Abstract
Effective communication is a core component of quality cancer care, yet is challenging for patients and doctors alike. Many doctors find that “breaking bad news” consultations are particularly difficult and stressful. This chapter addresses how truth-telling within bad news consultations is approached in Australia. The cultural norm is for open disclosure and truth-telling, yet there are many situations in which physicians still struggle to break bad news, with little support or training. Unique features of the Australian environment, and Australian government policy, clinical practice guidelines, and training opportunities for breaking bad news, are reviewed. Evidence on current practice in Australia is presented. Cultural issues, which are of great importance in a multi-cultural society such as Australia, are discussed. Finally, Australian-developed tools to facilitate bad news discussions are described, and recommendations for the future are made.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Australian Bureau of Statistics: http://www.abs.gov.au/ausstats/abs@.nsf/Latestproducts/3218. Accessed 16 Sept 2010.
Australian Institute of Health and Welfare. Australia’s Health 2010. The twelfth biennial health report of the Australian Institute of Health and Welfare. Canberra, 2010. ISSN 1032–6138.
Australian Bureau of Statistics. Australian social trends799 (4102.0). Canberra: AGPS; 2006.
Moore R, Butow P. Culture and oncology: impact of context effects. In: Speigel D, editor. Cancer, communication and culture. New York: Kluwer Academic/Plenum Publishers; 2005.
Butow P, Sze M, Dugal-Beri P, Mikhail M, Eisenbruch M, Jefford M et al. From inside the bubble: migrants’ perceptions of communication with the cancer team. Support Care Cancer. 2010. Doi: 10.1007/s00520-010-0817-x.
Goldstein D, Thewes B, Butow P. Communicating in a multicultural society II: Greek community attitudes towards cancer in Australia. Intern Med J. 2002;32:289–96.
Ngo-Metzger Q, Massagli MP, Clarridge BR, Manocchia M, Davis RB, Lezzoni LI, et al. Linguistic and cultural barriers to care: perspectives of Chinese and Vietnamese immigrants. J Gen Intern Med. 2003;18:44–52.
http://www.safetyandquality.gov.au/internet/safety/publishing.nsf/content/Priorityprogram-01. Accessed 3 April 2012.
NHMRC Communicating with patients: advice for medical practitioners. http://www.nhmrc.gov.au/guidelines/publications/e58. Accessed 3 April 2012.
Butow PN, Dowsett S, Hagerty R, et al. Communicating prognosis to patients with metastatic disease: what do they really want to know? Support Care Cancer. 2002;10(2):161–8.
Hagerty RG, Butow PN, Ellis PA, et al. Cancer patient preferences for communication of prognosis in the metastatic setting. J Clin Oncol. 2004;22(9):1721–30.
Clayton JA, Butow PN, Tattersall MHN. When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients. J Pain Symptom Manage. 2005;30(2): 132–44.
Clayton JM, Butow PN, Arnold RM, et al. Discussing end-of-life issues with terminally ill cancer patients and their carers: a qualitative study. Support Care Cancer. 2005;13(8): 589–99.
Gattellari M, Butow PN, Tattersall MHN. Sharing decisions in cancer care. Soc Sci Med. 2001;52(12):1865–78.
Brown R, Butow PN, Boyer MJ, et al. Promoting patient participation in the cancer consultation: evaluation of a prompt sheet and coaching in question asking. Br J Cancer. 1999;80(1–2): 242–8.
Butow P, Devine R, Boyer M, et al. Cancer consultation preparation package: changing patients but not physicians is not enough. J Clin Oncol. 2004;22(21):4401–9.
Girgis A, Sanson-Fisher RW. Breaking bad news: consensus guidelines for medical practitioners. J Clin Oncol. 1995;13(9):2449–56.
Cancer Council. How to Break Bad News: An Interactional Skills Training Manual for General Practitioners, Junior Medical Officers, Nurses, Surgeons. Copyright NSW Cancer Council, December 1997. ISBN 1 875591 85 0. Published online in Wiley Online Library (wileyonlinelibrary.com). DOI: 10.1002/pon.1923.
National Breast Cancer Centre and the National Cancer Control Initiative. Clinical practice guidelines for the psychosocial care of adults with cancer. Syndey: National Breast Cancer Centre; 2003. ISSN 1 74127 000 6.
