Education, Training, and Support Programs for Caregivers of Individuals with Alzheimer’s Disease

Chapter
Part of the Caregiving: Research • Practice • Policy book series (CARE)

Abstract

Although the diagnosis of Alzheimer’s disease is unique to the individual, its effects extend to every family member. The course of its journey is especially challenging because there is no single linear continuum of support over the course of care. And, there is no recipe book of care. Alzheimer’s families seek information at different points in their caregiving careers or at different points in their family member’s disease trajectory. Despite recognized diversity and the need to customize family support and education, most Alzheimer’s families must ultimately identify and negotiate complex decisions, provide strenuous, intimate physical care, and learn to manage strong emotions, anxiety, ambiguity, and uncertainty. How this translates to practice is that education, training, and support programs must be continuously available, offered through a variety of mediums, and accessible from familiar and trusted local sources.

Keywords

Clay Depression Transportation Dementia Income 

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Copyright information

© Springer Science+Business Media New York 2013

Authors and Affiliations

  1. 1.American Association of Caregiving YouthBoca RatonUSA
  2. 2.Department of Psychiatry and Behavioral Sciences, Duke Family Support ProgramDuke UniversityDurhamUSA

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