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What Professionals in Healthcare Can Do: Family Caregivers as Members of the Treatment Team

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Cancer Caregiving in the United States

Abstract

Changes in healthcare delivery in the United States have left their mark on oncology services, the most significant being the shift in patient care from inpatient to outpatient and ambulatory settings. As a result, the family and other caregivers must now assume an expanded role in providing assistance for cancer patients especially at home (Given et al., CA: A Cancer Journal for Clinicians, 51(4), 213–231, 2001; Glajhen, Journal of Supportive Oncology, 2(2), 145–155, 2004).

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Notes

  1. 1.

    Even programs that do exist are undersubscribed. For example, in many states of the United States, the Children’s Health Insurance Program (CHIP) provides health insurance for children at an affordable cost and yet there is limited enrollment these health plans.

References

  • Adler, H. M. (2002). The sociophysiology of caring in the doctor-patient relationship. Journal of General Internal Medicine, 17(11), 874–881.

    Article  PubMed  Google Scholar 

  • Albrecht, T. L., Penner, L. A., & Ruckdeschel, J. C. (2003). Understanding patient decisions about clinical trials. Journal of Cancer Education, 18(4), 210–214.

    Article  PubMed  Google Scholar 

  • Back, A. L., Arnold, R. M., Baile, W. F., Fryer-Edwards, K., & Tulsky, J. (2005). Approaching difficult communication tasks in oncology. CA: A Cancer Journal for Clinicians, 55(3), 164–177.

    Google Scholar 

  • Baile, W. F., & Aaron, J. (2005). Patient-physician communication in oncology: Past, present, and future. Current Opinion in Oncology, 17(14), 331–335.

    Article  PubMed  Google Scholar 

  • Baile, W. F., Buckman, R., Lenzi, R., Glober, G, Beale, E. A., & Kudelka, A. (2000). SPIKES: A six-step protocol for delivering bad news: Application to the patient with cancer. Oncologist, 5(4), 302–311.

    Article  PubMed  Google Scholar 

  • Blackhall, L. G., Murphy, S. T., Gelya, F., Michel, V., & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. Journal of the American Medical Association, 274(10), 820–825.

    Article  PubMed  Google Scholar 

  • Brown, M. L., Lipscomb, J., & Snyder, C. (2001). The burden of illness of cancer: Economic cost and quality of life. Annual Review of Public Health, 22, 91–113.

    Article  PubMed  Google Scholar 

  • Bucher, J. A., Loscalzo, M., Zabora, J., Houts, P. S., Hooker, C., & Brintzenhofeszoc, K. (2001). Problem-solving cancer care education for patients and caregivers. Cancer Practice, 9(2), 66–70.

    Article  PubMed  Google Scholar 

  • Caplan, G. (1970). The theory and practice of mental health consultation. New York: Basic Books.

    Google Scholar 

  • Cegala, D. J., McClure, L., Marinelli, T. M., & Post, D. M. (2000). The effects of communication skills training on patients’ participation during medical interviews. Patient Education and Counseling, 41(2), 209–222.

    Article  PubMed  Google Scholar 

  • Clayton, J. M., Butow, P. N., Tattersall, M. H., Devine, R. J., Simpson, J. M., Aggarwal, G., et al. (2007). Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care. Journal of Clinical Oncology, 25(6), 715–723.

    Article  PubMed  Google Scholar 

  • Dorval, M., Guay, S., Mondor, M., Masse, B., Falardeau, M., Robidoux, A., et al. (2005). Couples who get closer after breast cancer: Frequency and predictors in a prospective investigation. Journal of Clinical Oncology, 23(15), 588–596.

    Article  Google Scholar 

  • Edwards, B. K., Brown, M. L., Wingo, P. A., Howe, H. L., Ward, E., Ries, L. A., et al. (2005). Annual report to the nation on the status of cancer, 1975–2002, featuring population-based trends in cancer treatment. Journal of the National Cancer Institute, 97(19), 1407–1427.

    Article  PubMed  Google Scholar 

  • Ell, K. (1996). Social networks, social support and coping with serious illness: The family connection. Social Science Medicine, 42(2), 173–183.

    Article  PubMed  Google Scholar 

  • Engel, G. L. (1983). The biopsychosocial model and family medicine. Journal of Family Practice, 16(2), 409, 412–413.

