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The Promise of Family Engagement: An Action Plan for System-Level Policy and Advocacy

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Abstract

In its blueprint for mental healthcare reform, the President’s New Freedom Commission outlined a plan for system transformation that prioritized consumer and family-driven care (2003). This federal policy position came on the heels of the Surgeon General’s Report on Children’s Mental Health (1999), advocating an integrated service system model that is inclusive of family engagement. Children’s mental health policy affects children, youth, and families at both the individual treatment level and the system level. The individual level refers to the ways in which direct care staff members interact with individual youth, families, and their support systems in the planning and delivery of services and supports (Rosenblatt, 1998). In contrast, the system level refers to the structural, administrative, and fiscal organization of a continuum of services and supports including linkages between child-serving agencies such as mental health, child welfare, juvenile justice, and education in a community-based setting (Rosenblatt, 1998). Although the past 20 years have marked significant expansion in the role of families in individual treatment-level decision making (Hoagwood, 2005), consistent and meaningful engagement of families in system-level policy action has been much more difficult to accomplish. Knitzer and Cooper (2006) note considerable variation across states related to family advocacy as well as value-driven conflict around family empowerment in system-level decision making.

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Notes

  1. 1.

    Case Studies of System Implementation, a 5-year study jointly funded through the National Institute on Disability and Rehabilitation Research and the Substance Abuse and Mental Health Services Administration. http://rtckids.fmhi.usf.edu/cssi/default.cfm.

  2. 2.

    Actualizing Empowerment: Developing a Framework for Partnering with Families in System Level Service Planning and Delivery. http://logicmodel.fmhi.usf.edu/resources/PDF/ActualizingEmpowermentSymposium3_21_11.pdf

References

  • Arnold, S. B. (2007). Improving quality health care: The role of consumer engagement Issue Brief 1. Princeton, NJ: Robert Wood Johnson Foundation.

    Google Scholar 

  • Baker, D. W., Asch, S. M., Keesey, J. W., Brown, J. A., Chan, K. S., Joyce, G., et al. (2005). Differences in education, knowledge, self-management activities, and health outcomes for patients with heart failure cared for under the chronic disease model: The improving chronic illness care evaluation. Journal of Cardiac Failure, 11(6), 405–413. doi:10.1016/j.cardfail.2005.03.010.

    Article  PubMed  Google Scholar 

  • Barratt, A. (2008). Evidence based medicine and shared decision making: The challenge of getting both evidence and preferences into health care. Patient Education and Counseling, 73(3), 407–412. doi:10.1016/j.pec.2008.07.054.

    Article  PubMed  Google Scholar 

  • Bickman, L., Heflinger, C. A., Northrup, D., Sonnichsen, S., & Schilling, S. (1998). Long term outcomes to family caregiver empowerment. Journal of Child and Family Studies, 7(3), 269–282. doi:1062-1024/98/0900-0269$15.00/0.

    Article  Google Scholar 

  • Bryant-Comstock, S., Huff, B., & VanDenBerg, J. (1996). The evolution of the family advocacy movement. In B. A. Stroul (Ed.), Children’s mental health: Creating systems of care in a changing society (pp. 359–374). Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Croft, S., & Beresford, P. (1992). The politics of participation. Critical Social Policy, 35, 20–44. doi:10.1177/026101839201203502.

    Article  Google Scholar 

  • Duchnowski, A. J., & Kutash, K. (2007). Family driven care: Are we there yet? Tampa, FL: University of South Florida, The Louis de la Parte Florida Mental Health Institute, Department of Child & Family Studies.

    Google Scholar 

  • Dunst, C. J., & Trivette, C. M. (1987). Enabling and empowering families: Conceptual and intervention issues. School Psychology Review, 16, 443–456. Retrieved from http://www.nasponline.org/publications/spr/sprmain.aspx

  • Fischer, F. (2000). Citizens, experts, and the environment: The politics of local knowledge. Durham and London: Duke University Press.

    Google Scholar 

  • Friesen, B. J., Giliberti, M., Katz-Leavy, J., Osher, T., & Pullmann, M. D. (2003). Research in the service of policy change: “The custody problem”. Journal of Emotional and Behavioral Disorders, 11(1), 39–47. doi:10.1177/106342660301100106.

    Article  Google Scholar 

  • Friesen, B. J., & Koroloff, N. (1990). Family-centered services: Implications for mental health administration and research. Journal of Mental Health Administration, 17(1), 13–25. doi:10.1007/BF02518576.

    Article  PubMed  Google Scholar 

  • Friesen, B. J., & Stephens, B. (1998). Expanding family roles in the system of care: Research and practice. In M. H. Epstein, K. Kutash, & A. J. Duchnowski (Eds.), Outcomes for children and youth with emotional and behavioral disorders and their families: Programs and evaluation best practices (1st ed., pp. 231–259). Austin, TX: Pro-ED.

    Google Scholar 

  • Hoagwood, K. E. (2005). Family-based services in children’s mental health: A research review and synthesis. Journal of Child Psychology and Psychiatry, 46, 690–713. doi:10.1111/j.1469-7610.2005.01451.x.

    Article  PubMed  Google Scholar 

  • Hodges, S., Ferreira, K., & Israel, N. (2012). “If we’re going to change things, it has to be systemic:” Systems change in children’s mental health. American Journal of Community Psychology. Advance online publication. doi:10.1007/s10464-012-9491-0.

    Google Scholar 

  • Hurley, R. E., Keenan, P. S., Martsolf, G. R., Maeng, D. D., & Scanlon, D. P. (2009). Early experiences with consumer engagement initiatives to improve chronic care. Health Affairs, 28(1), 277–283. doi:10.1377/hlthaff.28.1.277.