Clayton J, Hancock K, Butow P, et al. Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers. Med J Aust. 2007;186(12):S77–108.
Cancer Council Australia/Australian Cancer Network/Ministry of Health, New Zealand. Clinical practice guidelines for the management of Melanoma. Syndey: Cancer Council Australia/Australian Cancer Network; 2008. ISBN 978-0-9775060-7-1.
Oncology Education Committee, Cancer Council Australia. Ideal oncology curriculum for medical schools: Knowledge, skills and attitudes of medical students at graduation. The Cancer Council Australia. 2007. ISBN: 0-9775060-4-5.
Australian Medical Council Incorporated. Assessment and accreditation of medical schools: standard and procedures 2002. Australian Medical Council Incorporated: Canberra; 2006. ISBN 1875440232.
Lobb EA, Kenny DT, Butow PN, Tattersall MHN. Women’s preferences for discussion of prognosis in early breast cancer. Health Expect. 2001;4:48–57.
Girgis A, Sanson-Fisher RW, McCarthy WH. Communicating with patients: surgeons’ perceptions of their skills and need for training. Aust N Z J Surg. 1997;67(11):775–80.
Dimoska A, Girgis A, Hansen V, Butow PN, Tattersall MH. Perceived difficulties in consulting with patients and families: a survey of Australian cancer specialists. Med J Aust. 2008;189(11–12):612–5.
Kirk P, Kirk I, Kristjanson LJ. What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ. 2004; 328(7452):1343.
Benson J, Britten N. Respecting the autonomy of cancer patients when talking with their families: qualitative analysis of semistructured interviews with patients. Br Med J. 1996;313(7059): 729–31.
Kaplowitz SA, Campo S, Chui WT. Cancer patients’ desire for communication of prognosis information. Health Commun. 2002;14(2):221–41.
Clayton JM, Butow PN, Tattersall MHN. The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer. 2005;103(9):1957–64.
Huang X, Butow P, Meiser B, Goldstein D. Attitudes and information needs of Chinese migrant cancer patients and their relatives. Aust N Z J Med. 1999;29(2):207–13.
Norman C. Breaking bad news. Aust Fam Physician. 1996;25(10):1583–7.
Mitchison D, Butow P, Sze M, Aldridge L, Hui R, Vardy J et al. Prognostic communication preferences of migrant patients and their relatives. Psycho-Oncology. In Press
Butow PN, Lobb E, Jefford M, Goldstein D, Eisenbruch M, Girgis A, et al. A bridge between cultures: interpreters’ perspectives of consultations with migrant oncology patients. Support Care Cancer. 2012;20(2):235–44.
Lubrano di Ciccone B, Brown RF, Gueguen JA, Bylund CL, Kissane DW. Interviewing patients using interpreters in an oncology setting: initial evaluation of a communication skills module. Ann Oncol. 2010;21(1):27–32.
Butow PN, Dunn SM, Tattersall MHN, et al. Patient participation in the cancer consultation: evaluation of a question prompt sheet. Ann Oncol. 1994;5(3):199–204.
Brown RF, Butow P, Dunn SM, et al. Promoting patient participation and shortening cancer consultations: a randomised trial. Br J Cancer. 2001;85(9):1273–9.
Clayton JM, Butow PN, Tattersall MHN, et al. Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care. J Clin Oncol. 2007;25(6):715–23.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2013 Springer Science+Business Media, LLC
About this chapter
Cite this chapter
Butow, P., Tattersall, M.H.N., Clayton, J., Goldstein, D. (2013). Breaking Bad News and Truth Disclosure in Australia. In: Surbone, A., Zwitter, M., Rajer, M., Stiefel, R. (eds) New Challenges in Communication with Cancer Patients. Springer, Boston, MA. https://doi.org/10.1007/978-1-4614-3369-9_31
Download citation
DOI: https://doi.org/10.1007/978-1-4614-3369-9_31
Published:
Publisher Name: Springer, Boston, MA
Print ISBN: 978-1-4614-3368-2
Online ISBN: 978-1-4614-3369-9
eBook Packages: MedicineMedicine (R0)