    Google Scholar 

  • Fallowfield, L., & Jenkins, V. (1999). Effective communication skills are the key to good cancer care. European Journal of Cancer, 35(110), 1592–1597.

    Article  PubMed  Google Scholar 

  • Ferrario, S. R., Zotti, A. M., Massara, G., & Nuvolone, G. (2003). A comparative assessment of psychological and psychosocial characteristics of cancer patients and their caregivers. Psycho-Oncology, 12, 1–7.

    Article  Google Scholar 

  • Fitch, M. (2000). Supportive care for cancer patients. Hospital Quarterly, 3(4), 39–46.

    PubMed  Google Scholar 

  • Frankel, R. M., & Steven, T. (2001). Getting the most out of the clinical encounters: The four habits model. Journal of Medical Practice Management, 16(4), 184–191.

    PubMed  Google Scholar 

  • Garg, A., Buckman, R., & Kason, Y. (1997). Teaching medical students how to break bad news. Canadian Medical Association Journal, 156(8), 1159–1164.

    PubMed  PubMed Central  Google Scholar 

  • Given, B. A., Given, C. W., & Kozachik, S. (2001). Family support in advanced cancer. CA: A Cancer Journal for Clinicians, 51(4), 213–231.

    Google Scholar 

  • Glajhen, M. (2004). The emerging role and needs of family caregivers in cancer care. Journal of Supportive Oncology, 2(2), 145–155.

    Google Scholar 

  • Gray-Price, H., & Szczesny, S. (1985). Crisis intervention with families of cancer patients: A developmental approach. Topics in Clinical Nursing, 7(1), 58–70.

    PubMed  Google Scholar 

  • Grunfeld, E., Coyle, D., Whelan, T., Clinch, J., Reyno, L., Earle, C. C., et al. (2004). Family caregiver burden: Results of a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal, 170(12), 1811–1812.

    Article  Google Scholar 

  • Hack, T. F., Pickles, T., Bultz, B. D., Reuther, J. D., Weir, L. M., Degner, L. F., et al. (2003). Impact of providing audiotapes of primary adjuvant treatment consultations to women with breast cancer: A multi-site, randomized, controlled trial. Journal of Clinical Oncology, 21(22), 4138–4144.

    Article  PubMed  Google Scholar 

  • Hampton, T. H. (2005). Cancer treatment’s trade-off: Years of added life can have long term costs. Journal of the American Medical Association, 94(2), 167–168.

    Google Scholar 

  • Heiney, S. (1988). Assessing and intervening with dysfunctional families. Oncology Nursing Forum, 15(5), 585–590.

    PubMed  Google Scholar 

  • Isaksen, A. S., Thuen, F., & Hanestad, B. (2003). Patients with cancer and their close relatives: Experiences with treatment, care, and support. Cancer Nursing, 26(1), 68–74.

    Article  PubMed  Google Scholar 

  • Jefford, M., & Tattersall, M. H. N. (2002). Informing and involving cancer patients in their own care. The Lancet Oncology, 3(10), 629–637.

    Article  PubMed  Google Scholar 

  • Joint Commission on Accreditation of Hospitals. (2004). Spiritual assessment. Retrieved from http://www.jointcommission.org/AccreditationPrograms/Hospitals/Standards/FAQs/Provision+of+Care/Assessment/Spiritual_Assessment.htm. Accessed Feb 2009.

  • Keller, M. (2001). Information supplied to cancer patients and their caregivers: No more unmet needs? Supportive Care in Cancer, 9(8), 563–564.

    Article  PubMed  Google Scholar 

  • Kettler, P. J., & Baile, W. F. (2005). Caring for the cancer patient: The caregiver’s perspective. Psycho-Oncology, 14, S55.

    Google Scholar 

  • Le Chatelier, H. L. (1888). A general statement of the laws of equilibrium. Comptee Rendus, 99, 786–789.

    Google Scholar 

  • Lev, E. L. (1985). Community support for oncology patient and family. Topics in Clinical Nursing, 7(1), 71–78.

    PubMed  Google Scholar 

  • Lewis F. M., Woods N. F., Hough E. E., & Bensley L. S. (1989). The family’s functioning with chronic illness in the mother: The spouse’s perspective. Social Science Medicine, 29, 1261–1269.

    Article  PubMed  Google Scholar 

  • Lipkin, M. (1996). Patient education and counseling in the context of modern patient-physician-family communication. Patient Education and Counseling, 27(1), 5–11.