    Article  PubMed  Google Scholar 

  • Jivanjee, P., & Robinson, A. (2007). Studying family participation in system-of-care evaluations: Using qualitative methods to examine a national mandate in local contexts. Journal of Behavioral Health Services and Research, 24(4), 369–381.

    Article  Google Scholar 

  • Johnson, B. H. (2000). Family-centered care: Four decades of progress. Families, Systems & Health, 18(2), 137–156. doi:10.1037/h0091843.

    Article  Google Scholar 

  • Knitzer, J., & Cooper, J. (2006). Beyond integration: Challenges for children’s mental health. Health Affairs, 25(3), 670–679. doi:10.1377/hlthaff.25.3.670ersity.

    Article  PubMed  Google Scholar 

  • Kutash, K., Duchnowski, A. J., Green, A. L., & Ferron, J. (2011). Supporting parents who have youth with emotional disturbances through a parent-to-parent support program: A proof of concept study using random assignment. Administration and Policy in Mental Health and Mental Health Services Research, 38, 412–427. doi:10.1007/s10488-010-0329-5.

    Article  PubMed  Google Scholar 

  • Leape, L., Berwick, D., Clancy, C., Conway, J., Gluck, P., Guest, J., et al. (2009). Transforming healthcare: A safety imperative. Quality & Safety in Health Care, 18(6), 424–428. doi:10.1136/qshc.2009.036954.

    Article  Google Scholar 

  • Légaré, F., Ratté, S., Gravel, K., & Graham, I. D. (2008). Barriers and facilitators to implementing shared decision-making in clinical practice: Update of a systematic review of health professionals’ perceptions. Patient Education and Counseling, 73(3), 526–535. doi:10.1016/j.pec.2008.07.018.

    Article  PubMed  Google Scholar 

  • Linhorst, D. M., Eckert, A., & Hamilton, G. (2005). Promoting participation in organizational decision making by clients with severe mental illness. Social Work, 50(1), 21–30. Retrieved from http://www.naswpress.org/publications/journals/sw.html

    Google Scholar 

  • Lorig, K. R., Ritter, P., Stewart, A. L., Sobel, D. S., William Brown, B., Jr., Bandura, A., et al. (2001). Chronic disease self-management program: 2-year health status and health care utilization outcomes. Medical Care, 39(11), 1217–1223.

    Article  PubMed  Google Scholar 

  • McManus, M., & Friesen, B. J. (1986). Parents of emotionally handicapped children: Needs, resources, and relationships with professionals. Portland, OR: Research and Training Center on Family Support and Children’s Mental Health, Regional Research Institute, Portland State University.

    Google Scholar 

  • National Association of Social Workers. (2008). Code of ethics of the National Association of Social Workers (revised). Washington, DC: Author. Retrieved from http://www.socialworkers.org/pubs/code/code.asp.

  • Osher, T., Xu, Y., & Allen, S. (2006, May–June). Does family engagement matter? Findings from the Family-Driven Study. Presentation at the 2006 Joint National Conference on Mental Health Block Grant and National Conference on Mental Health Statistics, Promoting Recovery through Transformation: Integrating Consumers and Families with Planning and Data, Washington, DC.

    Google Scholar 

  • Patient Protection and Affordable Care Act of 2010, § H.R. 3590 (2010). Retrieved from http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=111_cong_bills&docid=f:h3590enr.txt.

  • President’s New Freedom Commission on Mental Health. (2003). Achieving the promise: Transforming mental health care in America, Final Report (Pub. No. SMA-03-3832). Rockville, MD: Department of Health and Human Services.

    Google Scholar 

  • Research Training Center for Children’s Mental Health. (2004). Case studies of system implementation: Holistic approaches to studying community-based systems of care: Study 2. Tampa, FL: University of South Florida, Louis de la Parte Florida Mental Health Institute, Research and Training Center for Children’s Mental Health.

    Google Scholar 

  • Rosenblatt, A. (1998). Assessing the child and family outcomes of systems of care for youth with serious emotional disturbance. In M. Epstein, K. Kutash, & A. Duchnowski (Eds.), Outcomes for children and youth with behavioral and emotional disorders and their families (pp. 329–362). Austin, TX: PRO-ED.

    Google Scholar 

  • Taub, J., Tighe, T. A., & Burchard, J. (2001). The effects of parent empowerment on adjustment of children receiving comprehensive mental health services. Children’s Services: Social Policy, Research, and Practice, 4(3), 103–122. doi:10.1207/S15326918CS0403_1.

    Google Scholar 

  • U.S. Department of Health and Human Services (USDHHS). (1999). Mental health: A report of the Surgeon General. Chapter 3: Children and mental health. Rockville, MD: Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health.

    Google Scholar 

  • U.S. Department of Health and Human Services (USDHHS). (2002). Cooperative agreements for the comprehensive community mental health services for children and their families program guidance for applicants (GFA) No. SM-02-002. Washington, DC: Substance Abuse and Mental Health Services Administration Center for Mental Health Services.

    Google Scholar 

  • U.S. Department of Health and Human Services (USDHHS). (2005). Cooperative agreements for the comprehensive community mental health services for children and their families program request for applications (RFA) No. SM-05-010. Washington, DC: Substance Abuse and Mental Health Services Administration, Center for Mental Health Services.

    Google Scholar 

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Correspondence to Kathleen Ferreira Ph.D. .

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Ferreira, K., Hodges, S., Slaton, E. (2013). The Promise of Family Engagement: An Action Plan for System-Level Policy and Advocacy. In: Culp, A. (eds) Child and Family Advocacy. Issues in Clinical Child Psychology. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-7456-2_17

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