Abstract
The number of Americans currently afflicted with Alzheimer’s disease (AD) will reach crisis proportions in the future. The current number of approximately 5.4 million Americans is predicted to quadruple by the year 2047. One in eight people over age 65 have the disease, and nearly half have it by age 85. Someone new is diagnosed with the disease every 69 s (Alzheimer’s Association, 2011). Caregivers face stressful challenges in providing care for relatives with dementia, as average length of caregiving exceeds 8–10 years.
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References
Alzheimer’s Association. (2011). Alzheimer’s from the frontlines: Challenges a national Alzheimer’s plan must address (pp. 1–38). Washington, DC: Alzheimer’s Association.
Bacon-Moore, A. S., Paulsen, J. S., & Murphy, C. (1999). A test of odor fluency in patients with Alzheimer’s and Huntington’s disease. Journal of Clinical and Experimental Neuropsychology, 21, 341–351.
Bell, V., & Troxel, D. (1999). The other face of Alzheimer’s disease. American Journal of Alzheimer’s Disease, 14(1), 60–64.
Bell, V., & Troxel, D. (2001). Spirituality and the person with dementia: A view from the field. Alzheimer’s Care Quarterly, 2(2), 31–45.
Bergquist, S., & King, J. (1994). Parish nursing: A conceptual framework. Journal of Holistic Nursing, 12, 155–170.
Berry, D. (2005). Methodological pitfalls in the study of religiosity and spirituality. Western Journal of Nursing Research, 27(5), 628–647.
Biddix, V., & Brown, H. N. (1999). Establishing a parish nursing program. Nursing and Health Care Perspectives, 20(2), 72–75.
Bond, J. (1999). Quality of life for people with dementia: Approaches to the challenge of measurement. Aging and Society, 1(9), 561–579.
Brooker, D. J., Snape, M., Johnson, E., Ward, D., & Payne, M. (1997). Single case evaluation of the effects of aromatherapy and massage on disturbed behavior in severe dementia. The British Journal of Clinical Psychology, 36, 287–296.
Cain, D., & Russell, B. (1995). Blessed are the caregivers: Practical advice and encouragement for those providing care to others. Prospect, KY: NB Publishing and Marketing, Inc.
Carson, V. B., & Green, H. (1992). Spiritual well-being: A predictor of hardiness in patients with acquired immunodeficiency syndrome. Journal of Professional Nursing, 8(4), 209–220.
Chang, B., Noonan, A. E., & Tennstedt, S. L. (1998). The role of religion/spirituality in coping with caregiving for disabled elders. The Gerontologist, 38(4), 463–470.
Clarke, J. (2009). A critical view of how nursing has defined spirituality. Journal of Clinical Nursing, 18(12), 1666–1673.
Collins, W. L. (2004). A personal reflection on long distance secondary caregiving: Spirituality as a strength. Social Work and Christianity, 31(3), 295–303.
Collins, W. L., Holt, T. A., Moore, S. E., & Bledsoe, L. K. (2003). Long-distance caregiving: A case study of an African-American family. American Journal of Alzheimer’s Disease and Other Dementias, 18(5), 309–315.
Coward, D. D. (1991). Self-transcendence and emotional well-being in women with advanced breast cancer: Review and analysis. The Gerontologist, 37, 355–364.
Coward, D. D. (1994). Meaning and purpose in the lives of persons with AIDS. Public Health Nursing, 11, 331–336.
Coward, D. D., & Lewis, F. M. (1993). The lived experience of self-transcendence in gay men with AIDS. Oncology Nursing Forum, 20(9), 1363–1368.
Crumbaugh, J. C. (1968). Cross validation of purpose-in-life test based on Frankl’s concepts. The Journal of Individual Psychology, 24, 74–81.
Dilworth-Anderson, P., Williams, S. W., & Cooper, T. (1999). Family caregiving to elderly African Americans: Caregivers types and structures. Journal of Gerontology: Series B, Psychological Sciences & Social Sciences, 54B, S237–S241.
Dungee-Anderson, D., & Beckett, J. O. (1992). Alzheimer’s disease in African American and White families: A clinical analysis. Smith College Studies in Social Work, 62, 115–168.
Ellison, C. W. (1983). Spiritual well-being: Conceptualization and measurement. Journal of Psychology and Theology, 11(4), 330–340.
Everett, D. (1996). Forget me not: The spiritual care of people with Alzheimer’s Disease. Edmonton: Inkwell Press.
Farran, C. J., Keane-Hagerty, E., Salloway, S., Kupferer, S., & Wilden, C. S. (1991). Finding meaning: An alternative paradigm for Alzheimer’s disease family caregivers. The Gerontologist, 31, 483–489.
Farran, C. J., Miller, B. H., Kaufman, J. E., & Davis, L. (1997). Race, findings, meanings, and caregiver distress. Journal of Aging and Health, 9, 316–333.
Farran, C. J., Paun, O., & Elliott, M. H. (2003). Spirituality in multicultural caregivers of persons with dementia. Dementia, 2(3), 353–377. doi:. 10.1177/14713012030023005
Frankl, V. (1963). Man’s search for meaning. Boston: Beacon.