    Article  PubMed  Google Scholar 

  • Lunney, J. R. (2000). Resources for caregivers of terminally ill cancer patients. Cancer Practice, 8(2), 99–100.

    Article  PubMed  Google Scholar 

  • Maguire, P., Fairbairn, S., & Fletcher, C. (1986). Consultation skills of young doctors: I—Benefits of feedback training in interviewing as students persist. British Medical Journal, 292(6535), 1573–1576.

    Article  PubMed  PubMed Central  Google Scholar 

  • Masera, G., Spinetta, J. J., Jankovic, M., Ablin, A. R., Buchwall, I., Van Dongen-Melman, J., et al. (1998). Guidelines for a therapeutic alliance between families and staff: A report of the SIOP working committee on psychosocial issues in pediatric oncology. Medical and Pediatric Oncology, 30(3), 183–186.

    Article  PubMed  Google Scholar 

  • Matthews, D. A., Suchman, A., & Branch, W. T. (1993). Making “connexions”: Enhancing the therapeutic potential of patient-clinician relationships. Annals of Internal Medicine, 118(12), 973–977.

    Article  PubMed  Google Scholar 

  • McMillan, S. C., Small, B. J, Weitzner, M., Schonwetter, R., Tittle, M., Moody, L., et al. (2006). Impact of coping skills intervention with family caregivers of hospice patients with cancer. Cancer, 106(1), 214–222.

    Article  PubMed  Google Scholar 

  • Mills, M. E., & Sullivan, K. (1999). The importance of information giving for patients newly diagnosed with cancer: A review of the literature. Journal of Clinical Nursing, 8(6), 631–642.

    Article  PubMed  Google Scholar 

  • Mishel, M., Hostetter, T., King, B., & Graham, V. (1984). Predictors of psychosocial adjustment in patients newly diagnosed with gynecological cancer. Cancer Nursing, 7(4), 291–299.

    Article  PubMed  Google Scholar 

  • Morris, S. M., & Thomas, C. (2001). The carer’s place in the cancer situation: Where does the carer stand in the medical setting? European Journal of Cancer Care, 10(2), 87–95.

    Article  PubMed  Google Scholar 

  • Mossman, J., Boudioni, M., & Slevin, M. L. (1999). Cancer information: A cost-effective intervention. European Journal of Cancer, 35(11), 1587–1591.

    Article  PubMed  Google Scholar 

  • Nijboer, C., Tempelaar, R., Triemestra, M., van den Bos, G. A. M., & Sanderman R. (2001). The role of social and psychologic resources in caregiving of cancer patients. Cancer, 91(5), 1029–1039.

    Article  PubMed  Google Scholar 

  • Northouse, L. L. (2005). Helping families of patients with cancer. Oncology Nursing Forum, 32(4), 743–750.

    Article  PubMed  Google Scholar 

  • Northouse, P. G., & Northouse, L. L. (1987). Communication and cancer: Issues confronting patients, health professionals, and family members. Journal of Psychosocial Oncology, 5(3), 17–46.

    Article  Google Scholar 

  • Ong, L. M., Visser, M. R., Lammes, F. B., van Der Velden, J., Kuenen, B. C., de Haes, J. C. (2000). Effect of providing cancer patients with the audiotaped initial consultation on satisfaction, recall and quality of life: A randomized, double-blind study. Journal of Clinical Oncology, 18(16), 3052–3060.

    PubMed  Google Scholar 

  • Parker, P. A., Baile, W. F., de Moor, C., Lenzi, R., Kudelka, A. P., & Cohen, L. (2001). Breaking bad news about cancer: Patients’ preferences for communication. Journal of Clinical Oncology, 19(7), 2049–2056.

    PubMed  Google Scholar 

  • Pasacreta, J. V., Barg, F., Nuamah, I., & McCorkle, R. (2000). Participant characteristics before and 4 months after attendance at a family caregiver cancer education program. Cancer Nursing, 23(4), 295–303.

    Article  PubMed  Google Scholar 

  • Peteet, J., & Greenberg, B. (1995). Marital crisis in oncology patients: An approach to initial intervention by primary clinicians. General Hospital Psychiatry, 17(3), 201–207.

