: Moving toward earlier detection. Focus on Autism and Other Developmental Disabilities, 19, 5–12.
Gray, R. M., & Steinberg, L. (1999). Unpacking authoritative parenting: Reassessing a multidimensional construct. Journal of Marriage and the Family, 61(3), 574–587.
Grove, K. A., & Fisher, D. (1999). Entrepreneurs of meaning: Parents and the process of inclusive education. Remedial and Special Education, 20(4), 208–215.
Hastings, R. P., Beck, A., & Hill, C. (2005). Positive contributions made by children with an intellectual disability in the family: Mothers’ and father’ perceptions. Journal of Intellectual Disabilities, 9, 155–165.
Hatton, C., & Emerson, E. (2003). Families with a person with intellectual disabilities: Stress and impact. Current Opinion in Psychiatry, 16, 497–501.
Heinemann, G. D. (2002). Teams in health care settings. In G. D. Heinemann & A. M. Zeiss (Eds.), Team performance in health care: Assessment and development. New York: Kluwer Academic/Plenum.
Hill, R. (1958). Generic features of families under stress. Social Casework, 49, 139–150.
Hoagwood, K. E., Cavaleri, M., Olin, S. S., Burns, B. J., Gruttadaro, J. D., & Hughes, R. (2010). Family support in children’s mental health: A review and synthesis. Clinical Child and Family Psychology Review, 13, 1–45.
Huxham, C. (Ed.). (1996). Creating collaborative advantage. London: Sage.
Kalyanpur, M., & Rao, S. S. (1991). Empowering low-income black families of handicapped children. American Journal of Orthopsychiatry, 61, 523–532.
Kats, D., & Kahn, R. (1978). The social psychology of organization. New York: Wiley.
Kelly, G. A. (1995). The psychology of personal constructs. Vol. 1: A theory of personality. Vol. 2: Clinical diagnosis. New York: W.W. Norton.
Keogh, B. K., Garnier, H. E., Bernheimer, L. P., et al. (2000). Models of child–family interactions for children with developmental delays: Child-driven or transactional? American Journal of Mental Retardation, 105, 32–46.
Kessler, R. C., Berglund, P., Demler, O., Jin, R., & Walters, E. E. (2005). Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the national comorbidity survey replication. Archives of General Psychiatry, 62, 593–602.
Lasker, R. D., & Weiss, E. S. (2003). Broadening participation in community problem solving: A multidisciplinary model to support collaborative practice and research. Journal of Urban Health, 80(1), 14–47.
Lazovsky, L. (1999). The function of social support and religious faith in parental coping with children’s disabilities. M.A. thesis, the School of Social Work, the Hebrew University of Jerusalem (in Hebrew).
Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.
Littlewood, M. (1988). West Derbyshire community mental health team. In R. Echlin (Ed.), Community mental health centres/teams: Information pack. London: GPMH.
Lopez, G. R. (2001). The value of hard work: Lessons on parent involvement from a(n) immigrant household. Harvard Educational Review, 71, 416–437.
Manor-Binyamini, I. (2007). A pilot study for locating and mapping children with disabilities in the Bedouin sector. Internal report, unpublished.
Manor-Binyamini, I. (2011a). Multi-disciplinary teamwork in special education school–ethnographic triangle. In M. Haines & A. Pearce (Eds.), Child and school psychology. Hauppauge, NY: Nova.
Manor-Binyamini, I. (2011b). Mothers to children with developmental disabilities in the Bedouin community in Israel. Journal of Autism and Developmental Disabilities, 41(5), 610–617.
Manor-Binyamini, I. (2012a). Parental coping with developmental disorders in adolescents within the ultraorthodox Jewish community in Israel. Journal of Autism and Developmental Disorders, 42(5), 815–826.
Manor-Binyamini, I. (2012b). Parenting children with conduct disorder in Israel: Caregiver burden and the sense of coherence. Community Mental Health Journal, 48(6), 781–785.
Maul, C. A., & Singer, G. H. (2009). Just good different things—Specific accommodations families make to positively adapt to their children with developmental disabilities. Topics in Early Childhood Special Education, 29(3), 155–170.
McCashen, W. (2005). The strengths approach. Bendigo: St Lukes Innovative Resources.
Minnes, P. M., Nachshen, J., & Woodford, L. M. (2003). The changing role of families. In I. Brown & M. Percy (Eds.), Developmental disabilities in Ontario (2nd ed., pp. 663–676). Toronto, ON: Association on Developmental Disabilities.
North, J., & Carruthers, A. (2005). Inclusion in early childhood. In P. Foreman (Ed.), Inclusion in action (pp. 66–99). Melbourne: Thomson.
O’Connor, T. G. (2002). Annotation: The effects’ of parenting reconsidered: Findings, challenges and applications. Journal of Child Psychology and Psychiatry, 43(5), 555–572.
Oliver, B., Pike, A., & Plomin, R. (2002). The validity of a parent-based assessment of cognitive abilities in three-year olds. Early Child Development and Care, 172, 337–348.
Patterson, J. M. (1993). The role of family meanings in adaptation to chronic illness and disability. In A. P. Turnbull, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability (pp. 221–238). Baltimore: Paul Brookes.
Patterson, J. M. (2002). Integrating family resilience and family stress theory. Journal of Marriage and Family, 64, 349–360.
Patterson, G. R., Reid, J. B., & Dishion, T. J. (1992). A social learning approach: IV. Antisocial boys. Eugene, OR: Castalia.
Payne, M. (2000). Teamwork in multiprofessional care. London: MacMillan Press Ltd.