Frankl, V. (1978). The unheard cry for meaning. New York: Washington Square Press.
George, L. K., Larson, D. B., Koenig, H. G., & McCullough, M. E. (2000). Spirituality and health: What we know, what we need to know. Journal of Social and Clinical Psychology, 19, 102–116.
Gwyther, L. (1995). You are one of us: Successful clergy/church connections to Alzheimer’s families. Durham, NC: Duke University Medical Center.
Hall, E. T. (2000). Caring for a loved one with Alzheimer’s disease: A Christian perspective. Binghamton, NY: Haworth Press.
Hebert, R. S., Dang, Q., & Schulz, R. (2007). Religious beliefs and practices are associated with better mental health in family caregivers of patients with dementia: Findings from the REACH study. The American Journal of Geriatric Psychiatry, 15(4), 292–300.
Hide, K. (2002). Symbol ritual and dementia. Journal of Religious Gerontology, 13(3), 77–90.
Higgins, P. (2005). Bringing spiritual light into dementia. Journal of Dementia Care, 13(2), 10–11.
Hoge, D. R. (1972). A validated intrinsic religious motivation scale. Journal of the Scientific Study of Religion, 11, 369–376.
Hutch, R. L., Burg, M. A., Naberhaus, D. S., & Hellmich, L. K. (1998). The spiritual involvement and beliefs scale. The Journal of Family Practice, 46, 476–486.
Kaye, J., & Robinson, K. M. (1994). Spirituality among caregivers. Image—The Journal of Nursing Scholarship, 26(3), 218–221.
Killick, J. (2006). Helping the flame to stay bright: Celebrating the spiritual in dementia. Journal of Religion, Spirituality & Aging, 18(2), 73–78. doi:10.1300/J496v18n02.
Kilpatrick, S. D., Weaver, A. J., McCullough, M. E., Puchalski, C., Larson, D. B., Hays, J. C., et al. (2005). A review of spiritual and religious measures in nursing research journals: 1995–1999. Journal of Religion and Health, 44(1), 55–66.
Kitwood, T. (1997). Demenita Reconsidered: The person comes first. Mc Graw Hill. ISBN–10: 0335198554,
Lazarus, R., & Folkmans, S. (1984). Stress, appraisal and coping. New York: Springer.
Levin, J. S., Chatters, L. M., & Taylor, R. J. (1995). Religious effects on health status and life satisfaction among Black Americans. Journal of Gerontology: Series B, Psychological Sciences & Social Sciences, 50B, S154–S163.
MacKinlay, K. (2002). Listening to people with dementia: A pastoral care perspective. Journal of Religious Gerontology, 13(3–4), 91–106.
MacNeil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., DeCoster, J., & Williamson, G. M. (2010). Caregiver mental health and potentially harmful caregiving behavior: The central role of caregiver anger. The Gerontologist, 50(1), 76–86.
Matthes, B. P. H. (2001). The role and extent of involvement of Anglican parish based priests in the care of older people with dementia and their families: An exploratory study. Dissertation Abstracts, University of London, King’s College, London.
Maugans, T. (1996). The spiritual history. Archives of Family Medicine, 5(1), 11–16.
McCurdy, D. B. (1998). Personhood, spirituality, and hope in the care of human beings with dementia. The Journal of Clinical Ethics, 9, 81–91.
McElligott, D. (2010). Healing: The journey from concept to nursing practice. Journal of Holistic Nursing, 28(4), 251–259. doi:10.1177/0898010110376321.
McSherry, W., & Cash, K. (2004). The language of spirituality: An emerging taxonomy. International Journal of Nursing Studies, 41(2), 151–161. doi:10.1016/S0020-7489(03)00114-7.
Metzger, S. M. (2000). Parish nursing: Integrating body, mind and spirit. Nursing, 30(12), 64.
Miller, B., Campbell, R. T., Farran, C. J., Kaufman, J. E., & Davis, L. (1995). Race, control, mastery, and caregiver distress. Journal of Gerontology: Series B, Psychological Sciences & Social Sciences, 50B(6), 5374–5382.
Mooney, S. F. (2004). A ministry of memory: Spiritual care for the older adult with dementia. Care Management, 5(3), 183–187.
Mui, A. (1992). Caregiver strain among Black and White daughter caregivers: A role theory perspective. Gerontology, 32(2), 203–212.
Mull, C. S., Cox, C. L., & Sullivan, J. A. (1987). Religion’s role in the health and well-being of well elders. Public Health Nursing, 4(3), 151–159.
Murphy, C. J. (1997). Dementia care and the churches: Involving people and premises. Stirling, Scotland: Dementia Development Center University.
National Institute on Aging/Fetzer Institute Working Group. (1997). Measurement scale on religion, spirituality, health, and aging. Bethesda, MD: National Institute on Aging.
Pargament, K. I. (1997). The psychology of religion and coping: Theory, research, practice. New York: The Guilford Press.