    Article  PubMed  Google Scholar 

  • Quinn, W. H., & Herndon, A. (1986). The family ecology of cancer. Journal of Psychosocial Oncology, 4(1/2), 45–59.

    Article  Google Scholar 

  • Rickel, L. M. (1987). Making mountains manageable: Maximizing quality of life through crisis intervention. Oncology Nursing Forum, 14(4), 29–34.

    PubMed  Google Scholar 

  • Sardell, A. N., & Trierweiler, S. J. (1993). Disclosing the cancer diagnosis: Procedures that influence patient hopefulness. Cancer, 72(11), 3355–3365.

    Article  PubMed  Google Scholar 

  • Scott, J. L., Halford, W. K., & Ward, B. G. (2004). United we stand? The effects of a couple coping intervention and adjustment to early stage breast gynecological cancer. Journal of Consulting Clinical Psychology, 72(6), 1122–1135.

    Article  PubMed  Google Scholar 

  • Shanafelt, T. (2005). Finding meaning, balance and personal satisfaction in the practice of oncology. Journal of Supportive Oncology, 3(2), 157–162.

    PubMed  Google Scholar 

  • Shanafelt, T., Chung, H., White, H., & Lyckholm, L. J. (2006). Shaping your career to maximize personal satisfaction in the practice of oncology. Journal of Clinical Oncology, 24(24), 4020–4026.

    Article  PubMed  Google Scholar 

  • Shelby, R. A., Taylor, K. L., Kerner, J. F., Coleman, E., & Blum, D. (2002). The role of community-based and philanthropic organizations in meeting cancer patient and caregiver needs. CA: A Cancer Journal for Clinicians, 52(4), 229–246.

    Google Scholar 

  • Siegel, K., Raveis, V. H., Mor, V., & Houts, P. (1991). The relationship of spousal caregiver burden to patient disease and treatment-related conditions. Annals of Oncology, 2(7), 511–516.

    PubMed  Google Scholar 

  • Speice, J., Harkness, J., Laneri, H., Frankel, R., Roiter, D., Kornblith, A. B., et al. (2000). Involving family members in cancer care: Focus group considerations of patients and oncological providers. Psycho-Oncology, 9(2), 101–112.

    Article  PubMed  Google Scholar 

  • Spinetta, J. J., Jankovic, M., Ben Arush, M. W., Eden, T., Epelman, C., Greenberg, M. L., et al. (2000). Guidelines for the recognition, prevention and remediation of burnout in health care professionals participating in the care of children with cancer: Report of the SIOP working committee on psychosocial issues in pediatric oncology. Medical and Pediatric Oncology, 35(2), 122–125.

    Article  PubMed  Google Scholar 

  • Thomas, C., & Morris, S. M. (2002). Informal carers in cancer contexts. European Journal of Cancer Care, 11, 178–182.

    Article  PubMed  Google Scholar 

  • Toseland, R. W., Blanchard, C. G., & McCallion, P. (1995). A problem solving intervention for caregivers of cancer patients. Social Science Medicine, 40(4), 517–528.

    Article  PubMed  Google Scholar 

  • Tummala, M. K., & Maguire, W. P. (2005). Recurrent ovarian cancer. Clinical Advances in Hematology & Oncology, 3(9), 723–736.

    Google Scholar 

  • Welch-McCaffrey, D. (1988). Family issues in cancer care: Current dilemmas and future directions. Journal of Psychosocial Oncology, 6(1/2), 199–211.

    Google Scholar 

  • Wong, R. K. S., Franssen, E., Szumacher, E., Connolly, R., Evans, M., Page, B., et al. (2002). What do patients living with advanced cancer and their carers want to know? A needs assessment. Supportive Care in Cancer, 10(5), 408–415.

    Article  PubMed  Google Scholar 

  • Yun, Y. H., Rhee, Y. S., Kang, I. O., Lee, J. S., Bang, S. M., Lee, W. S., et al. (2005). Economic burdens and quality of life of family caregivers of cancer patients. Oncology, 68(2–3), 107–114.

    Article  PubMed  Google Scholar 

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Baile, W.F., Tacchi, P., Aaron, J. (2012). What Professionals in Healthcare Can Do: Family Caregivers as Members of the Treatment Team. In: Talley, R., McCorkle, R., Baile, W. (eds) Cancer Caregiving in the United States. Caregiving: Research • Practice • Policy. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-3154-1_6

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