Poehlmann, J., Clements, M., Abbeduto, L., & Farsad, V. (2005). Family experiences associated with a child’s diagnosis of fragile X or Down syndrome: Evidence for disruption and resilience. Mental Retardation, 43, 255–267.
Proctor-Childs, T., Freeman, M., & Miller, C. (1998). Vision of teamwork: The realities of an interdisciplinary approach. British Journal of Therapy and Rehabilitation, 5(12), 616–618. 635.
Quinn, N., & Holland, D. (1987). Culture and cognition. In D. Holland & N. Quinn (Eds.), Cultural models in language and thought (pp. 3–40). Cambridge: Cambridge University Press.
Raghavendra, P., Murchland, S., Bentley, M., Wake-Dyster, W., & Lyons, T. (2007). Parents’ and service providers’ perceptions of family-centred practice in a community-based, pediatric disability service in Australia. Child: Care, Health and Development, 33, 586–592.
Randall-David, E. (1989). Strategies for working with culturally diverse communities and clients. Washington, DC: Association for the Care of Children’s Health.
Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38, 195–206.
Seligman, M., & Darling, R. B. (1989). Ordinary families, special children: A system approach to childhood disability. New York: Guilford Press.
Shaw, D. S., Owens, E. B., Vondra, J. I., Keenan, K., & Winslow, E. B. (1996). Early risk factors and path-ways in the development of early disruptive behavior problems. Development and Psychopathology, 8, 669–679.
Shonkoff, J. P., & Phillips, D. A. (Eds.). (2000). From neurons to neighbourhoods: The science of early childhood development. Washington, DC: National Academy Press.
Skinner, D., Lachicotte, W., & Burton, L. (2006). The difference disability makes: Managing child-hood disability, poverty, and work. In J. Henrici (Ed.), Doing without: Women and work after welfare reform (pp. 113–130). Tucson, AZ: University of Arizona Press.
Skinner, D., Lachicotte, W., & Burton, L. (2007). Childhood disability and poverty: How families navigate health care and coverage. In B. A. Arrighi & D. J. Maume (Eds.), Child poverty in America today: Health and medical care (Vol. 2, pp. 50–62). Westport, CT: Praeger.
Skinner, D., Matthews, S., & Burton, L. (2005). Combining ethnography and GIS technology to examine constructions of developmental opportunities in contexts of poverty and disability. In T. Weisner (Ed.), Discovering successful pathways in children’s development: Mixed methods in the study of child-hood and family life (pp. 223–239). Chicago: University of Chicago Press.
Smich-Dudeon, C. (1996). Parent involvement and the education of limited-English-proficient students. Retrieved April 17, 2009, from http://www.ericdigests.org/pre-925/parent.html
Spiegle, J. A., & Vandenpol, R. A. (1993). Making changes: Family voices on living with disabilities. Cambridge: Brookline Books.
Sroufe, A. L. (2005). Attachment and development: A prospective, longitudinal study from birth to adulthood. Attachment and Human Development, 7(4), 349–367.
Stewart, E. B. (2008). School structural characteristics, student effort, peer associations, and parental involvement: The influence of school and individual-level factors on academic achievement. Urban Education, 40, 179–204.
Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviors exhibited by children with autism and maternal stress. Journal of Intellectual Developmental Disability, 29, 16–26.
Turnbull, A. P., Turbiville, V., & Turnbull, H. R. (2011). Evolution of family–professional partnerships: Collective empowerment as the model for the early twenty-first century. In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention (2nd ed.). Cambridge: Cambridge University Press.
Turnbull, H. R., & Turnbull, A. P. (1985). Parents speak out: Then and now. Columbus: Charles E. Merrill Publishing.
Weisner, T. S., Matheson, C., Coots, J., et al. (2005). Sustainability of daily routines as a family outcome. In A. Maynard & M. Martini (Eds.), Learning in cultural context: Family, peers and school (pp. 47–74). New York: Kluwer/Plenum.
Weiss, J. A., Sullivan, A., & Diamond, T. (2003). Parent stress and adaptive functioning of individuals with developmental disabilities. Journal on Developmental Disabilities, 10, 129–136.
Whitman, C. V., Aldinger, C., Zhang, X. W., & Magner, E. (2008). Strategies to address mental health through schools with examples from China. International Review of Psychiatry, 20(3), 237–249.
Whitmarsh, I., Davis, A., Skinner, D., et al. (2007). A place for genetic uncertainty: Parents’ valuing an unknown in the meaning of disease. Social Science and Medicine, 65, 1082–1093.
WHO. (2004). Prevention of mental disorders: Effective interventions and policy options: Summary report. Geneva: World Health Organization.
Whyte, S. R., & Ingstad, B. (1995). Disability and culture: An overview. In B. Ingstad & S. R. Whyte (Eds.), Disability and culture (pp. 3–32). Berkeley: University of California Press.
Wolfendale, S. (1999). Parents as partners in research and evaluation: Methodological and ethical issues and solutions. British Journal of Special Education, 26(3), 164–170. School Psychology Review, 35, 645–662.
Author information
Authors and Affiliations
Rights and permissions
Copyright information
© 2014 Springer Science+Business Media New York
About this chapter
Cite this chapter
Manor-Binyamini, I. (2014). School Professionals and Parents of Children with Disabilities. In: School-Parent Collaborations in Indigenous Communities. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-8984-9_3
Download citation
DOI: https://doi.org/10.1007/978-1-4614-8984-9_3
Published:
Publisher Name: Springer, New York, NY
Print ISBN: 978-1-4614-8983-2
Online ISBN: 978-1-4614-8984-9
eBook Packages: Behavioral ScienceBehavioral Science and Psychology (R0)