Payne, B. P. (1982). Religiosity. In D. J. Mangen & W. A. Peterson (Eds.), Research instruments in social gerontology (Vol. 2, pp. 343–352). Minneapolis, MN: University of Minnesota Press.
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594.
Pesut, B., Fowler, M., Taylor, E. J., Reimer-Kirkham, S., & Sawatzky, R. (2008). Conceptualising spirituality and religion for healthcare. Journal of Clinical Nursing, 17(21), 2803–2810. doi:10.1111/j.1365-2702.2008.02344.x.
Picot, S. J., Debanne, S. M., Namazi, K. H., & Wykle, M. L. (1997). Religiosity and perceived rewards of Black and White caregivers. The Gerontologist, 37, 89–101.
Post, S. G. (2000). The moral challenge of Alzheimer disease. Baltimore: The Johns Hopkins University Press.
Rabins, P. V., Fitting, M. D., Eastham, J., & Fetting, J. (1990). The emotional impact of caring for the chronically ill. Psychosomatics, 31(3), 331–336.
Rabins, P. V., Fitting, M. D., Eastham, J., & Zabora, J. (1990). Emotional adaptation over time in caregivers of chronically ill elderly people. Age and Aging, 19, 185–190.
Reed, P. G. (1987). Spirituality and well-being in terminally ill hospitalized adults. Research in Nursing and Health, 11, 335–344.
Reed, P. G. (1991). Self-transcendence and mental health in oldest-old adults. Nursing Research, 40(1), 5–11.
Reed, P. G. (1994). Response to “The relationship between spiritual perspective, social support, and depression in caregiving and noncaregiving wives”. Scholarly Inquiry for Nursing Practice: An International Journal, 8(4), 391–396.
Richards, M. (2000). Communicating “soul to soul”—Challenges for care providers. Southwest Journal of Aging, 15:2/16:1, 3–6.
Ries, D. T. (1993). Caregivers and the ministry of Alzheimer’s disease. American Journal of Alzheimer’s Care and Related Disorders, 8(6), 31–36.
Robinson, K. M., Ewing, S., & Looney, S. (2000). Clergy support and caregiver expectations for support: A replication study. American Journal of Alzheimer’s Disease, 15(3), 180–189.
Robinson, K. M., & Kaye, J. (1994). The relationship between spiritual perspective, social support, and depression in caregiving and noncaregiving wives. Scholarly Inquiry for Nursing Practice, 8(4), 375–389.
Roche, L. (1996). Coping with caring: Daily reflections for Alzheimer caregivers. Forest Knolls, CA: Elder Books.
Roger, K. S. (2006). A literature review of palliative care, end of life, and dementia. Palliative & Supportive Care, 4(3), 295–303.
Ryan, E. B., Martin, L. S., & Beaman, A. (2005). Communication strategies to promote spiritual well-being among people with dementia. The Journal of Pastoral Care & Counseling, 59(1–2), 43–55.
Sapp, S. (1999). “To see things as God sees them”: Theological reflections of pastoral care to persons with dementia. Journal of Health Care Chaplaincy, 8, 25–43.
Sessanna, L., Finnell, D. S., Underhill, M., Change, Y. P., & Peng, H. L. (2011). Measures assessing spirituality as more than religiosity: A methodological review of nursing and health-related literature. Journal of Advanced Nursing, 67(8), 1677–1694. doi:10.1111/j.1365-2648.2010.05596.x.
Spurlock, W. R. (2005). Spiritual well-being and caregiver burden in Alzheimer’s caregivers. Geriatric Nursing, 26(3), 154–161.
Stolley, J. M., Buckwalter, K. C., & Koenig, H. G. (1999). Prayer and religious coping for caregivers of persons with Alzheimer’s disease and related disorders. American Journal of Alzheimer’s Disease, 14(3), 181–191.
Stuckey, J. C. (1998). The church’s response to Alzheimer’s disease. Journal of Applied Gerontology, 17(1), 25–37.
Stuckey, J. C. (2003). Faith, aging, and dementia: Experiences of Christian, Jewish, and non-religious spousal caregivers and older adults. Dementia, 2, 337–352.
Teixeira, M. E. (2008). Self-transcendence: A concept analysis for nursing praxis. Holistic Nursing Practice, 22(1), 25–31.
Teusink, J., & Mohler, S. (1984). Helping families cope with Alzheimer’s disease. Community Psychiatry, 35(2), 152–156.
Uwakwe, R. (2000). Knowledge of religious organizations about dementia and their role in care. International Journal of Geriatric Psychiatry, 15, 1152–1157.
Wainright, D. (1995). Living with dementia: A discussion pack for Christians. Derby: Christian Council on Aging.
Wentrobe, D. P. (1999). Pastoral care of problematic Alzheimer’s and dementia affected residents in long-term care setting. Journal of Health Care Chaplaincy, 8, 59–76.
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Robinson, K.M. (2013). Faith and Spirituality: Supporting Caregivers of Individuals with Dementia. In: Zarit, S., Talley, R. (eds) Caregiving for Alzheimer’s Disease and Related Disorders. Caregiving: Research • Practice • Policy. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-5335-2_6
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